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  1. Andy
    Thread

    NPR: For People With Chronic Fatigue Syndrome, More Exercise Isn't Better

    Old, 2nd Oct 2017, article. Health organizations are emphasizing that myalgic encephalomyelitis/chronic fatigue syndrome is a serious long-term...
    Thread by: Andy, May 6, 2018, 1 replies, in forum: General ME/CFS news
  2. Andy
    Thread

    NICE guidance on psychological treatments for bipolar disorder: searching for the evidence. 2016, Jauhar, McKenna and Laws

    Note: this is from 2016. It's new to me but may be familiar to others. Summary The recent National Institute for Health and Care Excellence...
    Thread by: Andy, Apr 14, 2018, 6 replies, in forum: Other health news and research
  3. Andy
    Thread

    Consultation on the update to Developing NICE guidelines: the manual

    As a NICE stakeholder, S4ME can have input on this update process. I can't imagine that there is much, if any, interest here, we've got lots of...
    Thread by: Andy, Apr 4, 2018, 4 replies, in forum: Other guidelines
  4. Andy
    Thread

    S4ME is looking for another representative for the NICE ME/CFS Guidelines review process

    Posted elsewhere but creating a new thread for maximum visibility. Each stakeholder organisation is able to put forward two representatives...
    Thread by: Andy, Mar 24, 2018, 29 replies, in forum: Advocacy Projects and Campaigns
  5. Tom Kindlon
    Thread

    Anyone have any info on NICE previously saying they weren't updating guidelines due to PACE trial results?

    We think we have got what we need now. Thanks. I'm working with a few people to write something about the PACE trial. Can anyone recall, ideally...
    Thread by: Tom Kindlon, Mar 16, 2018, 8 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  6. Andy
    Thread

    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    Finally received email confirmation of this: Dear Colleague, NICE guideline: Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue...
    Thread by: Andy, Mar 16, 2018, 278 replies, in forum: General ME/CFS news
  7. ukxmrv
    Thread

    NICE CFS/ME Guidelines SCOPE

    Here is a copy of the SCOPE used for the existing NICE CFS/ME Guideline I think that the next NICE stakeholders meeting 25/5 will be on a new...
    Thread by: ukxmrv, Mar 12, 2018, 17 replies, in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Esther12
    Thread

    United Kingdom: 2007 NICE CFS/ME GUIDELINE

    I got asked to put these online. Not had a chance to read them yet myself, but apparently there may be some final minutes missing, as apparently...
    Thread by: Esther12, Feb 24, 2018, 63 replies, in forum: Other guidelines
  9. Sly Saint
    Thread

    Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

    NICE has promised to review its current guidelines on ME/CFS, which is not scheduled to be completed until 2020. Meanwhile it has left the...
    Thread by: Sly Saint, Feb 23, 2018, 141 replies, in forum: Petitions
  10. Sly Saint
    Thread

    Pernicious Anaemia or ME - misdiagnosis concerns

    Martyn Hooper Chair of Pernicious Anaemia Society on new NICE guidelines for ME: "Last week I was at a NICE consultation which was looking at the...
    Thread by: Sly Saint, Feb 15, 2018, 37 replies, in forum: Vitamin B12, D and other deficiencies
  11. Andy
    Thread

    Blog: Spoonseeker, "An Offer You Can’t Refuse"

    In the previous post about the NICE Guidelines revision, it was reported that Prof Mark Baker of NICE had raised the issue of the right of...
    Thread by: Andy, Jan 28, 2018, 28 replies, in forum: General ME/CFS news
  12. Keela Too
    Thread

    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    I've put both a report of my impressions of the meeting, and my list of points to raise, into this blog post....
    Thread by: Keela Too, Jan 16, 2018, 149 replies, in forum: Advocacy Projects and Campaigns
  13. Andy
    Thread

    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    In short they are asking for GET and CBT to be removed as treatments before the review concludes in 2020. Core of first letter By removing the...
    Thread by: Andy, Jan 16, 2018, 340 replies, in forum: Open Letters and Replies
  14. Andy
    Thread

    Petition: Appeal to NICE concerning the Guideline Committee for ME/CFS

    This was created to support @Graham 's open letter, which can be found here,...
    Thread by: Andy, Jan 15, 2018, 26 replies, in forum: Petitions
  15. Andy
    Thread

    Graham's finalised letter to NICE, January 2018

    This letter will be sent to Sir Andrew Dillon, chief executive of NICE, on Monday 16th January. This thread is locked so that any replies and...
    Thread by: Andy, Jan 12, 2018, 1 replies, in forum: Open Letters and Replies
  16. Sly Saint
    Thread

    EBV, Glandular fever (infectious mononucleosis)

    As it seems a lot of people go on to develop ME following a virus (children in partic seem particularly susceptible after mono,EBV), I thought I'd...
    Thread by: Sly Saint, Jan 2, 2018, 12 replies, in forum: Infections: Lyme, Candida, EBV ...
  17. Keela Too
    Thread

    Format of NICE stakeholder meeting?

    I was wondering if anyone knows how a NICE stakeholder meeting works? I am guessing that our “CFS/ME” one will be well attended, so I’m...
    Thread by: Keela Too, Dec 27, 2017, 133 replies, in forum: Advocacy Projects and Campaigns
  18. Graham
    Thread

    Proposed Letter to NICE

    We intend to send this letter to Sir Andrew Dillon (NICE) early in January. I don't know whether any of you would like to add your (real) names to...
    Thread by: Graham, Dec 22, 2017, 105 replies, in forum: Open Letters and Replies
  19. Andy
    Thread

    NICE are looking for a chair for the ME/CFS guideline committee

    We are looking for a chair for the diagnosis and management of myalgic encephalomyelitis (or encephalopathy)/ chronic fatigue syndrome guideline...
    Thread by: Andy, Dec 21, 2017, 10 replies, in forum: General ME/CFS news
  20. Andy
    Thread

    NICE list of stakeholders for the ME/CFS Guidelines

    For reference really. Not only are there a lot of psychs and BPS influences there, but some others seem like strange groups to be stakeholders....
    Thread by: Andy, Dec 8, 2017, 46 replies, in forum: General ME/CFS news
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