MEA: Real People. Real Illness. ME Awareness Month 2020.

MEA: Real People. Real Illness. ME Awareness Month 2020.

https://www.youtube.com/watch?v=LMJzbEFiwiQ

ME/CFS affects the lives of over 265,000 people in the UK alone. The ME Association put together this video, with the help of real people with ME, to show the different types of people suffering with ME.

 

Video is now private

 

I found this video from the ME Association with the same title - is it the video you're looking for?

(I watched only the first 30 second or so)

https://www.youtube.com/watch?v=a1q4cH0V5YE

EDIT: I just watched a bit more of that video and noticed that the audio is very much out of synch with the video. Oops!

So one guess is that they are trying to edit the video to fix this and that's why the first one went private. Just a guess! I have no inside info or anything.

 

Correction: the link above is to their 2019 ME awareness week article and press release

I think this is mixing up medical care with research funds.

 

I realize that not everyone can do this, but I was able to record the audio and then play it back in sync to the video (with the video's audio disabled), more or less by trial and error.

The audio does not gradually fall out of sync (which can happen on youtube under some circumstances), so once you get it in sync it will remain that way.

 

I couldn't find a page for ME Awareness Month on the MEA website. @Russell Fleming

 

Hi

Sorry for delay in replying. Busy, busy busy...

Link to all the ME Awareness blogs for May: https://www.meassociation.org.uk/2020/05/

Link to the media toolkit: https://www.meassociation.org.uk/get-involved/me-awareness-week/media-toolkit/

Apologies too for the website. We were about to launch a new one but then Covid hit and now we're into ME Awareness, so postponed it until next month when hopefully - hopefully - it will look better and be easier to navigate.

Russell