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Reverend Joe Haward shares his experiences of having ME and explores the challenges patients face in getting the reality of their lives with the disease heard by professionals and those in positions of power...

https://www.vice.com/en/article/qjpywp/the-medical-system-should-have-been-prepared-for-long-haul-covid-patients-symptoms

"The Department of Health and Social Care marked International Women’s Day this year with the launch of a consultation, asking women in England to share their experiences of the ‘gender health gap’. It’s a welcome gesture, but it must be backed up by action – and cold hard cash – particularly...

"Treatment harms to patients with ME/CFS" Quote: - Despite evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), the dominant therapeutic approach has been cognitive behaviour therapy (CBT) and graded exercise therapy (GET)...

" Taking the dog for a walk is a routine task for most people. But Jessica Rafferty would often have to cut outings short due to crippling pain. She, like one in 10 women, lives with endometriosis - a condition where tissue similar to the lining of the womb grows elsewhere inside the body. It...

https://www.livestrong.com/article/13729946-chronic-fatigue-syndrome-exercise/ https://twitter.com/MEAssociation/status/1357696773742034945

https://www.theopennotebook.com/2021/01/26/how-to-report-with-accuracy-and-sensitivity-on-contested-illnesses/

Here's a compilation of some of the biggest media articles about ME from 2020. Let me know if you miss any articles, and I'll add them to the list :) Part 1. January Corriere Della Sera La ballerina senza più forze: "Io, malata di stanchezza cronica. Se mi lavo i capelli, non posso fare...

Merged thread: 'Stock photos are terrible at depicting illness' http://www.slate.com/articles/health_and_science/medical_examiner/2017/11/stock_photos_are_terrible_at_depicting_mental_and_physical_illness.html They are particularly deplorable for ME... More threads on this topic Psychosocial...

Moderator note: Use this thread to discuss the possibility of an ME/CFS or ME/CFS-like illness following Covid-19. Initial posts have been moved from the Coronavirus - world-wide spread and control thread. (Up to post #840 so far) *************** It's interesting that in the 2003 SARS...

My bolding https://thepolyphony.org/2020/09/29/shame-stigma-and-unexplained-symptoms/

Open access PDF via https://journals.lww.com/nursingmanagement/Citation/9000/Chronic_fatigue_syndrome.99765.aspx

A great Stat news article by David Tuller @dave30th Seeking the causes of post-Covid symptoms, researchers dust off data on college students with mononucleosis From 2014 to 2018, DePaul University psychologist Leonard Jason and colleagues collected personal information and blood samples from...

This thread includes posts from threads on articles in the New Yorker and the Guardian. Any new articles should be posted here. Quote from the New Yorker article: (https://www.newyorker.com/magazine/2020/09/14/susanna-clarkes-fantasy-world-of-interiors?) "She has been given various...

Anxious About ‘Re-Entering’ The World? You’re Not Alone. This Advice Will Make It Easier https://www.vogue.co.uk/beauty/article/re-entry-syndrome eta: bit of info; CP is the current president of the International Society of Psychoneuroendocrinology ( ispne.net)

full article https://www.express.co.uk/life-style/health/1324319/parkinsons-disease-symptoms-signs-feet-stiffness-foot-dystonia

More interesting stuff from Goodelf, a two part article on MUS https://opposingmega.wordpress.com/2020/08/19/so-what-if-23-get-worse-2/ Part 1: The PCPCS – a ‘One Door’ Approach to MUS By Goodelf https://opposingmega.wordpress.com/2020/08/19/so-what-if-23-get-worse/ Part 2: One Door, One...

Interesting essay 4,900 words long. full essay here https://aeon.co/essays/the-rest-cure-challenges-cherished-myths-about-a-working-body?utm_medium=feed&utm_source=rss-feed

https://www.statnews.com/2020/07/21/chronic-fatigue-syndrome-keys-understanding-post-covid-syndrome/

https://www.mdpi.com/2227-9032/8/3/211 (This article belongs to the Special Issue ME/CFS – the Severely and Very Severely Affected)