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  1. Kalliope
    Thread

    #MEAction: Here's what happened at the CDC's sep. 2020 ME/CFS meeting

    On Wednesday, September 23 the CDC helt its ME/CFS Stakeholder Engagement and Communication (SEC) conference call ant the #MEAction community...
    Thread by: Kalliope, Sep 26, 2020, 4 replies, in forum: General ME/CFS news
  2. Yessica
    Thread

    Who makes and writes the CDC guidelines and who updates them?

    So frustrated! Can't go into more now though want to. Years of CDC's ME/CFS site frustrations and now COVID guideline frustrations. So...
    Thread by: Yessica, Jul 10, 2020, 4 replies, in forum: General Advocacy Discussions
  3. Tom Kindlon
    Thread

    CDC create new page on how people with ME/CFS can be supported for May 12 and link to it in their weekly e-bulletin

    https://www.cdc.gov/Features/cfsawarenessday/index.html?deliveryName=USCDC_201-DM28478 [MEDIA] [MEDIA]
    Thread by: Tom Kindlon, May 16, 2020, 3 replies, in forum: General ME/CFS news
  4. Dolphin
    Thread

    Open (California, USA) CDC-funded study on children aged 10-17 with ME/CFS

    https://solvecfs.org/wp-content/uploads/2019/12/20191211-CFS-Ped-Flyer.pdf [ATTACH]
    Thread by: Dolphin, Dec 21, 2019, 11 replies, in forum: Recruitment into current ME/CFS research studies
  5. rvallee
    Thread

    Discussion of documentary: What about ME? (2016)

    Two days ago I was made aware of a documentary titled "What about ME?", published in 2016. First time I had heard of it and maybe I missed...
    Thread by: rvallee, Dec 16, 2019, 2 replies, in forum: General Advocacy Discussions
  6. Sly Saint
    Thread

    Now for Something Completely Different: A microbe hunter turns to ME/CFS - Ian Lipkin presentation to CDC Sept 2019

    [MEDIA] eta: new link [MEDIA] CDC "Columbia University’s Ian Lipkin, MD, visited the CDC in September 2019 to present a special seminar hosted...
    Thread by: Sly Saint, Dec 14, 2019, 22 replies, in forum: ME/CFS research news
  7. Medfeb
    Thread

    CDC Treatment Evidence Review - consultation period

    A thread announcing consultation on the draft document has been merged with this thread. Go to this post for the start of the merged thread....
    Thread by: Medfeb, Jul 2, 2019, 113 replies, in forum: 2021 USA CDC ME/CFS Diagnosis and Treatment Review
  8. deboruth
    Thread

    Where is this sophisticated research CDC's Suzanne Vernon said she was doing in 2005? what happened to the work and results?

    Reading the 2005 online Bay Area paper, I noticed (about 3/4 down the article) Suzanne Vernon claiming elaborate research in process for ME/"cfs"...
    Thread by: deboruth, May 20, 2019, 2 replies, in forum: ME/CFS research
  9. Sly Saint
    Thread

    The Independent - What are the symptoms of ME and how is it treated? May 2019

    Pretty awful article imo. Includes quotes from SC AfME, and the MEA making the psych vs physical point. Also links to MERUK and the CDC. Very...
    Thread by: Sly Saint, May 12, 2019, 19 replies, in forum: General ME/CFS news
  10. Andy
    Thread

    Trial By Error: The CDC’s Pathetic Response to Reuters

    The recent Reuters article about the illness, or cluster of illnesses, variously called CFS, ME, CFS/ME and ME/CFS was problematic for many...
    Thread by: Andy, Mar 25, 2019, 25 replies, in forum: General ME/CFS news
  11. Medfeb
    Thread

    CDC CME for medical providers

    CDC and Medscape released a CME activity for physicians and other healthcare providers. This CME is a discussion moderated by Dr. Bateman, with...
    Thread by: Medfeb, Feb 25, 2019, 17 replies, in forum: ME/CFS research news
  12. Cheshire
    Thread

    CDC/Medscape - Chronic Fatigue Syndrome: It's Real, and We Can Do Better Elizabeth Unger

    Video published today My name is Dr Elizabeth Unger and I am chief of CDC's Chronic Viral Diseases Branch, which houses the myalgic...
    Thread by: Cheshire, Feb 25, 2019, 20 replies, in forum: ME/CFS research news
  13. akrasia
    Thread

    The $35 billion race to cure a silent killer that affects 30 million Americans

    https://www.cnbc.com/2018/12/21/the-35-billion-race-for-a-cure-for-a-liver-disease-that-affects-millions.html (from later in the article my...
    Thread by: akrasia, Jan 13, 2019, 41 replies, in forum: Other health news and research
  14. WillowJ
    Thread

    FWIW: Apparently “Exercise is Medicine” could be funded by... Coca-Cola?

    Of all the confusing places to find this information, I found it on another exercise -is-medicine industry, CrossFit. (though they want to add...
    Thread by: WillowJ, Dec 13, 2018, 2 replies, in forum: Other health news and research
  15. rvallee
    Thread

    Do we actually know if the NIH funding is being spent?

    There have been many discussions on NIH funding, and in particular the new funds dedicated to the new collaborative centers, as well as the...
    Thread by: rvallee, Oct 26, 2018, 16 replies, in forum: General Advocacy Discussions
  16. Andy
    Thread

    CDC Update: NYS Dept. of Health and #MEAction Bid for Contract

    On August 27th, #MEAction published a petition calling for the U.S. Center for Disease Control and Prevention (CDC) to immediately halt its plan...
    Thread by: Andy, Oct 19, 2018, 4 replies, in forum: Advocacy Projects and Campaigns
  17. Andy
    Thread

    #MEAction Sends Recommendations to CDC to Update its ME Website

    This past July, 2018, the U.S. Center for Disease Control and Prevention (CDC) launched new webpages about myalgic encephalomyelitis / chronic...
    Thread by: Andy, Oct 12, 2018, 2 replies, in forum: Advocacy Projects and Campaigns
  18. Sly Saint
    Thread

    CDC Roundtable, Multisite Study and Dr. Klimas’ Attempt to Permanently “Reset” Chronic Fatigue Syndrome (ME/CFS)

    [MEDIA]
    Thread by: Sly Saint, Oct 11, 2018, 26 replies, in forum: ME/CFS research news
  19. Webdog
    Thread

    Cases of Acute Flaccid Myelitis in Minnesota and other states

    https://bringmethenews.com/minnesota-news/rare-neurological-disease-reported-in-six-minnesota-kids Rare neurological disease reported in six...
    Thread by: Webdog, Oct 7, 2018, 26 replies, in forum: Other health news and research
  20. Emily Taylor
    Thread

    FY19 Funding for ME/CFS restored

    Good news! The ME/CFS line item at the CDC was funded in the recent budget compromise announced today. Committee report language was included,...
    Thread by: Emily Taylor, Sep 14, 2018, 6 replies, in forum: General ME/CFS news
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