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UK Parliamentary debate today - Thursday 24th January 2019

Discussion in 'General ME/CFS News' started by Andy, Jan 24, 2019.

  1. Andy

    Andy Committee Member & Outreach

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    Last edited by a moderator: Jan 24, 2019
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  2. Lucibee

    Lucibee Senior Member (Voting Rights)

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    I'm going to have a go at live-tweeting the debate (technology depending), as I did for the Westminster Hall debate.



    Hope that's useful for some.
     
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  3. Esther12

    Esther12 Senior Member (Voting Rights)

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    I hope that any reference to Cochrane's work includes reference to this note on the Larun exercise review:
     
  4. Sasha

    Sasha Senior Member (Voting Rights)

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    I want to watch the start live, because this is a historic moment for us... and I'm taping the whole thing. :)
     
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  5. Trish

    Trish Moderator Staff Member

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    Moderator note:

    The debate started later than expected. There were a lot of posts about when it might start. These are now redundant and are being deleted so people coming to the thread to catch up with the debate don't have to wade through pages of anticipation.

    Edit: Done. 29 fewer posts for you to read!
     
    Last edited: Jan 24, 2019
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  6. Esther12

    Esther12 Senior Member (Voting Rights)

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    House of Commons briefing for the debate: http://researchbriefings.files.parliament.uk/documents/CDP-2019-0014/CDP-2019-0014.pdf

    This is what they say on Cochrane:

    Pretty appalling that they omitted the notice I mentioned above, or any information on the problems identified by Cochrane.

    Also pretty pissed off that they fail to mention the many issues that the PACE researchers have failed to respond to:

    That briefing gives a really misleading view of things imo.
     
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  7. Andy

    Andy Committee Member & Outreach

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  8. Kalliope

    Kalliope Senior Member (Voting Rights)

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  9. Esther12

    Esther12 Senior Member (Voting Rights)

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    I hope Monaghan has been briefed on the Cochrane issues - if so she should be able to knock back any attempt to defend PACE/CBT/GET with reference to Cochrane's work, and make anyone taking this approach look a bit silly.
     
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  10. Cheshire

    Cheshire Moderator Staff Member

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  11. dave30th

    dave30th Senior Member (Voting Rights)

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    That briefing gives a really misleading view of things imo.[/QUOTE]

    Who prepares this kind of briefing?
     
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  12. NelliePledge

    NelliePledge Moderator Staff Member

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    Who prepares this kind of briefing?[/QUOTE]
    Staff in HoC library.
     
  13. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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    They also omitted the fact that Cochrane erroneously included the PACE trial as "randomised controlled trial" despite it being only a randomised trial.
     
    Last edited: Jan 24, 2019
  14. NelliePledge

    NelliePledge Moderator Staff Member

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    This Deputy Speaker has a friend with ME said so at the backbench committee
     
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  15. NelliePledge

    NelliePledge Moderator Staff Member

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    Quite a few MPs have turned out.
     
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  16. Kalliope

    Kalliope Senior Member (Voting Rights)

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    Monaghan: If graded exercise was a drug, it would have lost its licence
     
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  17. ukxmrv

    ukxmrv Senior Member (Voting Rights)

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    I'm counting and guessing 50 MPs?

    It's hard to tell as some just seem to be leaving still after the last debate and the numbers may be going down

    edit - less MPs now as the debate goes on
     
    Last edited: Jan 24, 2019
  18. NelliePledge

    NelliePledge Moderator Staff Member

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    Carol M hitting some good points here and the interventions hitting home too. She’s put the minister on the spot over stuff he said in June
     
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  19. Barry

    Barry Senior Member (Voting Rights)

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    The required minimum to vote at the end is 40. Don't all have to be present throughout the debate.
     
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  20. NelliePledge

    NelliePledge Moderator Staff Member

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    reall hitting home about the severe children now
     
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