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Podcast: TWiV Special: David Tuller is PACEman

Discussion in 'General ME/CFS News' started by Andy, Aug 17, 2018.

  1. Andy

    Andy Committee Member & Outreach

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  2. Sasha

    Sasha Senior Member (Voting Rights)

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    MEMarge, RuthT, MSEsperanza and 11 others like this.
  3. dave30th

    dave30th Senior Member (Voting Rights)

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    Yes, it's one-of-a-kind, thanks to Anil! I don't wear it much because I don't want to wear it out. Only for appropriate occasions.
     
  4. Trish

    Trish Moderator Staff Member

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  5. Wonko

    Wonko Senior Member (Voting Rights)

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  6. Esther12

    Esther12 Senior Member (Voting Rights)

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    Started playing okay for me, and I've not got any premium subscription.

    Thanks to Tuller and Racaniello (although I've not listened through yet).
     
  7. dave30th

    dave30th Senior Member (Voting Rights)

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    It shouldn't require any subscription.
     
  8. Wonko

    Wonko Senior Member (Voting Rights)

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    It doesn't appear to now, last night it insisted it did (Chrome, windows 7 - although the same system now says it can play).
     
  9. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  10. Nasim Marie Jafry

    Nasim Marie Jafry Senior Member (Voting Rights)

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    This is brilliant, just listened, will tweet the podcast.
     
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  11. RuthT

    RuthT Senior Member (Voting Rights)

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    Listening. Love the idea of exploring how the PACE authors use the English language - certainly seem to be adept at stretching words & definitions to fit.

    Thank you @dave30th
     
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  12. Forbin

    Forbin Senior Member (Voting Rights)

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    A great little bit comes near the end at 1:06:20, when they're talking about a response they got from Psychological Medicine suggesting that they should try to replicate the PACE study.

     
    Last edited: Aug 20, 2018
  13. Sean

    Sean Senior Member (Voting Rights)

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    "I should write a PACE lexicon"

    Ambrose Bierce would have had fun with them. :D
     
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  14. Alvin

    Alvin Senior Member (Voting Rights)

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    It can be replicated, its just a very stupid thing to do. It would be like being in the middle of the ocean on a rubber boat and seeing what happens of you put a hole in the bottom. Logic says you will sink but lets pretend we can't foresee that and test it :emoji_face_palm:
    Oh and we will bill the taxpayers 5 million pounds to run this test since we want to replicate it faithfully....

    Though i would think ethical considerations will get in the way, harming patients intentionally is unethical and probably forbidden somewhere. Citing alternative facts wont change that.
     
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  15. Peter

    Peter Senior Member (Voting Rights)

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    Great interview and thanks again for your interest and relentless good work. You give great insight to the challenge, the magnitude, all the different parts that needs attention. In the end I like the “I basically have no strategy, I just want these people to behave like scientists”.
     
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  16. Barry

    Barry Senior Member (Voting Rights)

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    Absolutely. They forever strive to bump up their credentials as scientists, but in truth reinforce their image more as shamans.
     
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  17. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    "The problem is that not all good science is published in these luxury journals, and not all of what they publish is good! Yet, when it comes to hiring, promotion, and funding, the committees involved make decisions based on the journal and not the contents of the paper."

    "There is another problem in scientific publishing which revolves around the fact that the research we do is supported by tax dollars, but many journals keep scientific papers behind a paywall – so the public can’t see what they are paying for. This practice is also unacceptable, but it drives profits for journals."

    "I think scientists must take part of the blame for a science-disinterested public. Few of us take the time to tell the public what we are doing; we leave that to science writers. Some of these writers do a good job, but most do not and they certainly do not have the passion that we do for the subject. And as you surely know, passion for the subject is the key to teaching."

    http://www.virology.ws/2018/09/18/a-phd-lab-coat-ceremony/
     
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  18. Barry

    Barry Senior Member (Voting Rights)

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    "I wish you all a fulfilling career in this wonderful field, and don’t forget to always be curious, passionate, and kind."

    What a great sign-off.
     
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