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Biopsychosocial seminar in Norway (June 2018)

Discussion in 'General ME/CFS News' started by Kalliope, Jan 24, 2018.

  1. Kalliope

    Kalliope Senior Member (Voting Rights)

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    CATO-senteret, a rehabilitation center for children and adolescents with a biopsychosocial approach to ME, invites health personell to a conference titled "When the body refuse".

    I noticed both prof. Wyller and Lillebeth Larun (from the Cochrane review group on ME) among the speakers.


    From introduction to the conference - google translation:

    Medical Unexplained Disorders (MUPS), Bodily Distress Syndrome (BDS) and Functional Neurobiological Symptomatic Disorders are some of the common names used as collective terms for a variety of diseases or syndromes. Despite significant research activity, there have been no clear objective diagnostic criteria or good drug strategies.

    Do you recognize ICPC diagnostic codes like P75, L84, L18, N95, P02, P82, L83, L29, A04, P78 and P29? Or ICD10 diagnostic codes such as F48.0, Z73.0, F45.4, F45.8, G93.3, R51, G44.2, R52.2, R52.9, M54.2, M54.5, M54.9, M79.1, M79.7?

    Although some individuals and organizations have strong opinions about both causal relationships and therapies, the classical disease model may not seem to affect such disorders. However, when this is still used, it leads to repeated rounds in the specialist health service looking for a cause that "must exist". In the despair of absence of such causes, it opens for use of soothing treatment and alternative therapies.

    BUT -

    - What do we really know today about causal relationships and treatment that work?
    against prolonged pain in the muscles and skeletal system without known cause (including fibromyalgia, neck, headache and back pain)
    against different fatigue conditions and fatigue (including burnout and CFS / ME)
    - What do we actually mean by the biopsychosocial explanation model and what does it in practice mean to use such a model? And should we not stop using the term psychosomatic disorders?
    - Perhaps many patients have to accept that life does not meet the WHO criteria for good health - for most of us. But that it is about accepting that life is such - and to help find good coping strategies?
    - What do we know about how important training / activity and participation are in these strategies?

    Although we do not yet fully understand these states, how can we jointly utilize the knowledge available in the best possible way?

    Therefore - are you?

    General practitioner who struggles with patients with long-term pain and / or fatigue conditions, sleep disorders and addiction
    Medical practitioner wondering how long to investigate these patients, how many times they will be assessed and how many interventions they will undergo - because you still believe that there must be a structural explanation of the radiant pain, on the paralysis, on the invalidating headache. ..
    Physiotherapist wondering why none of your available therapies gives lasting effect
    Psychologist or psychiatric nurse wondering what to do to help the same patients - and how to deal with all the medications they are on ..
    School nurse wondering how to help the children return to school stability and out of social isolation
    NAV employee wondering why no one in health care can help these users to regain their work ability.
    Employed in the Directorate of Health, which will make good guidelines for the treatment of major diseases for the improvement of public health ..

    ... then you should sign up for this conference!

    During this conference we will focus on recent theoretical explanatory models and status in ongoing research. And we will share practical experiences from the work of "the repetitions (stress, pain and sleep). We realize that the solution is not simple (a "quickfix"), but that development still gives hope to help many more to a better life and better functioning. Hope that there are actually methods and strategies that help, but that require us to think new in relation to interdisciplinary and cross-sectoral cooperation.

    We hope to provide concrete advice on effective tools that can help you in your daily life - whether you are a clinician, a politician, a NAV employee or an employee in a directorate or department!

    Welcome to cooperation!




    From the programme:
    Making sense of somatic symptoms: The Neurobiology of Body Talk - prof. and you psychiatrist Kasia Kozlowska

    Adrenal burnout - theory and practice - Henrik Børsting Jacobsen - psychologist

    The biopsychosocial model; model, method and understanding - Peter S. Lyby - psychologist

    The opioid-epidemic - from despair to hope. The pain doctors experience with transition from drug focus to non-drug-mastering-strategies with longterm pain - Gunnar Olsson from Karolinska Hospital, Sweden

    Chronic fatigue - symptom or illness? - prof. Vegard Bruun Wyller from Oslo university Hospital

    Language matters - how to approach patients in crisis - Bård Fossli Jensen, MD

    Panel debate with focus on the meeting between people versus usage of opioid and hypnotica.

    Treatment of patients with somatic symptoms: Treatment principles and developing a treatment plan
    - Kasia Koslowska

    Children and stress in a society-perspective; school attendance - Trond H. Diseth, prof. MD from Oslo University Hospital

    Experiences with patients with long-lasting pain of unknown origin - Pro. Petter Borchgrevink from St. Olavs Hospital

    How we work with "functional illness" - Lisbeth Frostholm, psychologist from the research clinic for functional disorders at Aarhus University Hospital in Denmark

    Get vs GAT - what is it and how does it work? - Lillebeth Larun

    How can (and should) ACT as method be implemented in the organisation - Trym Nordstand Jakobsen, psychologist

    Panel debate: How do we continue our work with "functional neurobiological symptom conditions in Norway. Who takes responsibility for this group and how do we cooperate?

     
    Hutan, MEMarge, Stuart and 14 others like this.
  2. Valentijn

    Valentijn Not a moderator

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    Sure... just as soon as "most of you" are as disabled as "most of us". Though with any luck, these quacks will soon be accepting that they do not meet government standards for gainful employment :rolleyes:
     
    Last edited: Jan 24, 2018
  3. Woolie

    Woolie Committee member

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    Oh, this is really nasty stuff, @Kalliope. It starts off all innocent about "soothing and alternative therapies", but then gets quickly into what its really all about:

    Target groups include:
    - School nurse wondering how to help the children return to school stability and out of social isolation
    - Medical practitioner wondering how long to investigate these patients, how many times they will be assessed and how many interventions they will undergo - because you still believe that there must be a structural explanation of the radiant pain, on the paralysis, on the invalidating headache. ..
    - Psychologist or psychiatric nurse wondering what to do to help the same patients - and how to deal with all the medications they are on

    Topics include:
    - Making sense of somatic symptoms: The Neurobiology of Body Talk
    - Chronic fatigue - symptom or illness?
     
