Discussion in 'General disability topics and advocacy' started by Andy, Jun 6, 2019.
On the #MEAction SW Facebook group a post by Carol has been shared. I couldn't work out how to link to it directly, so have cut and pasted the text below. I thought that the community on here could probably give some useful feedback, based on some of the recent threads.
I couldn't see this anywhere else on the forum but if I've duplicated anohter post then please feel free to delete this one!
"In a couple of weeks’ time I’ll be meeting with the Minister for Disabled People, Health and Work to raise the recurring issue of access to benefits for those with ME.
This is an area of real importance as many from the ME community have voiced concerns about health assessors displaying an insufficient understanding of ME and not properly applying the assessment criteria. These factors, combined with tests which often leave a patient exhausted for weeks afterwards, mean that we would like to see assessments become much more accessible and accurate for those with ME.
If you, or someone you know, has had experience with this issue which you would be happy to share with me, please could you e-mail an account of this by next Friday 14th June to firstname.lastname@example.org? Thank you for your support."
There have been many stories on the forum and linked over time, if someone wants to take on making a list i'm sure it could be put to use and maybe even those involved could be asked if they want to have their irl names attached.
If anyone can think of any post them to this thread, if someone can take on e-mailing them to Carol that would be great.
Thank you Carol! I am going to send the MEpedia info about Carol's work for ME to my political reps.
Shared to our local group
Both of these shared to a local group.
I’ve sent my experiences in to carol and ME Association.
Separate names with a comma.