Article BBC: Endometriosis: How new treatment 'changed my life' 2021

"
Taking the dog for a walk is a routine task for most people. But Jessica Rafferty would often have to cut outings short due to crippling pain.

She, like one in 10 women, lives with endometriosis - a condition where tissue similar to the lining of the womb grows elsewhere inside the body. It can be incredibly painful, and can take years to diagnose.

And there is no known cure.

But Jessica is part of the search for effective treatments. She is among 30 women taking part in the University of Edinburgh study looking at dichloroacetate, a drug currently used to treat rare metabolic conditions in children.

It helps to control lactate levels, which have been found to be higher in patients with some cancers and endometriosis."

https://www.bbc.co.uk/news/health-56245521

 

I don't know if this is coincidence, but this thread from this morning is a personal experience of using sodium dichloroacetate for ME. https://s4me.info/threads/my-treatment-with-sodium-dichloroacetate.19505/

 

New drug could be world-first to treat ‘insurmountable pain’ of endometriosis

New drug could be world-first to treat ‘insurmountable pain’ of endometriosis (msn.com)

 

I hope they have done the trial properly.

 

Doesn't look like it would fit the Plan priorities: https://www.gov.scot/publications/womens-health-plan/pages/8/

• ensure women who need it have access to specialist menopause services for advice and support on the diagnosis and management of menopause;
• improve access for women to appropriate support, speedy diagnosis and best treatment for endometriosis;
• improve access to information for girls and women on menstrual health and management options;
• improve access to abortion and contraception services;
• ensure rapid and easily accessible postnatal contraception; and
• reduce inequalities in health outcomes for women's general health, including work on cardiac disease.

The charity partner is interesting: Wellbeing Of Women

"Wellbeing of Women is the charity dedicated to improving the health of women and babies to make a difference to everybody's lives today and tomorrow. * We provide information to raise awareness of health issues to keep women and babies well today. * We fund medical research and training grants, which have and will continue to develop better treatments and outcomes for tomorrow." Though their grant making history is heavily obstetrics focused.

 

Wellbeing of Women say "From period problems and starting a family, to menopause and gynaecological cancers, we are here for women’s gynaecological and reproductive health." on their website, https://www.wellbeingofwomen.org.uk/about-us/, so presumably ME/CFS wouldn't necessarily fit with that.