cdc

  1. Webdog

    My letter to the CDC concerning Kaiser Permanente still recommending GET

    My letter. The only edit (besides removal of personal info) is the KP web link I included in my email went stale, so I updated it below: CDC response (emphasis mine): As instructed by the CDC, I've written to California State Department of Health. When I get a reply, I'll post it. I used...
  2. Andy

    S4ME: Submission to the public review on common data elements for ME/CFS: Problems with the Chalder Fatigue Questionnaire

    Science for ME are pleased to announce that we have today submitted the following critique of the Chalder Fatigue Questionnaire to the NIH/CDC review. All credit for this submission should go to the authors, we are very grateful for all their hard work. We have replicated the submission below...
    • Andy
    • Thread
    • cdc chalder fatigue scale common data elements fatigue measurement scale nih s4me submission
    • Replies: 165
    • Forum: Open Letters and Replies
  3. Sasha

    Do the poll! Are the NIH/CDC going to use the right definition of PEM in all their future research? Deadline 24 January

    A small group of ME/CFS patients with an interest in research, including Simon McGrath, Graham McPhee, Carly Maryhew and others, are asking for the help of fellow ME/CFS patients with an important issue that will affect biomedical research in the US and elsewhere for years to come. The NIH/CDC...
  4. Andy

    Lyme Disease Patients Vent Frustration During HHS Panel

    https://www.medscape.com/viewarticle/890001 - you may need a Medscape account to view
  5. Cheshire

    CDC gets list of forbidden words

    https://www.washingtonpost.com/national/health-science/cdc-gets-list-of-forbidden-words-fetus-transgender-diversity/2017/12/15/f503837a-e1cf-11e7-89e8-edec16379010_story.html?tid=ss_tw&utm_term=.b21949d3f256
  6. T

    Presentation on CDC research program from 1999 to CFSCC

    I don't think some of these findings were ever published. I'm clearing out some of the mass of paper I have and thought I should highlight it somewhere https://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind0910C&L=CO-CURE&P=R2735 CFSCC meeting, on April 22 (1999). DR. REEVES: The...
  7. Dolphin

    Slides now up for 3 of 4 talks (Unger (CDC), Chu & Nacul) at American Public Health Association Special Session in Epidemiology

  8. Cheshire

    MyDr: Chronic fatigue syndrome

    It seems more and more treatment recommandations are being updated! http://www.mydr.com.au/first-aid-self-care/chronic-fatigue-syndrome
  9. Sasha

    USA Centers for Disease Control (CDC) news (including ME/CFS Stakeholder Engagement and Communication Calls) - next call 4 Dec 2024

    This thread includes posts on general news from the CDC and ME/CFS news including stakeholder calls. Several threads have been merged.
    • Sasha
    • Thread
    • article campaign cdc chronic lyme disease david tuller fibromyalgia funding hillary johnson history komaroff long covid me awareness week me/cfs oslers web sec systrom toolkit unger usa webinar
    • Replies: 352
    • Forum: News from organisations
  10. Cheshire

    WebMD: Solving the Mystery of Chronic Fatigue

    The journalist quotes Avindra Nath, Ian Lipkin, Jose Montoya, Zaher Nahle. https://www.webmd.com/chronic-fatigue-syndrome/news/20171020/solving-the-mystery-of-chronic-fatigue
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