norway

A short article in Psychology Magazine, the Journal of the Norwegian Psychology Association, on the 'psychology of PEM'. It's the argument that psychosocial factors are the reason patients remain sick. Via google translate, Norwegian site here, English translation here.

See also: 2018 Campaign week from the Norwegian ME Association to increase knowledge Merged thread Guest blogger for Norwegian ME Association: "Opted Out" The Norwegian ME Association offers its website for patients and others who wish to share their ME-related story in a blogpost. The...

Spotted a link to this study in a tweet by @Tom Kindlon It is a qualitative study from Norway with interviews of seven adolescents with ME. The names of the authors are unfamiliar to me and I didn't get that much from the abstract, so wasn't sure which forum to put this in but decided to go...

A coalition of parents and other carers to children and adolescents with ME has written a letter to the Norwegian Directorate of Health about the national centre of excellence for CFS/ME. The centre has a biopsychosocial approach to ME, and the parents give several examples of how this view is...

Some of you might remember that the Research Council of Norway gave 30 million NOK (3 800 000 USD/ 2700000 GBP) to ME-research last year and invited ME-patients together with health personell and researchers to advice on how to distribute the funds. This was a pilot project from the Research...

The Norwegian biology professor Kristian Gundersen has several times criticised ME-patients for criticising research. First time was last year where he defended PACE against its criticism and warned against ME-patients being listened to. @Jonathan Edwards wrote a response. Last week he...

Oslo University Hospital has an ongoing study about treatment of fatigue after aneurysm. It sounded a bit interesting. Any thoughts? OUS: Kan nytt medikament hjelpe mot utmattelse etter aneurismeblødning? google translation: Can new medication help against fatigue after aneurysm bleeding...

There will be an ME-conference in Kristiansand, Norway 18th-19th April. The programme is wide-ranging, but I am sure most anticipation will be for Øystein Fluge's lecture on the first day: "Presentation and results from the RituxME-study and mention of CycloME and the metabolism studies". I...

Before Christmas, the Journal of the Norwegian Psychological Association had two wonderful texts about ME. One was about a family bravely talking about their loss of trust in the health care system after the child authorities several times had looked into their situation. The other text was from...

CATO-senteret, a rehabilitation center for children and adolescents with a biopsychosocial approach to ME, invites health personell to a conference titled "When the body refuse". I noticed both prof. Wyller and Lillebeth Larun (from the Cochrane review group on ME) among the speakers. From...

The Norwegian Broadcasting Corporation (NRK) with article on ME and child welfare authorities. One of four parents with children with ME say they have been threatened of child welfare authorities from school, health personell or others. A father with two children under assessment for ME tells...

The Norwegian ME Association has interviewed neurologist and paediatrician professor Kristian Sommerfelt about cognitive challenges for children and adolescents with ME. He works at the children's ward at Haukeland university hospital in Bergen, Norway. He has long experience with children and...

Merged threads HPV vaccination and risk of CFS/ME: A nationwide register-based study from Norway, 2017, Feiring A Norwegian study came out this year about the link between HPV and CFS/ME. For those who don't know, there have been some complaints about onset of ME after receiving the vaccine...

Spotted on Twitter with link to pdf: http://www.investinme.org/Docs/NMEF%2030%20Years%20Letter.pdf

https://brage.bibsys.no/xmlui/handle/11250/2466218 MOTOR BEHAVIOR IN CHRONIC FATIGUE SYNDROME AND FIBROMYALGIA Rasouli, Omid Doctoral thesis View/Open http://hdl.handle.net/11250/2466218 Issue date 2017 Abstract Bakgrunn: Kronisk utmattelsessyndrom (CFS) er karakterisert ved...

I'm amazed I never heard of this! It was uploaded a year ago and has had only 1,500 views. Maria is my hero(ine)! She's the reason we got a rituximab trial, IMO. She's a previously bedbound medical doctor who recovered from her ME/CFS following rtx treatment in a pilot study by Fluge and...

Research Conference in Oslo 20 - 21. November 2017 The Norwegian ME Association is preparing a research conference in cooperation with Oslo university Hospital and the Norwegian Institute of public Health. The first day is for researchers only, primarily from Scandinavia. The second day has an...

This thread has been split from the 'News from Scandinavia' thread Thought it might be useful to have a thread on news from Scandinavia. Hopefully it can become an archive and useful as a reference in future. Starting with the kickoff of one of the four research projects which recently got...

Thought it might be useful to have a thread on news from Scandinavia. Hopefully it can become an archive and useful as a reference in future. Starting with the kickoff of one of the four research projects which recently got funded in cooperation with ME-patients by the Research Council of...