cdc

There have been many discussions on NIH funding, and in particular the new funds dedicated to the new collaborative centers, as well as the see-saw of funding increases and decreases. Especially since this is basically the only actual significant source of funding we know of that is supposed to...

https://www.meaction.net/2018/10/18/cdc-contract-update-nys-depart-of-health-and-meaction-bid-for-contract/

https://www.meaction.net/2018/10/11/meaction-sends-recommendations-to-cdc-for-me-website/ Direct link to PDF with recommendations - http://www.meaction.net/wp-content/uploads/2018/10/Recommended-Changes-to-the-CDC-Webpages-on-ME-2.pdf

https://bringmethenews.com/minnesota-news/rare-neurological-disease-reported-in-six-minnesota-kids Acute Flaccid Myelitis has been compared to polio, and is thought to be linked to Enterovirus D68. The long-term prognosis has not been studied.

Good news! The ME/CFS line item at the CDC was funded in the recent budget compromise announced today. Committee report language was included, unedited, from advocacy efforts earlier this year.. You can see SMCI's statement here...

Source: Journal of the American Medical Association (JAMA) Vol 320, #8, p 750 Date: August 28, 2018 URL: https://jamanetwork.com/journals/jama/article-abstract/2698504 Chronic Fatigue Care -------------------- Bridget Kuehn, MSJ A new CDC website aims to improve the diagnosis and care of...

#MEAction: Full text: https://www.meaction.net/2018/08/26/stop-cdc-from-hiring-shoddy-contractor-for-me-treatment-guidelines/?mc_cid=20165100b3&mc_eid=926b73a95d Link to petition: https://my.meaction.net/petitions/demand-expert-input-community-consultation-on-new-me-guidelines-from-cdc

I saw this on the Medscape website today. I think it's just a summary of recent changes posted on CDC website but I'm not sure. Full article (may require Medscape registration/login) - https://reference.medscape.com/viewarticle/900291_5

https://www.meaction.net/2018/07/29/cdc-revises-its-information-on-me/?mc_cid=435242023b&mc_eid=83ddbd3a71 Detailed analysis of the CDC content on ME, not just the recent update, by @JaimeS

The CDC's Update for Healthcare Providers Last summer, the US Centers for Disease Control removed graded exercise therapy and cognitive behavior therapy from its website as recommendations for treatment of the illness it was by then calling ME/CFS. Its stated explanation for the change–that...

CDC Page for ME/CFS Take a look around each page. How does it look to everyone?

A good article on Your Care Everywhere website. https://www.yourcareeverywhere.com/health-research/health-insights/pain-care-insights/stop-exercising-for-chronic-fatigue-syndrome-symptoms.html

On 26 March I sent to following question to the CDC: 2 months the later (after 3 further requests for an answer) the CDC has responded: Details of the Roundtable report can be found here: https://www.cdc.gov/me-cfs/programs/meetings.html I note that the SMC has now revised its “factsheet”...

http://www.virology.ws/2018/05/23/trial-by-error-more-on-the-cdc-readers-digest-and-bbcs-newsbeat/

Old, 2nd Oct 2017, article. https://www.npr.org/sections/health-shots/2017/10/02/554369327/for-people-with-chronic-fatigue-syndrome-more-exercise-isnt-better Linked to from a recently found Reader's Digest article on 'Fitness Myths' -...

https://www.everydayhealth.com/multiple-sclerosis/treatment/new-guidelines-ms-treatment-start-treatment-early/

Source: Neurology Vol 90, #15 Supplement Date: April 23, 2018 URL: http://n.neurology.org/content/90/15_Supplement/P2.016 [American Academy of Neurology 70th Annual Meeting, Los Angeles] A Common Language for Clinical Research Studies: The National Institute of Neurological Disorders and...

https://tinyurl.com/ybkbkvrv i.e. https://www.cdc.gov/budget/documents/fy2019/fy-2019-detail-table.pdf The CDC CFS budget is substantial: $5.4 million per year. --- The Prevention and Public Health Fund is solely used to fund the CDC's CFS program. An article about cuts to that is here...

Huge thanks to everyone who took part in the poll and shared it on social media. In January, our small group of research-oriented ME/CFS patients including Simon McGrath, Graham McPhee, Carly Maryhew and others, asked our fellow ME/CFS patients to complete an important poll. The poll related to...