MPs are launching an inquiry into Endometriosis affecting 1& a 1/2m in the UK, to get better care for the condition

https://www.bbc.co.uk/news/health-49897873

these quotes are the bit relevant to our advocacy efforts (I think we should be aiming for some parliamentary intervention either an inquiry or a strategy set up ) but there’s lots of information regarding symptoms, disability and pain and treatment of the condition if people are interested

 

Be careful what you wish for...

2005-2006:

http://www.erythos.com/gibsonenquiry/

http://www.erythos.com/gibsonenquiry/Report.html

Inquiry into the status of status of CFS / M.E. and research into causes and treatment treatment November 2006

Group on Scientific Research into Myalgic into Myalgic Myalgic Encephalomyelitis (M.E.)

http://www.erythos.com/gibsonenquiry/Docs/ME_Inquiry_Report.pdf

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Commentary on the "Gibson Report":

https://twentysixsoldiersoflead.wor...ughts-on-the-gibson-report-by-angela-kennedy/

More thoughts on the Gibson Report from Angela Kennedy – revisited

August 28, 2009

 

I think that we Can hope for better from future attempts, even if the first had flaws and failures and perhaps didn’t get used as it could have been.
If not we are just waiting on small levels of research and a modification of NICE to change things in Uk

i was impressed by the snp cancer dr at the HoC debate, if we could re-form an APPG and have a Scottish cancer surgeon represent the case for ME to get a fairer deal I think that would be great and we are in a different place to 2005, more Is known, psychologists being key players , the experts I just don’t think is acceptable anymore, we have an advocacy wing in existence and are post IOM report etc.