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MEA: Real People. Real Illness. ME Awareness Month 2020.

Discussion in 'Advocacy Projects and Campaigns' started by Eagles, May 6, 2020.

  1. Eagles

    Eagles Senior Member (Voting Rights)

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    MEA: Real People. Real Illness. ME Awareness Month 2020.



    ME/CFS affects the lives of over 265,000 people in the UK alone. The ME Association put together this video, with the help of real people with ME, to show the different types of people suffering with ME.
     
    sebaaa, Forbin, Wonko and 3 others like this.
  2. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Video is now private
     
    Invisible Woman, Amw66 and Wonko like this.
  3. ahimsa

    ahimsa Senior Member (Voting Rights)

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    Oregon, USA
    I found this video from the ME Association with the same title - is it the video you're looking for?

    (I watched only the first 30 second or so)



    EDIT: I just watched a bit more of that video and noticed that the audio is very much out of synch with the video. Oops!

    So one guess is that they are trying to edit the video to fix this and that's why the first one went private. Just a guess! I have no inside info or anything.
     
    Last edited: May 9, 2020
    Forbin, Dolphin and Invisible Woman like this.
  4. Trish

    Trish Moderator Staff Member

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  5. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Correction: the link above is to their 2019 ME awareness week article and press release

    I think this is mixing up medical care with research funds.
     
    Invisible Woman and Trish like this.
  6. Forbin

    Forbin Senior Member (Voting Rights)

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    I realize that not everyone can do this, but I was able to record the audio and then play it back in sync to the video (with the video's audio disabled), more or less by trial and error.

    The audio does not gradually fall out of sync (which can happen on youtube under some circumstances), so once you get it in sync it will remain that way.
     
    Invisible Woman and Dolphin like this.
  7. Trish

    Trish Moderator Staff Member

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    Oops. My mistake. I find the MEA website impossible to navigate. I searched for something about this year's action, if any, and couldn't find any. @Russell Fleming, can you clarify?
     
  8. daftasabrush

    daftasabrush Senior Member (Voting Rights)

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    I couldn't find a page for ME Awareness Month on the MEA website. @Russell Fleming
     
  9. Russell Fleming

    Russell Fleming Senior Member (Voting Rights)

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