paediatric

  1. adambeyoncelowe

    CFS in the NHS public dataset

    Link here: https://data.bris.ac.uk/data/dataset/3kp75dy7ngru4236r8t1gl71h5
  2. Andy

    Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: A scoping review, 2019, Collard and Murphy

    Open access at https://journals.sagepub.com/doi/10.1177/1367493519864747
  3. Andy

    ME Association guest blog: "My daughter and the pervasive dangers of PACE in paediatric M.E." by Adam Johnson

    https://www.meassociation.org.uk/2019/08/my-daughter-and-the-pervasive-dangers-of-pace-in-paediatric-m-e-by-adam-johnson-06-august-2019/
  4. Andy

    How fair is our service [UCL/GOSH]? Evaluating access to specialist paediatric care, 2019, Neale et al

    Paywall, https://adc.bmj.com/content/early/2019/07/12/archdischild-2019-317254 Sci hub, not available at time of posting
  5. Dolphin

    RCPCH conference 2019 abstract: Does the NHS offer equitable access to specialist paediatric clinics? Neale et al

    https://adc.bmj.com/content/104/Suppl_2/A139.2
  6. MeSci

    ME/CFS contributions at Royal College of Paediatrics and Child Health conference, May 2019

    Source: Archives of Disease in Childhood Volume 104, Suppl 2 Date: May 2019 URL: https://adc.bmj.com/content/104/Suppl_2 Royal College of Paediatrics and Child Health --------------------------------------------- Abstracts of the RCPCH Conference and exhibition 13–15 May 2019, ICC...
  7. Andy

    Obstacles to recruitment in paediatric studies focusing on mental health in a physical health context: the experiences of.., 2019, Loades et al

    Crawley's team churn another paper out. Open access at https://bmcmedresmethodol.biomedcentral.com/articles/10.1186/s12874-019-0730-z
  8. Sly Saint

    Public Defence: Maria Pedersen – Pediatrics Norway Feb. 28, 2019

    " Public Defence: Maria Pedersen – Pediatrics Cand.med. Maria Pedersen at Institute of Clinical Medicine will be defending the thesis Chronic “Chronic Fatigue and Chronic Fatigue Syndrome Following acute Epstein-Barr Virus Infection in Adolescents” for the degree of Philosophiae doctor (PhD)...
  9. Kalliope

    frontiers in Pediatrics: Initiating Care of a patient with ME/CFS - Lapp - 2019

    Initiating Care of a Patient with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) This paper introduces the primary care physician to the unique and challenging aspects of initially diagnosing and managing a complex condition for which there are a plethora of symptoms, few physical...
  10. MeSci

    The use of videoconferencing for delivering therapy in a Specialist Paediatric Chronic Fatigue Service (2018) Haig-Ferguson et al.

    Wasn't sure where to put this (if anywhere): Source: Internet Interventions Preprint Date: December 23, 2018 URL: https://www.sciencedirect.com/science/article/pii/S2214782918300642 'It's not one size fits all'; the use of videoconferencing for delivering therapy in a Specialist Paediatric...
  11. Dolphin

    Hannah Rapley thesis incl. staff’s experience & knowledge of fabricated or induced illness within a paediatric chronic fatigue setting

    https://ethos.bl.uk/OrderDetails.do?did=1&uin=uk.bl.ethos.760921
  12. Andy

    The Development of the DePaul Symptom Questionnaire: Original, Expanded, Brief, and Pediatric Versions, 2018, Jason

    Open access at https://www.frontiersin.org/articles/10.3389/fped.2018.00330/full
  13. Esther12

    Adolescent and parent factors related to fatigue in paediatric multiple sclerosis and CFS: A comparative study (2019) Carroll, Chalder, Moss-Morris

    The abstract made it sound like another study that tries to confuse association and causation where their data didn't really support their narrative, but I stopped reading before getting to their results... too many infuriating unfounded claims to read before bed in just the intro. Funded by MS...
  14. Sly Saint

    Defining the minimally clinically important difference of the SF-36 physical function subscale for paediatric CFS/ME - Crawley et al

    Defining the minimally clinically important difference of the SF-36 physical function subscale for paediatric CFS/ME: triangulation using three different methods Amberly Brigden Roxanne M Parslow Daisy Gaunt Simon M Collin Andy Jones Esther Crawley...
  15. MeSci

    Management of ME/CFS: Adult & Paediatric - 'First Do No Harm.'

    Source: Eventbrite Date: August 2018 URL: https://www.eventbrite.co.uk/e/management-of-mecfs-adult-paediatric-first-do-no-harm-tickets-46131336068 Management of ME/CFS: Adult & Paediatric - 'First Do No Harm.' ---------------------------------------------------------- Mon 17 September 2018...
  16. Melanie

    Archive of Diseases in Childhood: Editor's Note on Lightning Process Trial (June 2018)

  17. Sly Saint

    MAGENTA (Managed Activity Graded Exercise iN Teenagers and pre-Adolescents) - Esther Crawley

    https://bmjopen.bmj.com/content/6/7/e011255 " Study design This study started in September 2015 and recruitment is expected to finish in August 2016. This is a feasibility RCT with integrated qualitative methods." " Ethical considerations GET, CBT and activity management are recommended as...
  18. Andy

    David Tuller: Trial By Error: More Letters About BMJ’s Flawed Pediatric Studies

    http://www.virology.ws/2018/06/11/trial-by-error-more-letters-about-bmjs-flawed-pediatric-studies/
  19. Dolphin

    Letter from parents of children with ME to paediatricians in the UK

    [Apologies if this has been posted before] Dear Paediatrician, We are parents of children with ME. We are writing to as many Paediatricians as we can because many of you look after children with ME. ME is the single greatest cause of long term school absences in children, and in this...
  20. Andy

    Current treatment approaches for paediatric CFS/ME, 2017, Loades, Bridgen and Crawley

    If you really want to, the rest can be read at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5939995/
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