Some of you might remember that the Research Council of Norway gave 30 million NOK (3 800 000 USD/ 2700000 GBP) to ME-research last year and invited ME-patients together with health personell and researchers to advice on how to distribute the funds. This was a pilot project from the Research Council who never before has welcomed users to the table in this way. They got an enormous amount of enthusiastic response from patients and seem pleased with the project and the process. They've now written an evaluation of the project (only available in Norwegian) and a news story about the evaluation. The project has gotten a lot of criticism because an application on a trial on ME and LP by prof. Wyller got refused. Also some people are sharing the myth that it was ME-patients who made all the decisions. That's not true. Some health personell, researchers and patients were invited to a user panel in order to go through the suggestions from the public. The ME-patients in the user-panel were in minority. But they were AT the table for the first time ever - which in itself is huge progress (and apparently very provocative for some people who, for some reason and probably just by chance, all have a biopsychosocial approach to ME in common..). Forskningsrådet: Brukerinvolvering ga brukere reell innflytelse google translate: User involvement gave users real influence "We have learned a lot about how we can become more open and involve users in the allocation processes and have greatly appreciated both the commitment and the level of knowledge among patients and relatives. We used this to design the invitation to the researchers and to identify the most relevant and useful project proposals in the first round, "says Research Council Director John-Arne Røttingen.