https://www.meassociation.org.uk/2019/06/meeting-with-minister-raised-important-concerns-about-welfare-benefits-for-people-with-me-26-june-2019/
Hopefully DWP will take on board the issues raised
A few minutes ago, Carol Monaghan asked a question in the House about children ( with ME) being removed from loving families .
I didn’t get the whole of her question - sound was off and I had to quickly turn it up- but Prime Minister answered something to the effect that she wasn’t aware of...
Moderator note: This post has been copied to create a new thread on the day of the debate. The thread on preparations for the debate is here
Ways to watch live;
https://parliamentlive.tv/Commons
https://www.bbc.co.uk/iplayer/live/bbcparliament (UK only)
(The BBC Parliament channel can also be...
Carol Monaghan Scores Another Parliamentary Debate
"Carol Monaghan, a member of Parliament from the Glasgow area, has done it again. This week she is spearheading a three-hour debate in the House of Commons about the awful situation confronting ME patients in the UK. (The organizers of this...
:woot::woot::woot::woot::woot::woot::woot::woot:
Thanks to all those who've long researched and written about PACE - it's those many, many years of work by patients such as @Tom Kindlon and others who spotted the problems from the get-go, and the support of academics such as @dave30th David...
My Member of Parliament Carol Monaghan MP will be at the Backbench Business Committee meeting today at 2:30 to discuss the next UK Parliamentary Debate.
https://calendar.parliament.uk
This link for Parliament TV below should work nearer the time...
This thread has been split in order to create an In Memory thread for Merryn.
To leave tributes to Merryn please go to:
https://www.s4me.info/threads/in-memory-of-merryn-croft.3302/
This thread remains here to discuss media coverage
:cry:
Bed-bound and in unimaginable pain, watching my...
Malcolm Hooper: Letter from Professor Hooper to Bridget Phillipson MP
http://www.margaretwilliams.me/2018/hooper-to-phillipson.pdf
16th July 2018
Dear Bridget,
Many thanks for forwarding the letter of 14th June 2018 (PO-1133220) from Lord O’Shaughnessy, Parliamentary Under Secretary of...
Pretty good article on BBC news website about recent parliamentary debate
“Chronic fatigue syndrome, or ME, is incorrectly treated, lacks sufficient funding and is poorly understood by many in the medical profession - according to an MP who has been campaigning in Parliament to change...
Well done to Carol for getting this done. Details here:
https://www.meaction.net/2018/06/06/uk-secures-westminster-hall-debate-on-me/
I don't know whether this precludes a debate in the House of Commons...
My Letter to MP Monaghan About BMJ Studies
This morning, I sent an e-mail about BMJ to Scottish National Party MP Carol Monaghan. MP Monaghan, a science teacher by profession, has a keen interest in research accountability as well as in the plight of ME/CFS patients. In February, she organized...
Only just seen this:
Edit: Here's a link to it online (it was earlier this afternoon), which starts just as the discussion begins:
https://parliamentlive.tv/event/index/50fb53f3-c6ea-4848-8e5d-c00d6a52f005?in=14:30:20
Thanks to @Andy for that link.
This post and some others following have been moved from another thread.
A bit disturbing Facebook post from Invest in ME just now...
Apparently a debate in parliament is happening today with Carol Monaghan picking up the thread from her previous debate.
However, the document from which she is...
Also mentions her EDM:
https://www.thecanary.co/exclusive/2018/05/10/an-mp-is-calling-for-a-debate-into-one-of-the-biggest-medical-scandals-of-the-21st-century/
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