clinic

This post has been copied and responses about the Nuffield program moved from the Paul Garner thread.

Moved from the Long Covid in the media thread Book review of The Long Covid Self-Help Guide. Practical Ways To Manage Symptoms by Trish Greenhalgh "The combination of these and other symptoms, along with the fluctuating course (good days interspersed with bad days, and certain activities...

Moved post This post may be taking the current discussion slightly off track, but I didn't intend it to as my first immediate thought when reading the opinion piece was the RCP's refusal to champion the new guidelines has influenced such propaganda, so I thought I would check to see if they...

Copied post

"The Physical Health Psychology team offer a range of services across Cumbria and North Lancashire to help you to manage your physical symptoms and live a happier, healthier life. We are a team of Healthcare Professionals made up of Psychological Practitioners, CBT Therapists, Occupational...

Moved post New video from Medinger. This time in conversation with dr. David Putrino, a British physiotherapist who is the director of rehabilitation innovation at Mt. Sinai in New York and now works with long haulers. 10 minutes in he says he was discussing the symptoms of his Long Covid...

From: Dr. Marc-Alexander Fluks A Dutch CFS/ME-clinic is one of the nominees to receive this year's quackery award. Translation from Dutch to English (see section 6 of the press release)...

https://www.bmj.com/content/374/bmj.n1996 Clinical services, often including multidisciplinary teams, are being set up to treat patients with ongoing symptoms from covid-19. They have been generally welcomed, but critical evaluation is important to ensure they serve patients well...

https://domsalisbury.github.io/mecfs/bacme_dysregulation/ I have written more about the emerging theme of a 'dysregulation model of ME/CFS' from members of BACME, and what this might actually mean in practice. Coincidentally, @Sly Saint has today posted about an addition to the BACME website...

Abstract The National Institute for Health and Care Excellence (NICE) describe “post COVID-19 syndrome” or “Long COVID” as a set of persistent physical, cognitive and/or psychological symptoms that continue for more than 12 weeks after illness and which are not explained by an alternative...

Any recommendations for a good doctor/clinic in the SE corner of NSW (Monaro region), for a newly diagnosed patient in that area? Thanks.

https://mecentraal.wordpress.com/2020/12/15/helsinki-university-hospitals-outpatient-clinic-for-functional-disorders-treats-me-cfs-patients/

https://www.virology.ws/2020/10/01/tria-by-error-royal-society-of-medicine-webinar-on-long-covid/

Due in the Journal of the Royal Society of Medicine https://kclpure.kcl.ac.uk/portal/files/132955332/pdf_proof_re_submit.pdf https://kclpure.kcl.ac.uk/portal/en/publications/cognitive-behavioural-therapy-for-chronic-fatigue-and-cfs(67b43c92-f30b-4e21-a7b6-1b94e2ead525).html

Promising news from Norway. The Norwegian ME Association is working together with the foundation and institution Røysumtunet with plans on developing care for patients with severe ME. The institution was established in 1965 and will soon have 12 available places, as an offer for patients with...

P15 Does the NHS offer equitable access to specialist paediatric clinics? A study of inequalities in outpatient referrals to eight paediatric subspecialties FK Neale1, EJ Armstrong1, J Cohen2, TY Segal2, DS Hargreaves3 https://bmjpaedsopen.bmj.com/content/3/Suppl_1/A9.3

I'm just floating ideas here, and would appreciate some feedback. I have been thinking about the difficulties that ME centres have in measuring effectiveness. It doesn't seem appropriate to put patients through a set of demanding objective assessments, and yet responses to subjective...

Mod note: This discussion has been split from a thread in the members only area. Recently saw this on the Bristol Chronic Fatigue Syndrome/ME Service website (under Research)...

https://adc.bmj.com/content/104/Suppl_2/A139.2

http://www.virology.ws/2019/03/11/trial-by-error-kaiser-permanente-changes-course/