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Management of chronic fatigue syndrome/myalgic encephalomyelitis in a pediatric population: A scoping review, 2019, Collard and Murphy

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Andy, Aug 7, 2019.

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  1. Andy

    Andy Committee Member

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    Open access at https://journals.sagepub.com/doi/10.1177/1367493519864747
     
    Andy, Aug 7, 2019
    #1
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  2. Esther12

    Esther12 Senior Member (Voting Rights)

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    I just did a quick search for 'lightning' to see if they chose to ignore the problems with SMILE. They did:

    They're using it as evidence of "the positive benefits of a cognitive-behavioral approach":

    Wonder why this charity would be funding work that promoted junk-science?

     
    Esther12, Aug 7, 2019
    #2
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  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    similarly
    seems to rely on Gordon Lubitz 2009 'promising outcomes of an adolescent Chronic fatigue syndrome inpatient program', Journal of Paediatrics and child health

    hardly conclusive
     
    Sly Saint, Aug 7, 2019
    #3
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  4. NelliePledge

    NelliePledge Moderator Staff Member

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    Are they adopting Crawleys Chronic disabling fatigue i wonder
     
    NelliePledge, Aug 7, 2019
    #4
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  5. Trish

    Trish Moderator Staff Member

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    Another pile of junk. I looked up the lead author. All her previous publications were about exercise treatments for epilepsy.

    They have completely uncritically jumbled together a pile of articles found in a literature search. I doubt the authors have any idea what CFS is - it's just words to them. Might as well be analysing breakfast cereals on the basis of what's written on the packets.

    Literature searches are all very well for beginner research students to get a feel for what's out there, but unless they are prepared to dig into things like diagnostic criteria, problems with questionnaire based studies, sample sizes, lack of replication, p-hacking, cherry picking etc, the outcome is junk.
     
    Trish, Aug 7, 2019
    #5
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  6. Andy

    Andy Committee Member

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    From Financial Year ending 2017 (the last details available).
    http://apps.charitycommission.gov.uk/Accounts/Ends28/0001089728_AC_20170331_E_C.PDF

    Charity Commission details on them, https://beta.charitycommission.gov.uk/charity-details/?regid=1089728&subid=0

    From the limited information available the trust seems to be a vehicle for one persons philanthropy, so it's probably more a matter of personal connections.
     
    Andy, Aug 7, 2019
    #6
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  7. Amw66

    Amw66 Senior Member (Voting Rights)

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    will this never end?
     
    Amw66, Aug 7, 2019
    #7
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  8. Trish

    Trish Moderator Staff Member

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    @dave30th this is another one quoting/promoting the LP study uncritically.
     
    Trish, Aug 7, 2019
    #8
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  9. DokaGirl

    DokaGirl Senior Member (Voting Rights)

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    I was reading about the OMF funded collaborative centre at Harvard, and yet more abnormalities the OMF team have found in their severe study, and thought next time I see a GET/CBT study I will mention these new findings. Such as a notably missing good gut bacteria, and more discussion of a genetic abnormality. HR has this article on its site. Can't put link up right now.

    Wilfull blindness on the part of BPS colleagues. They really do ignore a large body of evidence. Evidence which continues to increase.
     
    DokaGirl, Aug 7, 2019
    #9
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  10. rvallee

    rvallee Senior Member (Voting Rights)

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    Nope. Useless criteria make for useless results. Garbage.
     
    rvallee, Aug 7, 2019
    #10
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