mea

well that's a new name! Liverpool Echo article "A young hairdresser who “loved life” said he lost everything after ME robbed him of his ability to do his job and left him housebound. Brendan Boyd developed the condition, characterised by relentless exhaustion, in 2011 after he caught a virus...

ME Awareness Week: ‘Missing behind closed curtains for 12 years’ – Woman describes living with M.E. http://www.meassociation.org.uk/2018/05/me-awareness-week-missing-behind-closed-curtains-for-12-years-woman-describes-living-with-m-e-07-may-2018/ Geraldine Scott, Eastern Daily Press, 6th May...

Exciting news. I’d love you to spread this far and wide. With kind support from the ME Association I’m launching a new podcast series: The ME Show. PLEASE subscribe for free here: https://itunes.apple.com/gb/podcast/the-me-show/id1374903449 Even though there’s only the ‘teaser’ episode there...

ME Association - Forward ME – Meeting with Dr Diane O’Leary about possible WHO coding changes - 21 April 2018 http://www.meassociation.org.uk/2018/04/forward-me-meeting-with-dr-diane-oleary-about-possible-who-coding-changes-21-april-2018/ Forward ME Notes of meeting held on Wednesday 28 March...

ME Association - Advertising Standards Uphold Complaint Against Gupta Programme for ME/CFS and Fibromyalgia ME Association - Advertising Standards Uphold Complaint Against Gupta Programme for ME/CFS and Fibromyalgia – 11 April 2018...

The ME Association has posted a blog today on the GETSET letters published in the Lancet last week: http://www.meassociation.org.uk/2018/03/the-getset-trial-letters-to-the-lancet-and-a-response-from-the-authors-26-march-2018/ Handily, it includes the full text of each of the five letters (at...

Forward ME Letter to The Times: Patients with ME/CFS ‘are not simply “deconditioned” as claimed by many psychiatrists’ | 23 March 2018...

ME Association Press Release: People with M.E. ‘measurably more disabled’ than people with Multiple Sclerosis | 16 March 2018 http://www.meassociation.org.uk/2018/03/me-association-press-release-people-with-m-e-measurably-more-disabled-than-people-with-multiple-sclerosis-16-march-2018/

The programme will feature Cerys who was diagnosed with M.E. and describes how the illness has impacted her life. not listened to it yet: http://www.bbc.co.uk/programmes/b09k0n8y eta: I got this from the MEA twitter; from what I've just heard the girl has not actually been diagnosed with ME...

The ME Association: Advertising Standards Authority ruling on ME Association complaint re Kathy Kent and the Lightning Process When the SMILE trial results were published, the ME Association stated that we would continue to refer cases where Lightning Process practitioners are making unproven...

The MEA is broadcasting this call for help from a journalist: https://twitter.com/MEAssociation/status/927431823424196608 For those not on FB, the MEA on FB said: Are you having problems with income protection policies? Can you help a journalist? If you are having problems with an income...

This was pointed out in a post on another thread but I thought it'd be interesting to have it in it's own thread. To what extent has the very positive publicity surrounding 'Unrest' changed public recognition and understanding of ME/CFS in the UK? Major improvement Partial improvement Slight...

Emma Joy has started a petition for the ME Association to leave the CMRC. https://you.38degrees.org.uk/petitions/me-association-to-leave-the-cmrc

ME Association review of Unrest in Parliament: “I cannot recall a parliamentary meeting where we have had so much genuine interest in ME/CFS” As ME Association members will know, the Rt Hon John Bercow MP – Speaker of the House of Commons – is one of our Patrons and John has helped us in...

"The ME Association is Britain’s first charity dedicated to people with M.E. Our role is to help make the UK a better place for people with the disease by supporting patients and carers, providing education and information, and supporting and funding biomedical research. We are looking for a...