1. Guest, the 'News in Brief' for the week beginning 3rd May 2021 is here.
    Dismiss Notice
  2. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: A scoping review, 2019, Collard and Murphy

Discussion in 'PsychoSocial ME/CFS Research' started by Andy, Aug 7, 2019.

  1. Andy

    Andy Committee Member (& Outreach when energy allows)

    Messages:
    12,892
    Likes Received:
    93,150
    Location:
    Hampshire, UK
    Open access at https://journals.sagepub.com/doi/10.1177/1367493519864747
     
    Annamaria, Simbindi, Hutan and 8 others like this.
  2. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,066
    Likes Received:
    32,975
    I just did a quick search for 'lightning' to see if they chose to ignore the problems with SMILE. They did:

    They're using it as evidence of "the positive benefits of a cognitive-behavioral approach":

    Wonder why this charity would be funding work that promoted junk-science?

     
    Annamaria, Simbindi, Hutan and 15 others like this.
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    6,058
    Likes Received:
    49,742
    Location:
    UK
    similarly
    seems to rely on Gordon Lubitz 2009 'promising outcomes of an adolescent Chronic fatigue syndrome inpatient program', Journal of Paediatrics and child health

    hardly conclusive
     
    Annamaria, Hutan, Anna H and 4 others like this.
  4. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    8,000
    Likes Received:
    47,200
    Location:
    UK West Midlands
    Are they adopting Crawleys Chronic disabling fatigue i wonder
     
    Annamaria, Anna H and DokaGirl like this.
  5. Trish

    Trish Moderator Staff Member

    Messages:
    32,167
    Likes Received:
    152,754
    Location:
    UK
    Another pile of junk. I looked up the lead author. All her previous publications were about exercise treatments for epilepsy.

    They have completely uncritically jumbled together a pile of articles found in a literature search. I doubt the authors have any idea what CFS is - it's just words to them. Might as well be analysing breakfast cereals on the basis of what's written on the packets.

    Literature searches are all very well for beginner research students to get a feel for what's out there, but unless they are prepared to dig into things like diagnostic criteria, problems with questionnaire based studies, sample sizes, lack of replication, p-hacking, cherry picking etc, the outcome is junk.
     
    Annamaria, Simbindi, Hutan and 14 others like this.
  6. Andy

    Andy Committee Member (& Outreach when energy allows)

    Messages:
    12,892
    Likes Received:
    93,150
    Location:
    Hampshire, UK
    From Financial Year ending 2017 (the last details available).
    http://apps.charitycommission.gov.uk/Accounts/Ends28/0001089728_AC_20170331_E_C.PDF

    Charity Commission details on them, https://beta.charitycommission.gov.uk/charity-details/?regid=1089728&subid=0

    From the limited information available the trust seems to be a vehicle for one persons philanthropy, so it's probably more a matter of personal connections.
     
    Annamaria, Hutan, DokaGirl and 3 others like this.
  7. Amw66

    Amw66 Senior Member (Voting Rights)

    Messages:
    4,465
    Likes Received:
    21,222
    will this never end?
     
    Annamaria, Hutan, Anna H and 5 others like this.
  8. Trish

    Trish Moderator Staff Member

    Messages:
    32,167
    Likes Received:
    152,754
    Location:
    UK
    @dave30th this is another one quoting/promoting the LP study uncritically.
     
    Annamaria, Kalliope, Simbindi and 8 others like this.
  9. DokaGirl

    DokaGirl Senior Member (Voting Rights)

    Messages:
    2,119
    Likes Received:
    13,300
    I was reading about the OMF funded collaborative centre at Harvard, and yet more abnormalities the OMF team have found in their severe study, and thought next time I see a GET/CBT study I will mention these new findings. Such as a notably missing good gut bacteria, and more discussion of a genetic abnormality. HR has this article on its site. Can't put link up right now.

    Wilfull blindness on the part of BPS colleagues. They really do ignore a large body of evidence. Evidence which continues to increase.
     
    Annamaria and Peter Trewhitt like this.
  10. rvallee

    rvallee Senior Member (Voting Rights)

    Messages:
    6,198
    Likes Received:
    50,332
    Location:
    Canada
    Nope. Useless criteria make for useless results. Garbage.
     
    Annamaria, Hutan, DokaGirl and 3 others like this.

Share This Page