guidelines

I'm not sure where to post this but want to highlight for those giving input/feedback on NICE guidelines a discussion in a BMJ Live LongCovid rehabilitation event that relates to the characterization of CFS and the NICE guidelines. The presenter was Professor Lynne Turner-Stokes of Kings College...

Pubmed link only, https://pubmed.ncbi.nlm.nih.gov/32073803/

Moved from this thread: Possibility of ME or PVFS after COVID-19, Long Covid _________________ https://www.nice.org.uk/news/article/nice-sign-announce-latest-rapid-covid-19-guideline-will-address-long-covid NICE & SIGN announce latest rapid Covid-19 guideline will address Long Covid NICE and...

Not sure which forum this should go in. How to cite: Nacul, L.; Authier, J.; Scheibenbogen, C.; Lorusso, L.; Helland, I.; Alegre Martin, J.; Sirbu, C.A.; Mengshoel, A.M.; Polo, O.; Behrends, U.; Nielsen, H.; Grabowski, P.; Sekulic, S.; Sepulveda., N.; Esteves Lopez, F.; Zalewsk, P.; Pheby, D...

https://www.ruh.nhs.uk/patients/services/clinical_depts/paediatric_cfs_me/documents/Resources_for_Clinicians_and_Healthcare_Professionals/CBT_for_CFS_Therapist_Manual.pdf link found here...

not peer reviewed https://www.preprints.org/manuscript/202007.0754/v1 (full free pdf download available at link)

http://www.pulsetoday.co.uk/news/gps-should-not-prescribe-opioids-for-chronic-pain-says-nice/20041262.article I've not been impressed by the evidence that painkillers improve outcomes over the long-term for chronic pain, but I also think it's important that it's patients themselves who get to...

RC Psych (Royal College of Psychiatrists) Chronic fatigue syndrome: helping your child to get better (note: Disclaimer This is information, not advice. Please read our disclaimer.)...

So much I want to write yet can't now. Living in a dangerous situation, guidelines for COVID that exist are making it worst and there are guidelines regarding Single Room Occupancy (SRO) buildings and various other kinds of shared housing that need to exist. I finally found something, it's the...

So frustrated! Can't go into more now though want to. Years of CDC's ME/CFS site frustrations and now COVID guideline frustrations. So dangerous and affecting lives. Who makes and writes the CDC guidelines and who updates them?

http://cepuk.org/2020/02/08/guest-blog-nice-depression-guideline-cautious-optimism/?fbclid=IwAR1c2BN81TyQ79EjH8IYSjTeztHESk1i7rP3-GmiJJDLLH3HDrNlaxR8M2c

"Join the Medically Unexplained Symptoms Reference Group Date published: Feb 6, 2020, 18:45 PM Summary Contribute to producing a set of guiding principles on the clinical management of Medically Unexplained Symptoms (MUS). Description The following positions are available: 1x AFOEM Group...

#MEAction UK has a new project called "Take ME Seriously" Update: Anyone can join in this advocacy action. It is not just for UK residents. They are collecting comments and signatures regarding the NICE (National Institute for Health and Care Excellence) ME/CFS treatment guidelines in the UK...

https://www.meassociation.org.uk/2020/02/new-mea-guide-me-cfs-the-ten-key-aspects-of-management-05-february-2020/?fbclid=IwAR3R0s1AF3v1ZqGutZFVipo1YGEqHCgsBqnrlSCKiELowPvN5CTP8K34Wz0

I saw that Kingston CCG had tweeted that they would ensure all GP Practices have a copy of the MEA Purple Book, following this recommendation by the Richmond and Kingston ME Group. So I replied asking if they would encourage Wandsworth CCG to do the same. I got a positive Twitter reply from...

https://www.bmj.com/content/368/bmj.m105?utm_source=twitter&utm_medium=social&utm_term=hootsuite&utm_content=sme&utm_campaign=usage (paywalled, no sci-hub link as yet) see also: Retraction of WHO guidance on opioid use https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6933427/

full paper here https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0225995

https://www.nice.org.uk/guidance/indevelopment/gid-ng10091

From Clinicalguidelines.gov.au: Myalgic Encephalomyelitis - Adult & Paediatric: International Consensus Primer for Medical Practitioners 2012 Why are you developing this guideline?: The International guidelines are being reviewed to modify the content to suit the Australian medical context...

Survey, https://apps.mhs.manchester.ac.uk/surveys/TakeSurvey.aspx?PageNumber=1&SurveyID=m4KKln9MH&Preview=true Participant Information Sheet, https://www.research.manchester.ac.uk/portal/files/145778415/Our_PIS_GDPR_UoM_oct_1_verion.pdf