norway

I searched but couldn't find this here, which is surprising. I've also Googled and can't find details of this elsewhere...

University of Oslo https://www.clinicaltrials.gov/ct2/show/NCT02970240

Promising news from Norway. The Norwegian ME Association is working together with the foundation and institution Røysumtunet with plans on developing care for patients with severe ME. The institution was established in 1965 and will soon have 12 available places, as an offer for patients with...

Note: due to the Covid-19 situation, the conference has been postponed to 2021. The Norwegian ME Association - Rogaland County - invites to a big ME-conference in Stavanger 23-24th Sept. 2020. Main lecturers are: Ron Davis and Ian Lipkin Other lecturers are: Kristian Sommerfelt, professor and...

Magnus P1, Gunnes N2, Tveito K3, Bakken IJ2, Ghaderi S2, Stoltenberg C2, Hornig M4, Lipkin WI4, Trogstad L2, Håberg SE2. Abstract BACKGROUND: Chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) is associated to infections and it has been suggested that vaccination can trigger the...

https://www.researchsquare.com/article/2cbbe49c-bacd-499d-9b58-711c37b05aea/v1

This magnificent documentary on ME is now available on Youtube with english subtitles. Watch it, and send it to whoever needs to see what ME is. Edit: Please share this documentary! I think its one of the few that can actually help people understand us!

Opinion piece in the Norwegian public broadcaster NRK by professor Ola Didrik Saugstad. He is a paediatrician and has been an important spokesperson for ME patients for decades with a particular engagement for patients with severe ME. The mastering techniques KAT and LP have been tested in...

Editorial in Acta Pædiatricia: Myalgic Encephalomyelitis (ME) in the Young. Time to Repent - Ola Didrik Saugstad A reorientation of the understanding and attitude to ME patients occurs worldwide. ME patients, especially the worse cases, suffer enormously. Among them, the paediatric patients are...

Free full text: https://onlinelibrary.wiley.com/doi/full/10.1111/1467-9566.12249

ME-patient and activist Sissel Sunde has written an informative blog post where she tells her own story and provides an overview of the ME debate in Norway. Among other things she tells about participating at the seminar of psychiatrist Bjarte Stubhaug, who claims he can treat 8 out of 10...

The Norwegian Institute of Public Health, the Norwegian ME Association and Oslo University Hospital are organising a research conference about CFS/ME in Oslo 25th-26th November. Program Dr. Joseph J. Breen, National Institute of Health, USA: NIH Intramural Study on ME/CFS Dr. Carmen...

Activity registration in ME/CFS Would you like to be part of developing new methods for future clinical trials? We are seeking participants for a study to test the activity device Fitbit Charge 3 for measurement of physical activity in patients with ME/CFS. The study doesn't entail any...

Both Norwegian and English versions available at https://melivet.com/2019/09/24/me-og-relevant-vitenskap/

Jørgen Jelstad is a physiotherapist, author, journalist and speaker who for several years was a strong voice in the Norwegian ME debate. In 2011 he published a book about ME, "De bortgjemte" (The hidden - and how ME/CFS became the most controversial disease of our time) which was an important...

https://www.nytimes.com/2019/09/10/world/europe/norway-dog-deaths.html?action=click&module=Latest&pgtype=Homepage Lot of stuff going on in Norway....why am I sure that this story will garner far more media coverage than all the MECFS issues in Norway?

This post and the following ones have been moved from this thread. Blogger Nina E. Steinkopf has written a blog post about Lightning Process and its entry into Norwegian medical establishment. She draws a parallel to Elizabeth Holmes from USA, who through network and false claims managed to...

I'm creating a separate thread for this, as I believe there will be some articles and additional information of interest before, during and after this conference. There's been a large annual psychiatric conference in Stavanger, Norway called "The Schizophrenia Days" since 1989. It has grown...

I've only read the summary so far, but it looks amazing. Here are a few Google translated quotes from the summary: "A key message in the report is: The most ill ME patients are an extremely vulnerable group with minimal or no margins, where even small mistakes can lead to prolonged and severe...

Title:Suggested Pathology of Systemic Exertion Intolerance Disease: Impairment ofthe E3 Subunit or Crossover of Swinging Arms of the E2 Subunit of the Pyruvate Dehydrogenase Complex Decreases Regeneration of Cofactor DihydrolipoicAcid of the E2 Subunit Abtract:Systemic Exertion Intolerance...