The Norwegian ME Association is organising a CFS/ME conference for researchers together with The Norwegian Institute of Public Health and the National Competence Service for CFS/ME. This will take place 26th - 27th Nov.
As part of this conference, they invite the public to an open seminar about...
My latest letter to Archives of Disease in Childhood
I sent the following e-mail today to Dr Nick Brown, the editor-in-chief of Archives of Disease in Childhood, the journal that published the Lightning Process study a year ago. I cc’d Dr Fiona Godlee, editorial director of BMJ, which publishes...
Sheffield ME & Fibromyalgia Group
We are excited to be hosting Dr. David Tuller, DrPH, discussing scientific integrity and clinical trials in myalgic encephalomyelitis.
Join us at The Leopold Hotel, 23rd October, 7pm, for what should be a fascinating evening.
RSVP on the event page.
Dr Tuller...
Trial By Error: The CFS/ME Research Collaborative Conference
So I attended the CFS/ME Research Collaborative conference two weeks ago in Bristol. The two-day event was a refreshingly PACE-free zone–as far as I could tell, I was the only person who mentioned that piece of crap in public...
Expert Q&A: When Medical Symptoms Are Dismissed as "All in Your Head"
The book reviews how ME/CFS (myalgic encephalopathy/chronic fatigue syndrome), fibromyalgia, many autoimmune diseases like multiple sclerosis, and other chronic illnesses are all part of the group you refer to as “the...
Trial By Error: The Open Letter to Netflix about Afflicted
Blog post contains a short intro and the letter itself. David Tuller has added his name to the list of signatories.
Concept: Anil van der Zee
Questions by: Roland Cheung, Celine Corsius, Lou Corsius, Mark Vink and Anil van der Zee Interviewer: Rogier Louwen
Video, audio and editing: Willem Timmers
Event:
Tuesday / 02 October 2018 7:00pm - Tuesday / 02 October 2018 9:00pm
Mourne Country Hotel
52 Belfast Road
Newry
BT34 1TR
https://www.communityni.org/event/pace-trial-one-greatest-scandals-21st-century
Edit: Video now on Facebook
So what's happening with the MAGENTA trial?
I’ll be in Bristol later this week for the CFS/ME Research Collaborative’s annual conference. I was not welcome last year, since I was at that point engaged in harshly criticizing the organization for its unwillingness to acknowledge that its deputy...
The Cochrane Controversy
Cochrane–formerly called the Cochrane Collaboration–is respected worldwide for its systematic reviews of medical treatments. These reviews are often cited as the definitive source of information about treatment efficacy and safety. In taking on the thankless task of...
Professor Edwards' Letter to MRC's Fiona Watt
Professor Edwards signed the open letter to The Lancet. He originally wrote his own letter to Professor Watt in confidence. Since she has now strongly endorsed PACE in her letter to The Times, he has given me permission to post what he wrote.
Trial By Error: Another Letter to BMJ's Dr Godlee
Last week, The Times ran an article about the open letter to The Lancet concerning the PACE trial, quickly followed by a piece in The BMJ. This morning, I e-mailed the following letter to Fiona Godlee, editor-in-chief of The BMJ and editorial...
My letter to Red Whale/GP Update
Earlier today I sent the following letter to the e-mail address I found at the website of Red Whale/GP Update, which recently disseminated a recruitment ad for FITNET-NHS. I blogged about it on Monday. I cc’d officials at the Health Research Authority, the...
Trial By Error: FITNET- NHS Recruitment Ad Promotes "Recovery"
A British medical education company has recently disseminated a recruitment ad for a high-profile pediatric study of treatment for what it calls CFS/ME. The recruitment ad’s headline describes the intervention being investigated as...
The BPS Brigades Score Another Own Goal
Not long ago, Sir Simon scored an own goal by enticing a childhood buddy to enter the PACE debate. That buddy, attorney and social commentator Mike Godwin, soon pronounced the trial—which Sir Simon had called “a thing of beauty”–to be “so profoundly...
This thread has been formed by merging several threads about the Mayo clinic and it's approach to treating ME/CFS
Supposed treatments for ME CFS - plus overview by Mayo clinic
https://www.drugs.com/condition/chronic-fatigue-syndrome-cfs.html
Content supplied by Mayo clinic...
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