mea

MEA: Real People. Real Illness. ME Awareness Month 2020. ME/CFS affects the lives of over 265,000 people in the UK alone. The ME Association put together this video, with the help of real people with ME, to show the different types of people suffering with ME.

https://www.meassociation.org.uk/2020/03/the-cambridge-lectures-demystifying-me-cfs-04-march-2020/

From the ME Association: Coronavirus infection and ME/CFS by Dr Charles Shepherd https://www.meassociation.org.uk/2020/02/coronavirus-infection-and-me-cfs-11-february-2020/ "The chances of someone with ME/CFS contracting this new strain of coronavirus, or even coming into contact with someone...

https://www.meassociation.org.uk/2020/02/new-mea-guide-me-cfs-the-ten-key-aspects-of-management-05-february-2020/?fbclid=IwAR3R0s1AF3v1ZqGutZFVipo1YGEqHCgsBqnrlSCKiELowPvN5CTP8K34Wz0

I saw that Kingston CCG had tweeted that they would ensure all GP Practices have a copy of the MEA Purple Book, following this recommendation by the Richmond and Kingston ME Group. So I replied asking if they would encourage Wandsworth CCG to do the same. I got a positive Twitter reply from...

https://www.meassociation.org.uk/2020/01/the-me-association-weekly-me-cfs-research-round-up-17-january-2020/

ME Association: “Get Well Soon” – Guest Blog by Louise Shepherd https://www.meassociation.org.uk/2019/11/get-well-soon-guest-blog-by-louise-shepherd-22-november-2019/ I was recently sorting through some of my belongs and came across my “Keepsake box.” As I dug my way through it, I found a...

ME Association: Speak Up for M.E. in the General Election: Contact Your Candidates!| 19 November 2019 https://www.meassociation.org.uk/2019/11/speak-up-for-m-e-in-the-general-election-contact-your-candidates-19-november-2019/ Dr Charles Shepherd, Hon. Medical Adviser, ME Association. This...

https://www.meassociation.org.uk/2019/10/mea-press-release-vital-new-research-could-lay-bare-the-cause-of-one-of-worlds-cruellest-illnesses-23-october-2019/

Someone has just shared with me this quotation from the summer edition of the ME Association magazine: (This quotation may not be precisely accurate, I do not have the magazine myself, just copying the quotation which another PWME sent me, can't guarantee that she copied it completely...

this was a few days ago questions and Dr Shepherds answers here https://community.scope.org.uk/discussion/62274/q-a-about-chronic-fatigue-or-myalgic-encephalomyelitis-me-cfs-with-dr-charles-shepherd

www.meassociation.org.uk/2019/08/mea-website-survey-illness-severity-and-definitions-05-august-2019/

MEA Summary Review: The Role of Mitochondria in ME/CFS | 13 July 2019 https://www.meassociation.org.uk/2019/07/mea-summary-review-the-role-of-mitochondria-in-me-cfs-13-july-2019/ Charlotte Stephens, Research Correspondent, ME Association. Introduction For many years, a leading theory of...

https://www.meassociation.org.uk/2019/06/meeting-with-minister-raised-important-concerns-about-welfare-benefits-for-people-with-me-26-june-2019/ Hopefully DWP will take on board the issues raised

There is a post today on MEA facebook - https://www.facebook.com/pg/meassociation/posts/?ref=page_internal one of the personal quotes accompanied by pics, that they've been running recently - for awareness week i think? There is a photo of the lady on her stair lift with the accompanying text...

Pretty awful article imo. Includes quotes from SC AfME, and the MEA making the psych vs physical point. Also links to MERUK and the CDC. Very muddled mish mash. Not the best kind of 'awareness raising'...

https://www.meassociation.org.uk/2019/05/me-awareness-the-pace-trial-how-a-debate-over-science-empowered-a-whole-community-09-may-2019/

ME Association: Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | 03 April 2019 https://www.meassociation.org.uk/2019/04/forward-me-and-oxford-brookes-university-announce-results-of-patient-survey-on-cbt-and-get-in-me-cfs-03-april-2019/ Lady...

In addition to ME/CFS, do you have a diagnosis of any of the following conditions? Endometriosis Fibromyalgia Hypermobility/Ehlers Danlos syndrome Interstitial Cystitis Irritable Bowel Syndrome Jaw pain - Temperomandibular Jaw Dysfunction Migraine Multiple Chemical Sensitivities Postural...

https://www.meassociation.org.uk/wp-content/uploads/MEA-Research-Review-Assessing-PEM-in-MECFS-25.03.19.pdf 14 page pdf document that covers definitions of PEM, clinical assessment and management including heart rate monitoring, and the latest research.