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Page 4 of 7
  1. Andy
    Thread

    Letter from the 25% ME group to NICE re: CBT and GET, Feb 2019

    We, the 25% ME group, would like to make our voices heard with regard to the use of Graded Exercise Therapy (GET) and Cognitive Behaviour Therapy...
    Thread by: Andy, Feb 23, 2019, 21 replies, in forum: 2020 UK NICE ME/CFS Guideline
  2. daftasabrush
    Thread

    NICE guidelines: topic experts and the behind the scenes

    Some revelations about shenanigans at NICE - the IAPT team is in charge of the NICE guidelines for ME/CFS - as flagged up by Hope 4 Fibro & ME...
    Thread by: daftasabrush, Feb 3, 2019, 34 replies, in forum: 2020 UK NICE ME/CFS Guideline
  3. Andy
    Thread

    How should we evaluate research on counselling and the treatment of depression? A case study on..., 2017, Barkham et al

    Abstract Background Health guidelines are developed to improve patient care by ensuring the most recent and ‘best available evidence’ is used to...
    Thread by: Andy, Jan 22, 2019, 4 replies, in forum: Other psychosomatic news and research
  4. Andy
    Thread

    Spoonseeker: " Coming down the Line"

    So, a few weeks into 2019, where do we think we are with M.E.? Are we making progress at last? Or are things very different from how they seem?...
    Thread by: Andy, Jan 21, 2019, 5 replies, in forum: Advocacy Projects and Campaigns
  5. Science For ME
    Thread

    S4ME Letter to Nice Concerning Chris Burton

    This is a letter we sent from S4ME to NICE as discussed in a voting thread for those members who have posted enough to have voting rights. Sorry...
    Thread by: Science For ME, Jan 21, 2019, 11 replies, in forum: Open Letters and Replies
  6. Andy
    Thread

    NICE Annual Conference 2019: "Transforming care"

    Welcome to the NICE Annual Conference 2019 NICE 2019: Transforming care celebrates 20 years of NICE’s commitment to innovation, excellence and...
    Thread by: Andy, Jan 20, 2019, 16 replies, in forum: Other health news and research
  7. Suffolkres
    Thread

    Healthwatch England - Resource for Campaign Assistance

    Moderator note: This post and subsequent discussion have been moved from this thread: Forward ME Group CBT/GET Survey - Tell NICE your experiences...
    Thread by: Suffolkres, Jan 16, 2019, 17 replies, in forum: General Advocacy Discussions
  8. Suffolkres
    Thread

    Complaint about process of NICE review of ME/CFS Guidelines

    Moderator note: post moved from Open - Forward ME Group CBT/GET Survey - Tell NICE your experiences In my latest missive to NICE about LocalME...
    Thread by: Suffolkres, Jan 13, 2019, 1 replies, in forum: General Advocacy Discussions
  9. Gecko
    Thread

    Closed Forward ME Group CBT/GET Survey - Tell NICE your experiences

    The National Institute of Health and Care Excellence (NICE) is rewriting the UK ME guidelines. As part of this process, the Forward ME Group...
    Thread by: Gecko, Jan 11, 2019, 85 replies, in forum: Recruitment into current ME/CFS research studies
  10. Trish
    Thread

    NICE guidelines - Evidence of harm from Graded Exercise therapy

    This thread is intended for collecting evidence of harms from GET and other therapies that involve increasing activity and/or exercise....
    Thread by: Trish, Dec 14, 2018, 27 replies, in forum: 2020 UK NICE ME/CFS Guideline
  11. Trish
    Thread

    NICE guidelines - Resources on severe and very severe ME.

    I think it would be useful for all of us, and perhaps for the NICE committee members, to gather together resources about severe and very severe...
    Thread by: Trish, Dec 13, 2018, 12 replies, in forum: 2020 UK NICE ME/CFS Guideline
  12. Andy
    Thread

    Blog: Spoonseeker: "The Vale of Strange"

    [IMG] You may wonder what that picture’s doing here and what that title ‘The Vale of Strange’ is about. It should all become clear as this post...
    Thread by: Andy, Dec 11, 2018, 1 replies, in forum: Advocacy Projects and Campaigns
  13. Andy
    Thread

    MEAction: " All I want for Christmas is #ScienceNotStigma"

    This Christmas, millions will be missing from parties and celebrations, because of the severity of ME. Yet the National Institute of Health and...
    Thread by: Andy, Dec 9, 2018, 13 replies, in forum: Advocacy Action Alerts
  14. Cheshire
    Thread

    NICE guidelines update

    NICE documentation NICE guidelines 2007: Link to document 2007 NICE guidelines setup: General comments from stakeholders (CFS/ME consultation...
    Thread by: Cheshire, Dec 9, 2018, 0 replies, in forum: Science library (Read only)
  15. Sly Saint
    Thread

    2014 Impact case study - Queen Mary University of London (QMUL) - CFS

    Didn't know where to post this or if it has been posted before; 1. Summary of the impact Chronic fatigue syndrome (CFS) is a disorder of...
    Thread by: Sly Saint, Dec 5, 2018, 21 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  16. Science For ME
    Thread

    S4ME letter to NICE and Replies, re: "three members of the ME/CFS Guideline Committee have a conflict of interest"

    This is a letter we sent from S4ME to NICE as discussed in a voting thread for those members who have posted enough to have voting rights. We are...
    Thread by: Science For ME, Nov 30, 2018, 27 replies, in forum: Open Letters and Replies
  17. Sly Saint
    Thread

    Children's pain: we can make it better? - featuring J. Bond-Kendall

    Chronic fatigue syndrome One condition that often presents with a range of chronic pain symptoms is chronic fatigue syndrome (CFS) or myalgic...
    Thread by: Sly Saint, Nov 29, 2018, 0 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  18. ME/CFS Skeptic
    Thread

    2018: Discussion on the NICE procedure: what to expect next?

    Been reading through some documents from the previous NICE guideline procedure (Dolphin posted most of them in this thread). They give some...
    Thread by: ME/CFS Skeptic, Nov 27, 2018, 33 replies, in forum: 2020 UK NICE ME/CFS Guideline
  19. Kalliope
    Thread

    David Tuller: Trial By Error: Some Thoughts About NICE

    Some thoughts about NICE In fact, a robust debate about ME/CFS treatments rooted in scientific principles would be welcome, since such a debate...
    Thread by: Kalliope, Nov 19, 2018, 28 replies, in forum: General ME/CFS news
  20. Barry
    Thread

    ME/CFS NICE Guideline - Safety testing of GET in PACE trial

    The issue of GET and safety has of course been much discussed, especially regarding the the PACE trial authors' claims to have demonstrated its...
    Thread by: Barry, Nov 19, 2018, 24 replies, in forum: General ME/CFS news
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