https://www.express.co.uk/life-style/health/1535717/chronic-fatigue-syndrome-symptoms-feeling-tired-all-the-time
If only the NHS website had some decent info on it:banghead:
Authored by Amberley Davis · Reviewed by Dr Sarah Jarvis MBE11-Dec-21 · 7 mins read
https://patient.info/news-and-features/why-is-mecfs-research-key-to-understanding-long-covid
drsarahjarvis is on twitter as is @patient.
could someone maybe ask why ,as pointed out in the new NICE...
Another fantastic article by Ed Yong, on the abysmal experience of health care workers dealing with gaslighting and denial from their colleagues. Very similar to Royal Free and other outbreaks, just on a much larger scale.
It seems that health care workers do not like being treated like they...
Title : Medicine is Political
Link : https://www.fast.ai/2021/10/12/medicine-political/
Article mentions ME/CFS and Covid as well as some other conditions.
Opening paragraph :
Garbage article from The Times that uses ME as a punching bag and misrepresents everything.
https://www.thetimes.co.uk/article/my-mother-munchausens-and-me-by-helen-naylor-review-7v8ts3w77
However, starting abruptly in 1991, when Elinor was in her thirties and Naylor was seven, her mother...
I thought this was particuarly interesting that he says he was given 'the wrong advice' and told it was ok to train when he was still sick, and which meant he was sick for much longer. There is also a clear distinction between a) the original virus, and b) his depression.
He also makes the...
BBC article, "The race to understand 'immune amnesia'"
ETA: Added link that I originally overlooked to include, and @Arnie Pye kindly sorted for me, but thought I'd better include in this post anyway.
https://www.bbc.com/future/article/20211112-the-people-with-immune-amnesia
"When therapy causes harm" (2008)
Somebody drew my attention yesterday to this article from 2008. Doesn't discuss ME/CFS so not important but I found it of general interest
Quote:
A government contractor has paid out “substantial” compensation following the death of a young mother who took an overdose after her disability benefits were removed.
Philippa Day, 27, a single mother from Nottingham who had longstanding mental health issues, died in hospital in October...
https://www.nytimes.com/2021/10/23/opinion/lyme-disease-chronic-illness.html
Ross Douthat is a columnist for The NY Times. He is both a political and religious conservative. He contracted Chronic Lyme disease and wrote a book about it (he has mostly recovered). This column is an excerpt from...
Quote:
An innovative type of medicine - called gene silencing - is set to be used on the NHS for people who live in crippling pain.
The drug treats acute intermittent porphyria, which runs in families and can leave people unable to work or have a normal life.
Clinical trials have shown severe...
Alice Hattrick is an author who lives with ME/CFS and has recently published the book "Ill Feelings".
Alice Hattrick was aged eight when their mother collapsed with mycoplasma pneumonia. The author – who prefers the gender-neutral pronoun “they” – found her on the kitchen floor at their home in...
"Some experts say it's a major issue for sufferers while others say that it has been confused with other conditions – so what’s the truth?"
https://www.telegraph.co.uk/health-fitness/body/long-covid-overblown/
"For the past year, as she oversaw Facebook’s flagship app and then made the jump to Instacart this summer, Simo has been quietly helping get a new women’s health startup off the ground. The Metrodora Institute, a for-profit clinic with a non-profit foundation devoted to research and advocacy...
paywalled
https://www.telegraph.co.uk/health-fitness/doctors-diary/became-target-militants/
How I became a target for the ME militants
The current row over Nice guidelines on chronic fatigue syndrome is strikingly similar to the one I found myself caught up in 20 years ago
DR MICHAEL...
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