mea

The following posts have been moved from the Reuters thread. Really? That's quite amazing. Doesn't CS get paid by the charity for all the work that he's doing? When the ME association was looking for a media officer, it was quite clear that the position was paid. I would be surprised if other...

The following posts have been moved from the Reuters thread. Anybody else think that our UK charities have been rather lacklustre during the last week? A rare example I understand not wanting to fuel Sharpe's efforts by linking to his article more than necessary BUT of course it did blow up...

Overall, how would you describe the effect that cognitive dysfunction (“brain fog”) has on your ability to function on a day-to-day basis? Constant and severely disabling Constant and moderately disabling Constant and mildly disabling Varies between moderate and severe Varies between mild and...

[I found this of interest, as my ME was triggered by a Hepatitis B vaccination that I was required to have as a student nurse.] https://www.meassociation.org.uk/2019/02/pregnancy-m-e-and-vaccination-concerns-with-dr-charles-shepherd-15-february-2019/ “Dear ME Association, I’m 7 months’...

If you have used private or NHS counselling to help with emotional, mental health or relationship problems linked to ME/CFS did you find it helpful? Yes - very helpful overall Yes - very helpful for some aspects Yes - quite helpful overall Yes - quite helpful for some aspects Neutral - neither...

Morning all. Series two of The ME Show has just gone live. You can listen online at www.meassociation.org.uk/themeshow Or you can subscribe, rate and review in iTunes at https://itunes.apple.com/gb/podcast/the-me-show/id1374903449?mt=2&i=1000428583066 I hope you find the series...

https://www.meassociation.org.uk/2019/01/me-association-website-survey-what-are-the-most-important-things-a-gp-needs-to-know-about-m-e-08-january-2019/ To go straight to the survey, visit https://www.meassociation.org.uk/ and scroll down until you find it, it looks like this

PDF file at https://www.meassociation.org.uk/wp-content/uploads/MEA-M.E.-Research-Summary-Dec-2018.pdf https://www.facebook.com/meassociation/posts/2032671066790541 ETA: Facebook post

Poll can be found on their homepage, https://www.meassociation.org.uk/, middle column, towards the bottom of the page.

" One of the ME Association’s recent research initiatives was to critically examine the theoretical basis and clinical application of the use of Cognitive Behavioural Therapy (CBT) and Graded Exercise Therapy (GET) in ME/CFS. We felt that a closer examination of these therapies was vital...

https://www.meassociation.org.uk/2018/11/me-association-statement-re-nice-me-cfs-guideline-review-and-committee-appointments-09-november-2018/ ME Association Statement re: NICE ME/CFS Guideline Review and Committee Appointments | 09 November 2018 Dr Charles Shepherd, Hon. Medical Adviser, ME...

I'm sure the MEA would claim that they are being a neutral broker of information that PwME might find interesting but personally I'm disappointed that they continue to aid a group that, to my knowledge, still supports PACE and has close ties to BACME.

This quick poll is designed to be a conversation starter. ME Association Website Survey: Why are we asking about the NHS and ME/CFS? Dr Charles Shepherd, Hon. Medical Adviser, ME Association. In this month’s website survey, we want to talk about the NHS and the extent to which people with...

The ME Association has been working for some time with Dr Karl Morten and the research team at Oxford who have recently been honing their approach to the study of metabolomics in ME/CFS. Before embarking on a new study utilising samples from the ME/CFS Biobank for the ME Association, they have...

ME Association: Tribute paid to M.E. advocate Prof. Norman Booth who died last week | 13 August 2018 https://www.meassociation.org.uk/2018/08/tribute-paid-to-m-e-advocate-prof-norman-booth-who-died-last-week-13-august-2018/ It is with great sadness that we write to let you know that Professor...

Saw this shared by the ME Association on Facebook... https://www.mirror.co.uk/news/real-life-stories/sufferer-spent-seven-years-bed-12952123

MPs demand more biomedical research for cruel ‘death sentence’ disease | 22 June 2018 http://www.meassociation.org.uk/2018/06/mps-demand-more-biomedical-research-funding-for-cruel-death-sentence-disease-22-june-2018/ ME Association Press Release, By John Siddle, 21 June 2018. MPs demanded...

http://www.meassociation.org.uk/2018/06/the-me-association-to-fund-six-student-bursaries-for-2018-cmrc-research-conference-19-june-2018/

http://www.meassociation.org.uk/2018/06/lets-talk-social-care-services-for-people-with-m-e-and-those-who-take-care-of-them-15-june-2018/

Government Inquiry into support for children and young people with special educational needs and disabilities (SEND) | 23 May 2018 http://www.meassociation.org.uk/2018/05/government-inquiry-send-23-may-2018/ The Education Committee at the House of Commons is holding an inquiry into the...