clinic

  1. adambeyoncelowe

    UK - Discussion of how many patients use NHS ME/CFS clinics

    Moderator note This post has been copied from this thread and subsequent posts moved across. I think it was the BACME response to NICE that said only 8,000 ME patients use the NHS clinics. That's only 3.2% of the estimated 250,000 ME patients nationwide (or 6.4% if the number was actually only...
  2. Sly Saint

    United Kingdom: South Tees CFS Service

    Copied post South Tees NHS The CFS service Group Rehabilitation Programme for people with CFS / ME https://www.southtees.nhs.uk/content/uploads/Session-1-2017.pdf as long as this sort of stuff is peddled, asking for more ME/CFS services is maybe asking for more of the same(?)
  3. Esther12

    Info on King's CFS service in King's Health Partners - Psychological Medicine (2017)

    Don't think that this has been posted before - I just found it while looking for something else: https://www.kingshealthpartners.org/assets/000/001/145/KHPJ5100_Psych_Med_Booklet_280317_WEB_Complete_original.pdf?1491471608 There are bits and pieces in the intro, eg: Oh dear... you've got two...
  4. Hutan

    ME/CFS services in the United Kingdom

    (Note - this post was actually made on 4 Jul 2022) Note from the moderation team: This thread is for posts about ME/CFS services in the United Kingdom generally. If you have comments about specific services, please post on the relevant service thread (listed below or make a new thread). We...
  5. Hutan

    Australia: Active Health Clinic, Melbourne, Nathan Butler

    Copied post My doctor once suggested I go to the exercise physiology clinic of Nathan Butler. Nathan Butler was involved in the PACE trial, presumably as a GET therapist, and had subsequently set up the Melbourne, Australia clinic, specialising in CFS and fibromyalgia. Back in 2015 or so he...
  6. Sly Saint

    Care Quality Commission - what are they doing re CBT/GET treatment for ME patients

    raised on another thread by @MEMarge. The CQC only deals with services in England but from briefly looking at their website the only ME/CFS service they seem to have inspected is Leeds which currently has an amber 'Requires Improvement' warning having been inspected in 2016. The various checks...
  7. Kalliope

    The Norwegian Directorate of Health receives letter signed 308 parents

    A coalition of parents and other carers to children and adolescents with ME has written a letter to the Norwegian Directorate of Health about the national centre of excellence for CFS/ME. The centre has a biopsychosocial approach to ME, and the parents give several examples of how this view is...
  8. Joh

    Bath Fatigue Clinic - example of advice that harms child

    I thought this story (the second one) was so sad and infuriating that it deserves its own thread. It was later said in the thread that it's about the "Bath Fatigue clinic" in the UK. (Admins, if you can think of a better title, please edit.)
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