media

A thread for opportunities to get your story (and ME / Long COVID) featured in the media, that don’t quite deserve their own threads.

I thought I would set up a thread on this

Mod note: This thread was previously specifically for the UK Attitudes and Education Working Group, one of three groups in the government's ME/CFS Delivery Plan. The other groups are the (UKCRC) Research Working Group and the Living With ME working group. There is also a Task and Finish Group...

ABSTRACT Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) is a highly contested illness. This paper analyzes the discursive production of knowledge about, and recognition of ME/CFS. By mobilizing insights from social epistemology and epistemic injustice studies, this paper reveals...

[I didn't know where to put this - please move if needed] Seen on twitter: a “Science Journalism & Disability” Pop-up Panel & Discussion is scheduled for Tues, Nov 15, 5 pm Eastern Standard Time. RSVP. Text of tweet: "I’m excited & honored to announce a “Science Journalism & Disability” Pop-up...

The American reporter Ed Yong, who has recently written a number of well received articles on ME and Long Covid, has written a Twitter thread "about the ethos behind these pieces, and how I’ve approached interviewing, writing, and the rest of it.". I thought the thread itself was full of great...

https://reutersinstitute.politics.ox.ac.uk/sites/default/files/2022-07/RISJ%20Paper_HanneO_Final.pdf?utm_campaign=Future%20of%20Journalism&utm_medium=email&utm_source=Revue%20newsletter This is listed as a 'Journalist Fellowship Paper', and I don't know if it's something likely to be read by...

I'm not sure how exactly our forum members might use this type of guideline, but I came across this recently and found it interesting. Link to PDF file created by MEAction: Journalist Primer: How to Report on ME/CFS

Post copied and some subsequent posts moved from United Kingdom: Action for ME (AfME) news Consultation on Media Guidelines for M.E. "This consultation seeks feedback on suggested media advice for journalists reporting on M.E. and developing a helpful handbook of best practices for...

Moved post Predictable... predicted... happening. Ugh. When people say "1 step forward, 2 steps back" it never really accounts for the possibility of steps in random directions that end up looping on themselves. Did I read wrong or I just saw this morning that NICE has basically downgraded the...

Hi All, Thank-you to those who completed a trial survey regarding images portraying ME in the media. Following yesterday's feedback, we have made significant improvements. The 'final version' of the survey is here: https://www.surveymonkey.com/r/APictureOf_ME I would be very grateful if people...

https://www.express.co.uk/life-style/health/1535717/chronic-fatigue-syndrome-symptoms-feeling-tired-all-the-time If only the NHS website had some decent info on it:banghead:

August 2021 DOI:10.13140/RG.2.2.30505.72806 Conference: 2021 IACFS/ME Virtual Conference Authors Penelope McMillan, Penelope Del Fante, Geoffrey Hallmann, Jade Barclay Abstract Background: ME/CFS is a stigmatised, often misunderstood condition. This situation is compounded by minimal...

https://journals.sagepub.com/doi/full/10.1177/13634593211017187 Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine “It’s not all nice and fun”: Narrating contested illness on YouTube and Instagram Irene Groenevelt First Published May 25, 2021 Research...

Links to posts linking to articles/videos: Jan 2021 article in the Guardian Apr 2021 article in the Guardian Jul 2021 interview video ************************ Not sure if these have been posted in other threads but I think they are significant so I’m posting them in their own thread. For...

by Giada Da Ros https://www.academia.edu/43500038/_THATS_WHY_THEY_DONT_BELIEVE_YOU_YOU_DONT_LOOK_SICK_CREATING_MEDICAL_CREDIBILITY_AND_PATIENT_VISIBILITY_FOR_ME_CFS_THROUGH_TELEVISION eta: the author Giada Da Ros @Giada_Da_Ros TV critic; President of the CFS/ME Italian Association (and...

Sign-up/paywall, https://www.thetimes.co.uk/article/the-times-view-on-taking-myalgic-encephalomyelitis-seriously-chronic-condition-5m0dw5tv7

https://www.leaderlive.co.uk/news/18409857.wrexham-woman-thanks-police-officers-helped-amid-medical-emergency/

Hospital, BBC 1, 19 March 2020 FND not ME On now, this is covering FND

Daily Mail article https://www.dailymail.co.uk/tvshowbiz/article-8116547/Esther-Rantzen-79-reveals-self-isolating-daughter-amid-coronavirus-pandemic.html (so her daughter is still sick despite her 'miraculous recovery' after LP!) eta: she is currently being interviewed by Jeremy Vine on Radio 2