1. Guest, click here to read the 'News in Brief' post for w/c 13th May.
    Dismiss Notice

UK Parliamentary debate today - Thursday 24th January 2019

Discussion in 'General ME/CFS News' started by Andy, Jan 24, 2019.

  1. Andy

    Andy Committee Member & Outreach

    Messages:
    6,223
    Likes Received:
    46,461
    Location:
    Hampshire, UK
    Last edited by a moderator: Jan 24, 2019
    Forbin, Joel, Simone and 13 others like this.
  2. Lucibee

    Lucibee Senior Member (Voting Rights)

    Messages:
    880
    Likes Received:
    9,162
    Location:
    Mid-Wales
    I'm going to have a go at live-tweeting the debate (technology depending), as I did for the Westminster Hall debate.



    Hope that's useful for some.
     
    Simone, Hutan, Dolphin and 7 others like this.
  3. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    2,978
    Likes Received:
    24,582
    I hope that any reference to Cochrane's work includes reference to this note on the Larun exercise review:
     
  4. Sasha

    Sasha Senior Member (Voting Rights)

    Messages:
    3,003
    Likes Received:
    19,174
    Location:
    UK
    I want to watch the start live, because this is a historic moment for us... and I'm taping the whole thing. :)
     
    Simone, adambeyoncelowe, Andy and 4 others like this.
  5. Trish

    Trish Moderator Staff Member

    Messages:
    12,088
    Likes Received:
    67,044
    Location:
    UK
    Moderator note:

    The debate started later than expected. There were a lot of posts about when it might start. These are now redundant and are being deleted so people coming to the thread to catch up with the debate don't have to wade through pages of anticipation.

    Edit: Done. 29 fewer posts for you to read!
     
    Last edited: Jan 24, 2019
    Woolie, janice, JohnTheJack and 17 others like this.
  6. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    2,978
    Likes Received:
    24,582
    House of Commons briefing for the debate: http://researchbriefings.files.parliament.uk/documents/CDP-2019-0014/CDP-2019-0014.pdf

    This is what they say on Cochrane:

    Pretty appalling that they omitted the notice I mentioned above, or any information on the problems identified by Cochrane.

    Also pretty pissed off that they fail to mention the many issues that the PACE researchers have failed to respond to:

    That briefing gives a really misleading view of things imo.
     
    Woolie, Snow Leopard, Sean and 10 others like this.
  7. Andy

    Andy Committee Member & Outreach

    Messages:
    6,223
    Likes Received:
    46,461
    Location:
    Hampshire, UK
    Simone, Hutan, rvallee and 5 others like this.
  8. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    1,918
    Likes Received:
    20,052
    Location:
    Norway
  9. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    2,978
    Likes Received:
    24,582
    I hope Monaghan has been briefed on the Cochrane issues - if so she should be able to knock back any attempt to defend PACE/CBT/GET with reference to Cochrane's work, and make anyone taking this approach look a bit silly.
     
    Simone, rvallee, lycaena and 5 others like this.
  10. Cheshire

    Cheshire Moderator Staff Member

    Messages:
    1,588
    Likes Received:
    12,582
  11. dave30th

    dave30th Senior Member (Voting Rights)

    Messages:
    590
    Likes Received:
    9,751
    That briefing gives a really misleading view of things imo.[/QUOTE]

    Who prepares this kind of briefing?
     
    Snow Leopard and Simone like this.
  12. NelliePledge

    NelliePledge Senior Member (Voting Rights)

    Messages:
    2,768
    Likes Received:
    19,872
    Location:
    UK East Midlands
    Who prepares this kind of briefing?[/QUOTE]
    Staff in HoC library.
     
  13. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

    Messages:
    710
    Likes Received:
    4,910
    Location:
    betwixt and between
    They also omitted the fact that Cochrane erroneously included the PACE trial as "randomised controlled trial" despite it being only a randomised trial.
     
    Last edited: Jan 24, 2019
  14. NelliePledge

    NelliePledge Senior Member (Voting Rights)

    Messages:
    2,768
    Likes Received:
    19,872
    Location:
    UK East Midlands
    This Deputy Speaker has a friend with ME said so at the backbench committee
     
    Woolie, Joel, Simone and 5 others like this.
  15. NelliePledge

    NelliePledge Senior Member (Voting Rights)

    Messages:
    2,768
    Likes Received:
    19,872
    Location:
    UK East Midlands
    Quite a few MPs have turned out.
     
    Woolie, Joel, Simone and 7 others like this.
  16. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    1,918
    Likes Received:
    20,052
    Location:
    Norway
    Monaghan: If graded exercise was a drug, it would have lost its licence
     
    Forbin, Woolie, janice and 22 others like this.
  17. ukxmrv

    ukxmrv Senior Member (Voting Rights)

    Messages:
    436
    Likes Received:
    2,976
    I'm counting and guessing 50 MPs?

    It's hard to tell as some just seem to be leaving still after the last debate and the numbers may be going down

    edit - less MPs now as the debate goes on
     
    Last edited: Jan 24, 2019
  18. NelliePledge

    NelliePledge Senior Member (Voting Rights)

    Messages:
    2,768
    Likes Received:
    19,872
    Location:
    UK East Midlands
    Carol M hitting some good points here and the interventions hitting home too. She’s put the minister on the spot over stuff he said in June
     
    Woolie, janice, Lisa108 and 15 others like this.
  19. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    4,152
    Likes Received:
    27,620
    The required minimum to vote at the end is 40. Don't all have to be present throughout the debate.
     
    Woolie, Simone, inox and 2 others like this.
  20. NelliePledge

    NelliePledge Senior Member (Voting Rights)

    Messages:
    2,768
    Likes Received:
    19,872
    Location:
    UK East Midlands
    reall hitting home about the severe children now
     
    Woolie, janice, Simone and 10 others like this.

Share This Page