article

https://journalofethics.ama-assn.org/article/importance-listening-treating-invisible-illness-and-long-haul-covid-19/2021-07

Link to article in today's Guardian. A topic that resembles aircraft circling yet never landing . https://www.theguardian.com/commentisfree/2021/jun/24/covid-vulnerable-life-death-toll-old-disabled

full article here: https://www.theguardian.com/commentisfree/2021/jun/21/long-covid-recovery-coronavirus eta: note: there appears to be a 'bastardized' version of this article, presumably created by bots, circulating. (the one I've spotted is from NZ).

This is the kind of issue that makes physicians roll their eyes, which is exactly why it is important to discuss as it can't be fixed from the outside. Technically with the backdrop of Long Covid but it's a general discussion...

https://www.nytimes.com/2021/05/28/opinion/alzheimer-treatment-FDA-aducanumab.html?action=click&module=Opinion&pgtype=Homepage They’ve spent billions on Alzheimer’s and sounds like they still have nothing. Worth reading even though it’s not about MECFS.

Medscape: Pandemic Boosts Care for Serious Illnesses at Home Yet another silver-lining of COVID for those of use with ME/CFS? I already get primary care in my own home (including blood draws) and have even been able to get an ultrasound in my bedroom. But to be able to avoid hospital stays in...

https://www.cambridge-news.co.uk/news/health/me-cfs-personal-story-20562798 Another local article with Dr Mark Harper, chair of the Cambridge ME support group. He seems to be doing a great job at reaching out. The article is quite long and first focuses on his own personal story with ME/CFS...

full article here https://uk.sports.yahoo.com/news/mysterious-condition-leaving-women-home-043200000.html

Article looking at effect of exercise on older females with RA. Not much of a study, but interesting Why Exercise Can Be So Draining for People With Rheumatoid Arthritis - The New York Times (nytimes.com)

The Guardian: Long Covid is very far from 'all in the mind' - but psychology can still help us treat it by Carmine M Pariante - Carmine M Pariante is professor of biological psychiatry at King’s College London and editor of the blog platform Inspire the Mind Quote: This point is particularly...

Column (paywalled) by James Marriott in The Times. https://www.thetimes.co.uk/article/lets-end-the-stigma-of-psychosomatic-illness-whfdlwhph Anyone know whether that 'a third of outpatients...' is right? Or where it's from? @dave30th perhaps? I think the article shows what we're up against...

"Medicine is a practice built on trust—from patients and from society in general—and this is especially true for psychiatry, in which trust has been forfeited in the past. Transparency is the foundation stone of trust. In research, this can be manifest at various stages. Clinical trials and...

Hospital, BBC 1, 19 March 2020 FND not ME On now, this is covering FND

https://www.thetimes.co.uk/article/the-sleeping-beauties-by-suzanne-o-sullivan-review-29kq7wdtb Interesting article by Whipple on a book by Suzanne Sullivan. Essentially Whipple accepts Sullivan's claim that there are illnesses due to the idea of having the illness. The clearest example is...

I'm a bit late sharing this, since it was published on March 8, and I keep forgetting to post! But I really enjoyed this essay written by @Michelle : https://www.hippocampusmagazine.com/2021/03/salisbury-steak-day-by-michelle-strausbaugh/

By Litsa Dremousis "As is true for many disabled Americans, my health-care costs resemble pipe bombs that keep blowing up my bank account, leaving it a pile of smoldering ash. As such, I can’t afford a house. Like many disabled Americans, I live in a multiunit dwelling where the majority of my...

Reverend Joe Haward shares his experiences of having ME and explores the challenges patients face in getting the reality of their lives with the disease heard by professionals and those in positions of power...

https://www.vice.com/en/article/qjpywp/the-medical-system-should-have-been-prepared-for-long-haul-covid-patients-symptoms

"The Department of Health and Social Care marked International Women’s Day this year with the launch of a consultation, asking women in England to share their experiences of the ‘gender health gap’. It’s a welcome gesture, but it must be backed up by action – and cold hard cash – particularly...

"Treatment harms to patients with ME/CFS" Quote: - Despite evidence of physiological and cellular abnormalities in myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS), the dominant therapeutic approach has been cognitive behaviour therapy (CBT) and graded exercise therapy (GET)...