endometriosis

"Endometriosis is excruciating. But the medical scale for pain is tragically flawed, leaving women in particular to suffer On a scale of zero to 10, with zero being no pain at all and 10 being the worst pain imaginable, how is your pain? Because pain is impossible to diagnose objectively...

Post copied from this thread: EDS, hypermobility, and the link, if any, to ME/CFS I didn't know where to post this, but the ME Association had an online survey about common health conditions in pwME. The current result: Which of the following conditions, which are more common, or appear to be...

(Paywalled) https://www.thetimes.co.uk/article/endometriosis-i-was-in-pain-for-years-why-did-no-one-help-gt0wtltcq

Abstract Background: Endometriosis is an estrogen-dependent and chronic inflammatory gynecological disease due to the presence of ectopic endometrial tissue outside the uterine cavity. This disease affects approximately 10% of the female population. In spite of its relatively high prevalence...

Abstract Some illnesses and diseases are not apparent to onlookers. Conditions like chronic fatigue syndrome, fibromyalgia, multiple sclerosis, postconcussive syndrome, endometriosis, and many psychiatric illnesses, for example, have symptoms that are not easily or at all measurable. Both...

https://www.medicalnewstoday.com/articles/321453#overview

" Taking the dog for a walk is a routine task for most people. But Jessica Rafferty would often have to cut outings short due to crippling pain. She, like one in 10 women, lives with endometriosis - a condition where tissue similar to the lining of the womb grows elsewhere inside the body. It...

Bolding mine. Paywall, https://onlinelibrary.wiley.com/doi/10.1111/aji.13404

Pubmed link for abstract in English, https://pubmed.ncbi.nlm.nih.gov/33576864/ Paywalled journal link for paper in German, https://link.springer.com/article/10.1007/s00482-021-00535-8

https://pubmed.ncbi.nlm.nih.gov/32012984/

https://www.theguardian.com/society/2020/aug/05/disgusting-study-rating-attractiveness-of-women-with-endometriosis-retracted-by-medical-journal?utm_term=Autofeed&CMP=twt_gu&utm_medium&utm_source=Twitter#Echobox=1596614249 Leonid Schneider's take on this Undress, the doctors will see you now...

full article here https://www.sbs.com.au/news/insight/i-m-18-years-old-and-living-with-three-chronic-conditions-you-can-t-see_1

This was on last night. https://www.bbc.co.uk/programmes/m000fjrg The bit on Endemetriosis was towards the end of the programme. I hadn't really heard the BBC use 'medically unexplained symptoms' on any of their tv progs before. Of course they didn't go into how these 'MUS' are now being...

full article here: https://themighty.com/2020/01/rose-study-endometriosis-diagnostic-test/

https://www.bbc.co.uk/news/health-49897873 these quotes are the bit relevant to our advocacy efforts (I think we should be aiming for some parliamentary intervention either an inquiry or a strategy set up ) but there’s lots of information regarding symptoms, disability and pain and treatment of...

Only the abstract is available for time being. Endometriosis as a Comorbid Condition in Chronic Fatigue Syndrome (CFS): Secondary Analysis of Data from a CFS Case-Control Study Conclusions. We found that more than a third of women with CFS reported endometriosis as a comorbid condition. The...

In addition to ME/CFS, do you have a diagnosis of any of the following conditions? Endometriosis Fibromyalgia Hypermobility/Ehlers Danlos syndrome Interstitial Cystitis Irritable Bowel Syndrome Jaw pain - Temperomandibular Jaw Dysfunction Migraine Multiple Chemical Sensitivities Postural...

(List reported taken from the Mirror) full list here: note (ME not on list but FM is) https://www.cambridge-news.co.uk/news/uk-world-news/cambridge-migraine-endometriosis-arthritis-nhs-15339123

https://www.independent.co.uk/news/health/endometriosis-chronic-fatigue-me-symptoms-menstrual-cycle-cramps-pain-insomnia-depression-a8418021.html

Thought this might be of interest to some people : Title : Early menopause and other gynecologic risk indicators for chronic fatigue syndrome in women Link to whole paper : https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5745581/ Abstract Objective This study aims to examine whether gynecologic...