guidelines

I used to think - wrongly - that HealthPathways was a NZ thing. Turns out there's a long list of Australian health districts participating, plus three British ones. https://www.healthpathwayscommunity.org/About.aspx So that's one set of guidelines. We all know about the NICE guidelines. And...

I thought it might be useful to get an overview of medical guidelines on ME/CFS that have been influenced by the Cochrane review on graded exercise therapy (GET). I’m mostly interested in official government positions or influential medical authorities that have referred to the Cochrane review...

Moderator note: We've merged a number of threads to collect Naomi's blog posts into one thread. An article originally printed December 2016 but now updated with an audio version as well...

I've started this thread for discussions regarding the methodological issues and efficacy of the IAPT treatment model. In particular the move to treat 'CFS/ME' as a MUS that can be referred for IAPT CBT/GET treatment is now highly relevant to the ME/CFS NICE guideline.

omf sent this out: vvv NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS A resource for clinicians and patients. The U.S. ME/CFS Clinician Coalition, a group of U.S. ME/CFS experts, has authored a handout on the basics of diagnosis and management of ME/CFS. This handout is being made...

Just received the following email Dear registered stakeholder, RE: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome We need more information to help us develop this NICE guideline. We invite registered stakeholders, and other individuals and...

Moderator note: Copied from thread here https://www.s4me.info/threads/uk-stop-graded-exercise-therapy-for-me-cfs.1301/#post-195995 https://www.meaction.net/2019/08/27/nice-drag-their-feet-on-stopping-the-harm-caused-by-get-and-cbt/

Access the papers Using qualitative evidence synthesis to inform guideline scope and develop qualitative findings statements (led by Soo Downe) Using qualitative evidence synthesis findings to inform evidence-to-decision frameworks and recommendations (led by Simon Lewin) Using qualitative...

https://www.theguardian.com/society/2019/aug/08/watchdog-declines-to-back-nhs-cannabis-treatment-for-epilepsy There seem to be some worrying parallels with Nice’s review of guidelines for ME. If only clinical trials are considered as evidence, where do we stand? Also if the guidelines committee...

Warnings that the Australian CFS guidelines were 'biased, out-of-touch and potentially harmful' were ignored. Thousands are receiving harmful medical treatment and denied disability support due to failure to update them back in 2012. Back in the 90s, the government saw a need for guidelines...

The committee member list PDF was recently updated (9th May). There are numerous additions from the last copy that I have. GP - Chris Burton Dietician - Jenifer McIntosh Nurse - Caroline Kingdon Physician - Gabrielle Murphy Physician - William Weir Community Paediatrician - Alan Stanton...

Suspected neurological conditions: recognition and referral NICE guideline [NG127] Published date: May 2019 https://www.nice.org.uk/guidance/ng127# Full Guideline PDF: https://www.nice.org.uk/guidance/ng127/evidence/full-guideline-pdf-6775582573 Appendices A–R May 2019...

The recently revised Auckland clinical guidance document is not officially available to the public (just medical professionals) but has been circulated by some advocates; this is how I first obtained a copy of the document. Some of the issues are: Name: Chronic Fatigue Syndrome - does not give...

The minutes for the first Guideline Committee meeting have been published: [PDF]: https://www.nice.org.uk/guidance/gid-ng10091/documents/minutes Link to documents page: https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents

The Register of Interests for the NICE Guideline Committee has been published. [PDF] https://www.nice.org.uk/guidance/gid-ng10091/documents/register-of-interests Link to documents page: https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents

https://www.rcplondon.ac.uk/ngc-guideline-development

Been asked to share this Spanish petition on social media but wondered if any of our Spanish speaking members could offer an opinion on the petitions demands i.e. are they the sort of demands that this forum would be likely to support...

ME Association: Forward ME and Oxford Brookes University Announce Results of Patient Survey on CBT and GET in ME/CFS | 03 April 2019 https://www.meassociation.org.uk/2019/04/forward-me-and-oxford-brookes-university-announce-results-of-patient-survey-on-cbt-and-get-in-me-cfs-03-april-2019/ Lady...

Extract (paragraph breaks added): Increasingly, however, EBM researchers have reached the conclusion that one implementation model does not fit all and that, instead, a series of overlapping implementation strategies best target specific groups. 34 Consequently, a multi-faceted approach to...

Some revelations about shenanigans at NICE - the IAPT team is in charge of the NICE guidelines for ME/CFS - as flagged up by Hope 4 Fibro & ME Northern Ireland - back in 2017!!! According to the IAPT webpage it's still listing the "CFS/ME" guideline as under their control - that's the...