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Articles by David F Marks

Discussion in 'General ME/CFS News' started by Kalliope, Mar 10, 2021.

  1. Kalliope

    Kalliope Senior Member (Voting Rights)

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    "Treatment harms to patients with ME/CFS"

    Quote:

    - Despite evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), the dominant therapeutic approach has been cognitive behaviour therapy (CBT) and graded exercise therapy (GET). Patients report distress and dissatisfaction following healthcare encounters based on GET and CBT. A significant body of research suggests that CBT and GET are harmful for many patients with ME/CFS. These findings raise ethical concerns and suggest that more collaborative working between scientists, therapists and patients would be helpful in making scientific progress in this difficult field.

    https://davidfmarks.com/2021/03/10/treatment-harms-to-patients-with-me-cfs/
     
    Last edited: Mar 11, 2021
    MSEsperanza, Atle, Esther12 and 39 others like this.
  2. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    A clear and concise overview that should be widely shared.
     
    Atle, cfsandmore, Ravn and 19 others like this.
  3. Kalliope

    Kalliope Senior Member (Voting Rights)

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    "Unhelpful beliefs do not cause ME/CFS and MUS symptoms"

    Quote:
    The Wessely School approach to ME/CFS and MUS hypothesizes a causative role for unhelpful beliefs (H1), deconditioning (H2), and biased attention (H3).

    The evidence related to these three hypotheses is reviewed in turn. Here I consider H1: that unhelpful beliefs cause, or exacerbate, the symptoms of ME/CFS and MUS.

    Future posts will review the evidence for H2 and H3.

    https://davidfmarks.com/2021/03/11/unhelpful-beliefs-do-not-cause-me-cfs-and-mus-symptoms/
     
    Atle, alktipping, cfsandmore and 12 others like this.
  4. Kalliope

    Kalliope Senior Member (Voting Rights)

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    "ME/CFS and deconditioning"

    Quote:
    A previous post examined the Wessely School hypothesis that ME/CFS is caused by unhelpful beliefs. This idea was exploded as a myth. Here I examine a second Wessely School hypothesis (H2) that states:

    Deconditioning causes, or exacerbates the symptoms of, ME/CFS and MUS


    https://davidfmarks.com/2021/03/12/me-cfs-and-deconditioning/
     
    Atle, alktipping, cfsandmore and 12 others like this.
  5. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    I think unhelpful beliefs do contribute to severity in ME - the unhelpful beliefs of therapists and psychiatrists!
     
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  6. Sean

    Sean Senior Member (Voting Rights)

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    It's projection all the way down with these clowns.
     
  7. Snow Leopard

    Snow Leopard Senior Member (Voting Rights)

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    ME/CFS and biased attention

    https://davidfmarks.com/2021/03/13/me-cfs-and-biased-attention/
     
    alktipping, Dolphin, Kalliope and 8 others like this.
  8. alex3619

    alex3619 Senior Member (Voting Rights)

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    I do not believe that they necessarily believe in their ideas. They do believe they can get away with their claims if they take certain strategies however. They have repeatedly persuaded the medical community for decades, and with no objective evidence of their mechanisms or improvements, while ignoring objective evidence of harms.
     
  9. Ravn

    Ravn Senior Member (Voting Rights)

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    Whether they do or don't believe their own ideas, this is the important - and damaging - bit:
    The medical community - and a substantive portion of the general population (mind over matter, you're in control of your own destiny, etc) plus politicians and government departments, basically everybody who can make our life a misery. Worse, many of them haven't just swallowed those ideas raw, they've become acolytes.
     
  10. alex3619

    alex3619 Senior Member (Voting Rights)

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    There does appear to be more than a bit of zeal for sure.
     
    alktipping and Ravn like this.
  11. Andy

    Andy Committee Member (& Outreach when energy allows)

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    Next article: ME/CFS and the Lightning Process
    Here I review research by the Wessely School on the Lightning Process (LP). LP is a pseudoscientific cult founded by Phil Parker, a Tarot reader, specialist in auras and spiritual guides, and an osteopath. It has triggered a spate of shoddy evidence and false claims that brings a new low level to the checkered history of ME/CFS research and care, and the Wessely School now at rock bottom.

    https://davidfmarks.com/2021/03/15/me-cfs-and-the-lightning-process/
     
  12. Sean

    Sean Senior Member (Voting Rights)

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    Love the image heading the article. :laugh:

    ------

    Author Lisa de Rijk, is a... ...change consultant,

    Now they are just taking the piss, to see what they can get away with. :thumbsdown:
     
  13. Barry

    Barry Senior Member (Voting Rights)

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    Would that be a small change consultant?
     
  14. Kalliope

    Kalliope Senior Member (Voting Rights)

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    New article: ME/CFS and the SMILE trial

    quote:
    Implications
    1. The SMILE trial contained one of the major methodological problems that occurred in the PACE trial – outcome swapping.
    2. The original outcome measure, school attendance at six months, yielded a null result.
    3. Repeating the errors of the PACE trial, the SMILE trial used self-reported physical function, a subjective outcome measure rather than an objective one.
    4. Media coverage reported the positive outcome (improved self-reported physical function) but tended to not mention the null result concerning school attendance.
    5. In seeing a distorted view of the findings, authorities in other countries such as Norway have been persuaded to run further trials on the Lightning Process and to recommend its use for pwME/CFS.
     
  15. Barry

    Barry Senior Member (Voting Rights)

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    "After reviewing results from the feasibility trial, the researchers swapped these outcome measures for the full trial"

    I guess we have come to understand what feasibility trials mean to BPS investigators ... assess the feasibility of reporting the most impressive looking outcomes, rather than reporting the most meaningful ones. You just peek halfway through your experiment (by some sleight of methodology or other) to make a "mid-course correction", diverting your results to where you want them to go, rather than to where the evidence takes you.
     
  16. Kalliope

    Kalliope Senior Member (Voting Rights)

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    New article:
    ME/CFS and CBT - a basic error


    Quote:
    In facing the mountain of invalidation that the Wessely School is having to endure, it has made the most basic error for any scientist: converting an inconclusive association into a conclusion of causation.
     
  17. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    eta:
     
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  18. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  19. MSEsperanza

    MSEsperanza Senior Member (Voting Rights)

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  20. Sean

    Sean Senior Member (Voting Rights)

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    Seems like Mr Aylward has a habit of getting things wrong:
    I do wonder how far this new found reflection and remorse extends. Is Long Covid also covered by this acknowledgment? Or is he going to shove that into the BPS basket?
     

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