  4. strategist

    strategist Senior Member (Voting Rights)

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    They claim to have answers, but where's the evidence? There is none. It's just a cultish belief system that would be forgotten if there wasn't money to be made from it.

    They want to sell or even force quack treatment on some of the most vulnerable patients in the healthcare system.
     
    Hutan, alktipping, MEMarge and 17 others like this.
  5. Cheshire

    Cheshire Moderator Staff Member

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    "For most of us", what a belittlement of what we are going through. This really portrais us as sissies that can't cope with common benign problems...

    I'd like Kasia to make sense of "Body Talk".
     
  6. Andy

    Andy Committee Member & Outreach

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    She may have a challenge on her hands there ;)
     
    MEMarge, ladycatlover, Woolie and 5 others like this.
  7. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

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    I thought Norway had moved on from all that baloney.....infuriating
     
  8. Rick Sanchez

    Rick Sanchez Senior Member (Voting Rights)

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    What is this significant research activity they are talking of? The 5 million dollars a year the illness received annually? I always get so frustrated that they get away with making stuff up like this unchallenged.

    Sending our best and brightest!

    YOU'RE WELCOME NORWAY
     
    Last edited: Jun 8, 2018
  9. JemPD

    JemPD Senior Member (Voting Rights)

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    Oh God :( :facepalm: :( :banghead: I thought Norway was one of the 'good' ones, after their government apologised. So demoralising.
     
  10. Inara

    Inara Senior Member (Voting Rights)

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    Welcome to the dungeon. What a horror show
     
  11. NelliePledge

    NelliePledge Moderator Staff Member

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    Bloody hell does the Prime Minister know this is going on. Im surprised they get away with spouting this bilge in Norway now
     
    alktipping, MEMarge, Inara and 4 others like this.
  12. MountainMonkey

    MountainMonkey Established Member

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    Wish I knew who are behind this conference. I doubt Catosenteret came up with the idea on their own.
    Maybe "the usual suspects" - Wyller, Larun, Helland, among others - hiding behind Catosenteret.
     
  13. MEMarge

    MEMarge Senior Member (Voting Rights)

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    What other delights will be revealed, are Per Fink and Phil Parker going. I know LP was banned in Norway, but now that its success has been "proved" and published in the medical literature....
     
  14. MEMarge

    MEMarge Senior Member (Voting Rights)

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  15. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Maybe EC should offer her services: "Tips on making up acronyms that are easier to remember", even if they still don't make sense"

    Come to think of it, why limit it to acronyms, why not "How to make all sorts of things up/misrepresent the facts/ make false allegations of libel etc..."
     
  16. Kalliope

    Kalliope Senior Member (Voting Rights)

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    No, they are mushing it all together. G93.3 is the diagnostic code for ME (Canada-criteria).

    From the programme (my bold):
    Do you recognize ICPC diagnostic codes like P75, L84, L18, N95, P02, P82, L83, L29, A04, P78 and P29? Or ICD10 diagnostic codes such as F48.0, Z73.0, F45.4, F45.8, G93.3, R51, G44.2, R52.2, R52.9, M54.2, M54.5, M54.9, M79.1, M79.7?
    Although some individuals and organizations have strong opinions about both causal relationships and therapies, the classical disease model may not seem to affect such disorders. However, when this is still used, it leads to repeated rounds in the specialist health service looking for a cause that "must exist". In the despair of absence of such causes, it opens for use of soothing treatment and alternative therapies.
     
  17. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Wyller has been premise provider over many years for health personell working with children and young adults with ME. He has a PhD in the disease, has done research over many years into it, and is trusted by many. If I didn't know ME that well, and worked at the Cato-senteret, I might have done exactly the same at them.

    Parents and patients have tried to alert them that their offer for children/young adults with ME is not helpful.

    This is one of the responses from the Center (in the thread of this Facebookpost from 2014). Written by senior doctor and CEO Finn Berset:
    (google translation) Of course, there are varied experiences with the Cato Center. However, these are subjective and influenced by many factors. We listen and register - and reflect on whether there are circumstances we should consider and that should lead to changes in information, plans, etc. However, as regards to our knowledge of the disease and the development of our specific treatment lines, it is the specialist environments we must listen to - and manage after.
     
    Last edited: Jan 29, 2018
  18. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Honestly, I was surprised that LP-coach Live Landmark isn't one of the speakers.
     
  19. MountainMonkey

    MountainMonkey Established Member

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    Maybe she'll pop up as part of the show during dinner. "The Live Landmark magic show - how to hoodwink health care bureaucrats and workers. You'll have to see it to believe it! Special guests: Per Fink and Esther Crawley. One night only!"
     
    alktipping, Solstice, Inara and 6 others like this.
  20. Kalliope

    Kalliope Senior Member (Voting Rights)

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    This tweet says:
    We shall have a good and professionally updated health care system in Norway, also for ME-patients. The Cato-center's programme belongs to the past. Professionals and health bureaucrats must get updated on new research, patients experiences must be listened to, and trust redeemed.

    Then there is a link to the recent ME-article in the Independent.



    The tweet is "liked" by prime minister Erna Solberg :thumbup:
     
    Last edited: Jan 31, 2018
    Hutan, alktipping, Inara and 10 others like this.

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