guidelines

Just spotted this on ME Research UK's Facebook page. [The current committee member list can be found on this page, https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/documents. Previously I linked directly to it but NICE keep changing the file name, this way, hopefully, the latest...

Just received notice that NICE have published their final scope for their review of the diagnosis and management guidelines. Final scope can be viewed here, https://www.nice.org.uk/guidance/gid-ng10091/documents/final-scope Stakeholder comments and responses from NICE can be viewed here...

Quick and dirty (google) translation from: http://mecvs.nl/nieuws/richtlijn-cvs-uit-2013-geschrapt/ Following the recent Dutch Health Council opinion on ME / CFS: The "Nederlandse Huisartsengenootschap (NHG)" (The Dutch College of General Practitioners ) has removed the 2013 multidisciplinary...

https://valerieeliotsmith.com/2018/09/28/karina-hansen-news-a-battle-with-nice-the-uks-national-institute-for-health-and-care-excellence/#comments Valerie describes how her organisation “ Law and Health” was first accepted then turned down as a stakeholder in the Nice review process. EDIT...

I saw this on the Medscape website today. I think it's just a summary of recent changes posted on CDC website but I'm not sure. Full article (may require Medscape registration/login) - https://reference.medscape.com/viewarticle/900291_5

Not sure if this has been posted anywhere. The link was included in one of the comments on David Tullers latest blog about Mayo. " The Guideline Process The National Institute for Health and Care Excellence Surveillance report 2017 - Chronic fatigue syndrome/myalgic encephalomyelitis (or...

'They' seem to be taking Lyme more seriously (?) https://www.gov.uk/guidance/lyme-disease-differential-diagnosis

Moderator note: This thread is for submissions made and submitted by various stakeholders on the draft scope for the NICE ME/CFS Guidelines Review. Discussions on the draft scope can be found in these threads: Discussion of first section of draft scope (members only) Discussion of second...

Looks like this is supportive of Wessely's attempts to get change, as written about by @Hole Ousia: https://www.s4me.info/threads/simon-wessely-didnt-want-his-e-mail-on-a-blog-here-it-is-on-hole-ousia.5001/ Also seems relevant to claims that NICE should operate entirely independently of...

CDC Page for ME/CFS Take a look around each page. How does it look to everyone?

" 06 July 2018 Two leading paediatricians in India have urged the World Health Organization (WHO) to urgently revise its manual on classification of Adverse Events Following Immunization (AEFI), warning that the new guidelines put children’s life at risk. This needs to be done “urgently in the...

The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...

The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...

The consultation for the draft scope closes 26 July 2018 at 5pm. Therefore, we need members to look at each section of the draft scope and provide feedback, in order to inform any comment that S4ME may make on the draft. So please read the below and comment away! (Full document can be found...

https://www.nice.org.uk/get-involved/our-committees/join-a-committee/lay-member--me-and-cfs

Email from NICE. NICE consultation page is here, https://www.nice.org.uk/guidance/indevelopment/gid-ng10091/consultation/html-content-3 and direct link to the draft scope is https://www.nice.org.uk/guidance/GID-NG10091/documents/draft-scope-2 NICE committee recruitment page is here...

https://spoonseeker.com/2018/06/20/a-morass-of-mus/

Communication just received from NICE

https://www.meaction.net/2018/05/22/who-is-advising-the-australian-government-on-me-and-cfs-research-and-treatment-guidelines/

Old, 2nd Oct 2017, article. https://www.npr.org/sections/health-shots/2017/10/02/554369327/for-people-with-chronic-fatigue-syndrome-more-exercise-isnt-better Linked to from a recently found Reader's Digest article on 'Fitness Myths' -...