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  1. JemPD

    The i newspaper: CFS how online abuse is halting research

    Jst scanning the front pages this mornin, to be sucker punched with this. i cant find the story online but i not too good so maybe someone ese can track it dowm https://www.bbc.co.uk/news/blogs-the-papers-47701676 scroll down to see it, bottom thumb nal on the i front page :(
  2. R

    #MEAction: A response to Dr Mark Porter’s article about ME in The Times

    https://www.meaction.net/2019/03/25/a-response-to-dr-mark-porters-article-about-me-in-the-times/ I actually started writing the article as a post on S4ME but as it got longer I decided to submit it as an article for #MEAction. If you feel I’ve overlooked anything I should have mentioned, or...
  3. Sly Saint

    Independent (Ireland), 'It felt like I had a bad virus and a hangover', March 2019, LP in the news again

    Not a recommendation. Article in the Independent.ie (Ireland)............. Although you think they would have checked the spelling "When researching alternate treatments for CFS, McTiernan came across The Lightening Process."...
  4. Jonathan Edwards

    The Bigger Picture

    The Guardian today carries a piece that includes: Radical changes are needed because the NHS will not be able to train enough homegrown GPs or recruit the numbers needed from overseas to surmount the growing shortfall, said Richard Murray, chief executive of the King’s Fund. “We can’t GP our...
  5. Andy

    Disabled People Against Cuts: Biopsychosocial lobby and right wing media attack #pwme

    https://dpac.uk.net/2019/03/biopsychosocial-lobby-and-right-wing-media-attack-pwme/
  6. Cheshire

    The Guardian - Rod Liddle vilifies disabled people. I’m tired of the hate. We all should be (2019) Frances Ryan

    https://www.theguardian.com/commentisfree/2019/mar/19/rod-liddle-disabled-people-hate-media-me
  7. Andy

    M.E. Patients and the Researchers that Silence Them by Laura Elliott

    https://medium.com/@lcelliott2/m-e-patients-and-the-researchers-that-silence-them-c2b81111ee0
  8. rvallee

    Threats, cyber-bullying now targeting scientists who study Chronic Fatigue Syndrome… when will free speech about science be allowed to exist again?

    I hesitate to put "not a recommendation" because the article is so bad it almost makes some kind of other point than the PR campaign meant. When you have allies like Natural News and Rod Liddle... It's completely pointless to read for the substance, it almost reads like a parody. I particularly...
  9. Sly Saint

    Why ME, or yuppie flu, is like Aids was once – misunderstood or dismissed as not real, and ignored by most doctors (Jul 2018)

    From last year but don't think it was posted. From the South China Morning post. https://www.scmp.com/lifestyle/health-wellness/article/2157439/why-me-or-yuppie-flu-aids-was-once-misunderstood-or also covers #MillionsMissing, Ron Davis, OMF shame we don't get coverage like this in UK. eta:
  10. Andy

    Steve Topple: The media is waging a coordinated war against chronically ill and disabled people

    https://mrtopple.com/2019/03/18/the-media-is-waging-a-coordinated-war-against-chronically-ill-and-disabled-people/
  11. Andy

    Independent: Father attempted suicide and family almost lost home after GP missed common genetic condition for six years

    https://www.independent.co.uk/news/health/haemochromatosis-me-cfs-blood-disorder-genetic-condition-peter-king-a8814946.html
  12. T

    Rod Liddle in the Times: "Always fatigued — yet they never tire of claiming their malady really is a virus"

    I'd put this in a different section, like Advocacy Alerts, or something, but outside of 'ignore this' I'm not sure what action the alert would entail. A lot of people probably should avoid this, as this guy is, along with Edward Shorter, arguably the most abrasive pundit who's ever written a...
  13. Cheshire

    CORRESPONDENCE The PACE trial of treatments for chronic fatigue syndrome: a response to WILSHIRE et al (2019) Sharpe, Goldsmith & Chalder

    Open Access Article here
  14. Kalliope

    Denmark: Newspaper Politiken on PACE and the Cochrane review - David Tovey interviewed.

    Den syge på Fanø: Skal de kronisk trætte træne? google translation: The patient at Fanø: Should the chronically tired exercise? Please look beyond the dreadful title, as the article itself is rather good. Contains interview with David Tovey and the director of the National Board of Health...
  15. Andy

    Blog: Is IAPT ‘too big to fail?’

    http://therapymeetsnumbers.com/is-iapt-too-big-to-fail/
  16. large donner

    BBC article: UK government cuts pensioners PIP checks, but puts more pressure on disabled people to work.

    https://www.bbc.co.uk/news/uk-47443955 Disabled pensioners will no longer face "unnecessary" repeat assessments to continue receiving benefits, the work and pensions secretary will announce. From this spring, about 270,000 people will not have personal independence payments (PIPs) regularly...
  17. Andy

    The Times [UK]: We’ve forgotten the vital need to convalesce

    Sign-up wall at https://www.thetimes.co.uk/article/we-ve-forgotten-the-vital-need-to-convalesce-qlrnzl95d
  18. Andy

    Motivated Reasoning Is Disfiguring Social Science

    A very familiar story. https://quillette.com/2019/02/23/motivated-reasoning-is-disfiguring-social-science/
  19. H

    'In pain all the time': will there ever be a cure for chronic, life-changing UTIs?

    https://www.theguardian.com/society/2019/feb/20/in-pain-all-the-time-will-there-ever-be-relief-for-women-with-chronic-life-changing-utis
  20. Andy

    Move clinical trial data sharing from an option to an imperative

    https://www.statnews.com/2019/02/19/data-sharing-imperative-clinical-trials/
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