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This post has been copied from this thread and subsequent posts moved across.
I think it was the BACME response to NICE that said only 8,000 ME patients use the NHS clinics. That's only 3.2% of the estimated 250,000 ME patients nationwide (or 6.4% if the number was actually only...
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South Tees NHS
The CFS service
Group Rehabilitation
Programme
for people with CFS / ME
https://www.southtees.nhs.uk/content/uploads/Session-1-2017.pdf
as long as this sort of stuff is peddled, asking for more ME/CFS services is maybe asking for more of the same(?)
Don't think that this has been posted before - I just found it while looking for something else: https://www.kingshealthpartners.org/assets/000/001/145/KHPJ5100_Psych_Med_Booklet_280317_WEB_Complete_original.pdf?1491471608
There are bits and pieces in the intro, eg:
Oh dear... you've got two...
(Note - this post was actually made on 4 Jul 2022)
Note from the moderation team:
This thread is for posts about ME/CFS services in the United Kingdom generally.
If you have comments about specific services, please post on the relevant service thread (listed below or make a new thread).
We...
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My doctor once suggested I go to the exercise physiology clinic of Nathan Butler. Nathan Butler was involved in the PACE trial, presumably as a GET therapist, and had subsequently set up the Melbourne, Australia clinic, specialising in CFS and fibromyalgia. Back in 2015 or so he...
raised on another thread by @MEMarge.
The CQC only deals with services in England but from briefly looking at their website the only ME/CFS service they seem to have inspected is Leeds which currently has
an amber 'Requires Improvement' warning having been inspected in 2016.
The various checks...
A coalition of parents and other carers to children and adolescents with ME has written a letter to the Norwegian Directorate of Health about the national centre of excellence for CFS/ME.
The centre has a biopsychosocial approach to ME, and the parents give several examples of how this view is...
I thought this story (the second one) was so sad and infuriating that it deserves its own thread. It was later said in the thread that it's about the "Bath Fatigue clinic" in the UK. (Admins, if you can think of a better title, please edit.)
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