https://www.meassociation.org.uk/20...are-benefits-for-people-with-me-26-june-2019/
Hopefully DWP will take on board the issues raised
Hopefully DWP will take on board the issues raised
No idea, but I suspect it helped my case that I had been through the local ME service process (even though it was 8 years ago and just a few home visits from an OT who had nothing to offer except stuff I already knew). That presumably meant they could tick that box. It could, I guess, also mean showing you have been in contact with your GP. My daughter had one of her benefits refused some years ago on the grounds that she hadn't seen any doctor for over a year.I’m confused - what would the appropriate approaches to management be?
Case law states that if someone cannot carry out a descriptor task for a significant period (i.e. more than an hour) within a day they should be considered as being unable to do that descriptor task for the entire day.
“Re-assessments, which form part of the on-going review process, should be reduced in frequency where a person can supply medical evidence to show that their condition has stabilised for a period of years and that all appropriate approaches to management have been tried. Information on 5-year prognosis in ME/CFS from the CMO report was referred to here.”
I’m confused - what would the appropriate approaches to management be?
I think that’s likely to be interpreted in practice as having gone through an NHS CFS clinic. ETA see @Trish already made that point. The powers that be can’t argue that there is anything that could “help” if you’ve already gone to the clinic and it hasn’t helped. It’s rather Russian roulette approach though because if you go to the CFS clinic not knowing that you need to be wary of their approach you are at risk of harm.
I sort of managed to get away with going to the CFS clinic although in retrospect I did end up increasing activity while I was doing the programme at least I knew enough not to try going for daily walks or anything like that. And at least it is on record that I’ve done that so I can’t have not doing it held against me.Damned if you do and damned if you don’t - good old Catch 22.
”Case law states that if someone cannot carry out a descriptor task for a significant period (i.e. more than an hour) within a day they should be considered as being unable to do that descriptor task for the entire day.”
This is a good point I’m not sure M.E. Association have fully taken on board the extent of the move away from CFS clinics and people being referred to generic community pain services instead.How does it work if there are no clinics, nor specialists?
We have never had any ( of either)This is a good point I’m not sure M.E. Association have fully taken on board the extent of the move away from CFS clinics and people being referred to generic community pain services instead.