"Change in medicine is never easy, especially when practitioners are asked to dispense with long-held beliefs about an illness. It is this challenge—of steering an entire community to collectively revise its understanding of reality—that philosopher Thomas Kuhn flagged in his classic analysis of...
Abstract:
Myalgic encephalomyelitis/chronic fatigue (ME/CFS) is a post-infectious, chronic disease that can lead to severe impairment and, even, total disability. Although the disease has been known for a long time, and has been coded in the ICD since 1969 (G93.3), medical research has not yet...
https://thesciencebit.net/2021/08/15/the-new-nice-guideline-for-me-cfs-ten-questions-answered/
This has been posted already, but I thought deserves its own thread.
All points I think still essentially apply during the new guideline is paused.
"Treatment harms to patients with ME/CFS"
Quote:
- Despite evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), the dominant therapeutic approach has been cognitive behaviour therapy (CBT) and graded exercise therapy (GET)...
Copied and discussion moved from this thread:
NICE ME/CFS guideline - draft published for consultation - 10th November 2020
The Science Bit by Brian Hughes - No More Mr NICE Guy...
NICE’s verdict on psychosocial treatments for ME amounts to nothing less than an utter repudiation. That it...
Good intentions regularly lead to terrible outcomes. While researchers’ hearts may be pure, that fact alone does not guarantee that their works will be blessed.
In psychology, we sometimes talk about the “just-world fallacy”, the belief that in the end our collective actions will average out...
This post and several following have been moved from several different threads.
Article by prof Brian Hughes at his blog The Science Bit: Post-Covid syndrome, Myalgic Encephalomyelitis, and the recurring pseudoscience of mass hysteria
People with ME have been waiting decades for their...
This Thursday 24th October:
Autumn conference, with guest speaker Professor Brian Hughes from 2:30pm
All welcome, or watch the livestream on Sheffield ME And Fibromyalgia Group's Facebook page: https://www.facebook.com/SheffieldMEandFibromyalgiaGroup/
Prof Brian Hughes is Professor of...
https://thepsychologist.bps.org.uk/volume-31/october-2018/does-psychology-face-exaggeration-crisis
Seems to me that many of the things he talks about aren't exclusive to the psychology world.
Event:
Tuesday / 02 October 2018 7:00pm - Tuesday / 02 October 2018 9:00pm
Mourne Country Hotel
52 Belfast Road
Newry
BT34 1TR
https://www.communityni.org/event/pace-trial-one-greatest-scandals-21st-century
Edit: Video now on Facebook
Being too sick today to write the posts, hellos and welcome messages I would like to write, I instead asked the two nearest libraries to buy @Brian Hughes' Psychology in Crisis (just in case you don't know: most libraries have online forms for asking to buy a book ), and opened this thread...
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