Discussion in 'General ME/CFS News' started by Cheshire, Oct 10, 2018.
New Trial by Error by @dave30th
Thank you @dave30th. I'm glad you're tackling this.
Reading the quotes from the Chalder training document feels like a massive attack from a creature from another planet. How can she be so dumb and ignorant and dangerous and get away with it?
An important issue that is regularly debated here but needs to be understood by a wider audience, thank you @dave30th.
Having put some effort into my comment on this on the Virology Blog, to feel I am getting full value, I have copied it here too, even though it is only repeating what many have already said on previous threads:
not relating to Cochrane, but Trudie Chalder and COI;
I knew she'd written a book (widely publicised on NHS sites), but found on Amazon that it's so much worse:
Are the versions of her book/s that are translated into other languages also advertised on the various countries health services sites?
Is in reality more like:
"Ability to help con client feel that their experience of CFS/ME is being listened to and respected (i.e. pretend you are acknowledging that they are experiencing real, physical symptoms)"
I notice the description for the book co authored with Mary Burgess
Overcoming Chronic Fatigue: A Books on Prescription Title (Overcoming Books) Kindle Edition
Contains the following
Wonder if it's worth raising this with the advertising standards authority?
Just looking at a small section on the first unit is disturbing:
HEALTH WARNING: May make you feel nauseous/angry/.....
"UNIT 1.3: Psychological processes associated with distress, depression and anxiety in the context of Long Term Health Conditions
Aims To give practitioners an understanding of psychological processes that contributes to the development and maintenance of distress, depression and anxiety in people with LTHCs
Competences covered in this unit
Ability to draw on knowledge of the relationship between distress, depression and anxiety and the negative appraisal of symptoms and illness
Ability to draw on knowledge that negative appraisals can be magnified by unhelpful beliefs
Ability to draw on knowledge that interpretations and appraisals are central to the development and maintenance of distress and disproportionate disability
Ability to draw on knowledge that maintaining processes can and do worsen negative interpretations (and physical as well as psychological functioning), so creating cycles of feedback (“vicious circles”) "
For those with strong stomachs/feeling resilient...
"Ability to draw on knowledge of specific psychological process that contribute to the development and maintenance of distress, depression and anxiety, such as:
attentional processes that increase the perceived severity and pervasiveness of sensations and symptoms
safety seeking behaviours (for example, excessive checking, avoidance of physical activity or situations, excessive reassurance seeking) which are understandable in the short-term, but which (in the long-term) tend to strengthen unhelpful beliefs, increase preoccupation and exacerbate concern
rumination in the form of catastrophising and/or worry (“preparing for the worst”) which in turn primes negative ideas and increases preoccupation
imagery and intrusive memories, increasing negative appraisals and impacting mood disturbance"
Last section for now:
"unhelpfully restrictive behaviour, such as generalised withdrawal from physical activity or from role-related activity (such as relationships, work, hobbies), leading to impaired mood, confirmation of unhelpful beliefs, reduced self-efficacy and disengagement from rewarding activities
changes in mood (particularly anxiety and depression) contributing to mood-appraisal spirals
emotional avoidance/suppression (for example linked to anticipated emotional responses and unhelpful beliefs about those emotions, or “blotting out” illness ideas, but with regular intrusions and unease as a consequence)
all or nothing (“boom or bust”) behaviours (undertaking activities beyond the level of which the person is physically or psychologically capable, resulting in symptom surges (e.g. fatigue, pain) and leading to more negative appraisal
interpersonal changes (such as those linked to a sense of unfairness, bitterness, mental defeat) eliciting negative or overly solicitous responses from significant others
disengagement from significant others because of the health condition
disuse and deconditioning originating from fear/avoidance patterns
Ability to draw on knowledge of factors and mechanisms that can potentiate (and mediate) vulnerability to distress, depression and anxiety, such as:
perfectionism (setting unrelentingly high personal standards and concern about mistakes (both social and non-social))
psychological inflexibility (becoming “stuck” in a particular view of the illness and situation, and so limiting access to alternative, less negative understandings"
It strikes me that all this provides the perfect means of dismissing / minimising / ignoring any complaints made by those suffering with LTC about service quality and delivery.
