funding

SequenceME: first of a kind genetic study December 16, 2024 A groundbreaking partnership has launched today. The partners are working together to secure funding for a study which will analyse the entire genetic code of up to 17,000 people with Myalgic Encephalomyelitis (ME) in a bid to uncover...

The Scottish Health Department has posted an interim statement advising caution over the suitability of Graded Exercise Therapy (GET) in treating ME/CFS and has reiterated the earlier statement from NICE cautioning against use of GET in Post/Long-Covid. Following a review of the evidence behind...

There have been numerous discussions recently regarding research funding, with particular emphasis on the MRC. We know almost nothing in this space is being funded, but the exact reasons why are unknown. One major unknown is the number ME/CFS research proposals submitted to MRC each year (and...

Determining the societal value of a prospective drug for ME/CFS in Germany Afschin Gandjour BACKGROUND Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) imposes a substantial societal and economic burden. The aim of this study is to ascertain the optimal level of public research and...

Guideline for the funding of interdisciplinary collaborations for research into the pathomechanisms of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Federal Gazette of 01.09.2023 https://www.bmbf.de/bmbf/shareddocs/bekanntmachungen/de/2023/09/2023-09-01-Bekanntmachung-ME-CFS.html...

Developing, optimising and implementing a blended digital self-management tReatmEnt for FatigUe in multiplE scLerosis (REFUEL-MS) https://fundingawards.nihr.ac.uk/award/NIHR203290 https://www.refuel-ms.com/ Chief Investigator(s): Professor Rona Moss-Morris Co-investigators Start Date...

A thread to collate studies and reports on the historical (or current) level of ME/CFS research funding in the UK. I'm primarily interested in public funding, but reports and studies on charity funding can also be included here. I'll start with the UberResearch/Action for ME report from 2016.

"Our foundation supports nationally and internationally recognized research projects, non-profit organizations to support those affected and charity projects to combat diseases such as myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) and related diseases. "We can build on a network...

full article https://www.nature.com/articles/d41586-023-01472-5

Updated 2nd May 2023. "Apply for funding to research myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS). You can get the funding through any: grants from MRC research boards MRC fellowships We would particularly welcome proposals within MRC remit that address 1 or...

https://www.statnews.com/2023/04/20/long-covid-nih-billion/

Hi, I’m trying to find relevant information for a friend who is writing a book and would like to provide a list of research that has been stopped due to lack of funding. Does such a list exist? I need references as it’s an academic book. thanks, Richard

The MEA shared this UK Parliamentary petition on their Facebook page recently, it may have been shared elsewhere, so sorry if this is a duplicate Urgent funding for research into Long Covid and ME/CFS treatments and cures “Around a quarter of a million people are suffering with ME/CFS in the...

Press release: EU supports research on poorly understood diseases Thanks to the dedicated work of Belgian Member of the European Parliament (MEP) Pascal Arimont and colleagues, Horizon Europe will provide new funding opportunities for research on high-burden, under-researched diseases. While...

paywalled (?) Demonstrators in London’s Parliament Square last week called for hundreds of millions of pounds missing from research into myalgic encephalomyelitis to be restored to the condition. The campaigners, including Alex Chalk and many other MPs, illustrated ME’s connections to other …...

My birthday is coming up and I'm wondering what you lot think the best charity would be to ask my loved ones to donate to - the ME association? Preferably one that funds biomed research.

https://www.pmlive.com/pharma_news/uk_government_announces_800m_boost_to_support_innovation_and_improve_patient_safety_1456936 eta: see also https://www.nihr.ac.uk/news/new-multimillion-investment-to-help-turn-research-discoveries-into-treatments-for-patients/31653 (includes list of NIHR...

2022 https://www.pnsociety.com/i4a/pages/index.cfm?pageid=3313 AFM & GBS GRANTS The NIAID, NINDS, and NICHD have jointly issued a Notice of Special Interest encouraging new applications and request for supplements to existing grants (competitive revisions or administrative supplements) to...

ABSTRACT In this article, we update our earlier analyses of myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS) economic impact and its National Institutes of Health (NIH) funding versus disease burden, taking into account the anticipated new cases of ME/CFS resulting from COVID-19...