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Blog: Spoonseeker, "An Offer You Can’t Refuse"

Discussion in 'General ME/CFS News' started by Andy, Jan 28, 2018.

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  1. Andy

    Andy Committee Member (& Outreach when energy allows)

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    https://spoonseeker.com/2018/01/28/an-offer-you-cant-refuse/
     
    Andy, Jan 28, 2018
    #1
    JohnM, Hutan, alktipping and 22 others like this.
  2. chrisb

    chrisb Senior Member (Voting Rights)

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    It sometimes appears that the UK's mental health provision is merely an extension of homeopathy-like will cure like.
     
    chrisb, Jan 28, 2018
    #2
    Squeezy, Viola, Solstice and 8 others like this.
  3. strategist

    strategist Senior Member (Voting Rights)

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    One gets the impression the people running the asylum are crazier than the inmates in some ways.
     
    strategist, Jan 28, 2018
    #3
    alktipping, Squeezy, Spoonseeker and 11 others like this.
  4. strategist

    strategist Senior Member (Voting Rights)

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    English speakers, please help me out here: what is the word for disrespecting patient autonomy? (when a no is not respected, and patients are pushed or even forced to do things they clearly did not want to do).
     
    strategist, Jan 28, 2018
    #4
    alktipping, MEMarge, Wonko and 2 others like this.
  5. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    ....not sure @strategist ....

    You could say they "ride roughshod" over the patient. Meanig to treat harshly, domineer, override.....
     
    Invisible Woman, Jan 28, 2018
    #5
    alktipping, Esperanza, Indigophoton and 6 others like this.
  6. Valentijn

    Valentijn Guest

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    Patronizing, condescending, paternalism, coercion, duress.
     
    Valentijn, Jan 28, 2018
    #6
    alktipping, Viola, Squeezy and 6 others like this.
  7. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Generically, imposition of treatment would cover it but perhaps doesn't suggest quite what you are looking for?
     
    Andy, Jan 28, 2018
    #7
    alktipping, MEMarge, Invisible Woman and 3 others like this.
  8. chrisb

    chrisb Senior Member (Voting Rights)

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    Coercive?
     
    chrisb, Jan 28, 2018
    #8
    alktipping, Inara, Indigophoton and 9 others like this.
  9. Forbin

    Forbin Senior Member (Voting Rights)

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    "Subjugation"?
    "Paternalism"?
    "Loss of self determination"?
    "Enslavement"?
     
    Forbin, Jan 28, 2018
    #9
    alktipping, Inara, Valentijn and 4 others like this.
  10. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    Oppressive?
    Dictatorial?
    Authoritarian?
     
    Invisible Woman, Jan 28, 2018
    #10
    alktipping, Indigophoton, Valentijn and 4 others like this.
  11. Wonko

    Wonko Senior Member (Voting Rights)

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    routine?
     
    Wonko, Jan 28, 2018
    #11
    Hutan, alktipping, TiredSam and 15 others like this.
  12. Alvin

    Alvin Senior Member (Voting Rights)

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    Can't read the article but the premise seems correct, refuse and you face loss of or inability to get disability benefits meaning being put out on the streets where we would not survive long (unless we are lucky enough to have generous families who can help us), children kidnapped by the state based on lies and victim blaming and the prevention of progress toward real research and a treatment.
    And then they have the gall to say they are not responsible for the consequences of their actions :emoji_face_palm:
     
    Alvin, Jan 28, 2018
    #12
    alktipping, Inara, Indigophoton and 11 others like this.
  13. James

    James Established Member (Voting Rights)

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    Mathew Hopkins as witch finder general offered similar choices, when carrying out investigations.
     
    James, Jan 28, 2018
    #13
    alktipping, Inara, Squeezy and 7 others like this.
  14. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Many of my terms are not suitable for the forum, though the term childcatcher has been used by some.

    All excellent terms for the next NICE meeting and/or useful for any letters to Prof Mark Baker from S4ME before he retires.
     
    MEMarge, Jan 28, 2018
    #14
    alktipping, Inara, Squeezy and 4 others like this.
  15. Esther12

    Esther12 Senior Member (Voting Rights)

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    Reminded me of Derick Wade's response to PACE at the SMC:

    http://www.sciencemediacentre.org/e...reatments-for-chronic-fatigue-syndromeme-2-2/
     
    Esther12, Jan 29, 2018
    #15
    Tom Kindlon, Inara, Indigophoton and 7 others like this.
  16. chrisb

    chrisb Senior Member (Voting Rights)

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    Well; he was from Oxford. And what a fine example of "newspeak" the "Enablement Directorate" is.

    With the SMC it is hard to be sure whether it is the grasp of science or language which is unusual.

    "The study made the first definitive comparison of various treatments for CFS/ME..."
     
    chrisb, Jan 29, 2018
    #16
    Arnie Pye, Esther12, Inara and 6 others like this.
  17. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Ensuring that the word reablement is not applicable to people with ME was a key point raised at our table at the NICE workshop.

    GOSH (Great Ormond St Hsp) were never able to explain directly to me why their services were referred to as "Rehabilitation" though I raised the question several times. I guess they knew I would outline why that was so inappropriate.

    Oh yea my daughter's at the rehab clinic sends the wrong message in SO many ways
     
    MEMarge, Jan 29, 2018
    #17
    Chezboo, alktipping, Esperanza and 11 others like this.
  18. Trish

    Trish Moderator Staff Member

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    I have just read the blog at the start of this thread. It is heartbreaking and shocking that patients with physical illnesses are being treated this way when they are wrongly put in a mental health facility. What happened to listening to the patient. Apparently once you get a mental diagnosis, the staff feel they have the right to 'know better'.

    I think Nigel Speight's response is important. He is emphasising the importance of getting a correct diagnosis, which we would all agree with, but the important thing he is saying is 'don't ask for treatment'.

    I think what he means by this is, don't ask for ME/CFS treatment, because if you do, you are likely to be set on the path of CBT/GET/treatment refusal going on your record.

    This is what he says:
    Perhaps, at least in the UK at present, it's more productive to seek treatment for individual symptoms - sleep, pain etc. rather than for the overall illness.
     
    Trish, Jan 29, 2018
    #18
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  19. Squeezy

    Squeezy Senior Member (Voting Rights)

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    It's horrifying.
     
    Squeezy, Jan 29, 2018
    #19
    MEMarge, alktipping, Indigophoton and 3 others like this.
  20. NelliePledge

    NelliePledge Moderator Staff Member

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    Disregard?
     
    NelliePledge, Jan 29, 2018
    #20
    MEMarge, alktipping, Indigophoton and 2 others like this.
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