If you're not happy, no matter how you've been treated (or mistreated) then that's your faulty perspective. You are only as ill as you think you are.
Perfect set up to gaslight patients while you go about cutting services.
Each time I read Chalder's prose I feel like vomiting.
The lack of empathy, kindness and so on, of Chalder is beyond me. She should never be allowed to be near someone suffering.
A screening for sociopathic tendencies should be mandatory before anyone enters the field of psychology.
I remember reading this kind of stuff (because it's always the same processes that these so called psychologists recycle ad nauseam) for children with MS. The message is basically "Oh stop being a catastrophiser drama queen"
There's no limit to the scorn I feel for these people.
There an answer for every type of behaviour. If you don't do things that might cause a crash it is 'avoidance' behaviour, if you do things that cause a crash it is 'all or nothing' behaviour, meaning there is an answer for any behaviour regardless of any internal logical consistency. Any behaviour no matter what it is, is used as confirmation of the somatisation. This is not science in a traditional Popperian sense, which requires an hypothesis that can be falsified.
Chalder is practising what @dave30th decribed as 'woo woo' therapy. The only other time I have come across such blatant self fulfilling theorising was when I foolishly allowed myself to be persuaded to see an homeopath: when a 'prescription' was associate with improving symptoms this meant that it was working, and when it was associated with worsening symptoms it meant that it was working (though quietly you switch to something different).
Such blatantant anti-science behaviour is unacceptable in any health care researcher or professional. When will she use Occam's Razor and realise that the simplest explanations is that patients are responding rationally to an underlying medical condition.
The above sections are taken from:
https://www.hee.nhs.uk/sites/default/files/documents/CBT LTC MUS curriculum.pdf
This is referenced in DT's Virology blog, but not above. The June 2017 revised edition of the "National Curriculum for CBT in the Context of Long Term and distressing Health Conditions"
Includes Chalder as an author.
At what point does this appalling drivel become fraud and assault?
Psychological inflexibility? I assume they are referring to the psychologists who are completely inflexible.
Perhaps a session of yoga would help. It cures everything, you know.
utter utter drivel - the Chalder extracts that is - not DTs blog
from CBTwatch (comment):
"I would suggest that all those at the top of policy making and management know very well that the statistics produced about IAPT are rubbish but they all carry on living the lie so that they can claim to all those not in the know of how these stats are produced that they are running a well funded and effective service."
"Look closely at the stats and you will see ever diminishing reporting of anxiety disorder specific questionnaires (so recovery only based on the basic GAD and PHQ), a reclassifying of people who do not recover as non IAPT (so you will see less people in the stats finishing therapy than starting it), and of course nothing done about the fact that “entering treatment” gets classified as happening at triage because a few bits of information are given out to the patient, while the real waiting lists are not reported on."
the whole set up smacks of PACE style manipulation.
About 20 years ago. Their legacy will reflect this and the class action lawsuits will be huge and numerous.
But the main culprits aren't the researchers, it's the enablers, those who knowingly fail at their basic duties in the face of harmful pseudoscientific crap and blatantly fraudulent research. It's not exceptional that quack researchers driven by ideology exist in any field of science. What is exceptional is that they have monopoly on a topic they have negative knowledge of (in that they genuinely understand less than those who know nothing about it) despite being a minority in the field itself and not having a single bit of objective evidence.
Over time I'm feeling myself more and more driven by a need to dispense some justice (the legal kind, don't worry). It's as good a motivation as any, I guess. But having insulted and maligned a group of patients that include some damn smart folks, including medical professionals, will severely blow up in their face. It's just a shame that it will do so late, they will hardly pay any price for it. The enabling institutions will, however. They will pay heavily, literally.
You've been very kind to retweet/like my tweets regarding this on Twitter. I feel very strongly about this. I would be astonished if at least one person has not already died as a result of them being seen as an MUS 'type'. This is so going to court.
Separate names with a comma.