guidelines

My Local Clinic still haven't updated their website.

Dr Harsha Master, Dr Ashish Chaudhry, Dr Nicholas Gall, Dr Louise Newson, Dr Sarah Glynne, and Dr Paul Glynne present their experiences of diagnosing, managing, and referring patients with long COVID and associated conditions...

Full title: Recommendation for standardized medical care for children and adolescents with long COVID [German]. Statement of a multidisciplinary pediatric expert group of the DGKJ convent societies (status: February 2022) From: Dr. Marc-Alexander Fluks Source: Monatsschrift Kinderheilkunde...

https://www.bbc.co.uk/news/health-61255733 Seems that overnight the draft updated NICE guideline for osteoarthritis was published: https://www.nice.org.uk/guidance/indevelopment/gid-ng10127 I'm getting terrible flashbacks of this time last year.

Abstract Background Two sequelae of pediatric COVID-19 have been identified, the multisystem inflammatory syndrome in children (MIS-C) and the long COVID. Long COVID is much less precisely defined and includes all the persistent or new clinical manifestations evidenced in subjects previously...

It’s known that US, UK, Belgium, Nederland and Finland have issued new guidelines downgrading CBT and rejecting GET. Searching the internet, there are some things also written about Australia, but as far as understood this work has not been concluded? So, asking the community; are there any...

This might be a good link to share, as it has an accurate summary of the new NICE guidelines, and is listed under Neurology. Apparently for use by UK healthcare professionals. Myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome: diagnosis and management By NICE23 December...

"Millions of people with mild depression in England should be offered therapy, exercise, mindfulness or meditation before antidepressants, according to the first new NHS guidelines in more than a decade. Under draft guidance, the National Institute for Health and Care Excellence (Nice)...

Copied from this thread and following posts moved I'm not sure of the formal evidence, but it does seem to be recognised by the NHS that CBT needs to be adapted for autistic people. However, antidotally I know a number of autistic peers who have been left traumatised by it.

I thought it might be useful for us to get to grips with this issue. The GET defenders have said that NICE chose the trial endpoints it looked at incorrectly. As I understand it, NICE chose the longest followup points where possible, and in the case of PACE, that was 135 weeks. The GET...

Stakeholder submissions and NICE responses This thread is for discussion of the published tables of stakeholders submissions to the NICE ME/CFS guideline draft, which also include responses from NICE. The submissions were made by stakeholders in December 2020. These tables with both the...

Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can cause a wide range of severity and functional impairment, leaving some patients able to work while others are homebound or bedbound. The most severely ill patients may need total care. Yet, patients with severe or very...

Hopin Lee, PhD1,2; Aidan G. Cashin, PhD3,4; Sarah E. Lamb, DPhil1,5; Sally Hopewell, DPhil1; Stijn Vansteelandt, PhD6,7; Tyler J. VanderWeele, PhD8; David P. MacKinnon, PhD9; Gemma Mansell, PhD10; Gary S. Collins, PhD1,11; Robert M. Golub, MD12,13; James H. McAuley, PhD4,14; and the AGReMA...

rest of article here https://www.wired-gov.net/wg/news.nsf/articles/nice+and+cochrane+sign+collaborative+agreement+to+deliver+living+guideline+recommendations+01092021120500?open

https://www.theguardian.com/society/2021/aug/30/withdrawal-planned-guidance-me-leaves-patients-distraught Natalie Grover seems to be getting nearer to understanding the problem, even if still a little way away. Some reasonable quotes from me. Some from Sharpe and Chalder as well.

"Introduction Please complete this short survey to help us improve how we write and present our guidance. Your feedback is key to help us ensure our guidance is useful, useable and used. We think it will take you around 15 minutes to complete."...

"We call on the National Institute for Health and Care Excellence (NICE) to publish the finalised ME/CFS guideline in its current form. People with ME are depending on the finalised guideline to transform the care they receive: ensuring accurate diagnosis, appropriate symptom management, and...

https://thesciencebit.net/2021/08/15/the-new-nice-guideline-for-me-cfs-ten-questions-answered/ This has been posted already, but I thought deserves its own thread. All points I think still essentially apply during the new guideline is paused.

Full Title: Multi-Disciplinary Collaborative Consensus Guidance Statement on the Assessment and Treatment of Fatigue in Post-Acute Sequelae of SARS-CoV-2 infection (PASC) Patients Authors American Academy of Physical Medicine and Rehabilitation Multi- Disciplinary PASC Collaborative 1...

The summary of the IOM report reads (p. 10, bolding mine): It is encouraging to note that progress already is being made in understanding the etiology, natural history, pathophysiology, and effective treatment of ME/CFS using a variety of physiological and molecular methods. Several large...