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  1. Kitty

    UK: Long Covid story in Guardian newspaper

    Watch this video earlier of a guy talking about his experience of long Covid. It's quite emotional in places. It also makes clear that he's being encouraged to do low-level exercise by an NHS clinic, and he's trying to do it because he so much wants to get better. I think it's really effective...
  2. Sly Saint

    Chemistry world - Battling long Covid with drugs

    Long article Clare Sansom is a science writer based in Cambridge, UK https://www.chemistryworld.com/features/battling-long-covid-with-drugs/4018238.article
  3. Sly Saint

    French research centre behind controversial Covid paper found to have used questionable ethics processes

    French research centre behind controversial Covid paper found to have used questionable ethics processes | Coronavirus | The Guardian
  4. Sly Saint

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    See also News from Scotland _________________ Moved from the News from the MEA thread. not news from MEA as such; but anyone know about this person https://www.wandabelisle.com/ according to her website " FEATURED on
  5. Sly Saint

    How long before the misery of ME is taken seriously? and Money’s the motive for calling ME a myth - Sophie Palmer

    BySophie Palmer - May 18, 2023 https://www.conservativewoman.co.uk/how-long-before-the-misery-of-me-is-taken-seriously/
  6. E

    Functional Neurological Disorders - discussion thread

    Trial By Error: Shaky Evidence for Signs of Functional Neurological Disorders http://www.virology.ws/2019/12/30/trial-by-error-shaky-evidence-for-signs-of-functional-neurological-disorders/ 30 December 2019 By David Tuller, DrPH One of my goals next year is to write more about so-called...
  7. Sly Saint

    Article in Time: Long COVID Isn't the Only Post-Viral Illness

    https://time.com/6240058/post-viral-illnesses-common-long-covid/
  8. Kalliope

    The Atlantic - Long COVID Has Forced a Reckoning for One of Medicine's Most Neglected Diseases - by Ed Yong

    - Only a couple dozen doctors specialize in chronic fatigue syndrome (ME/CFS). Now their knowledge could be crucial to treating millions more patients. https://www.theatlantic.com/health/archive/2022/09/mecfs-chronic-fatigue-syndrome-doctors-long-covid/671518/
  9. T

    "Scientists hail autoimmune breakthrough" - the Guardian

    I don't know if this has been posted elsewhere but I thought it was very interesting. I wonder if something like this might end up being helpful for a subset of pwME... https://www.theguardian.com/science/2022/sep/15/scientists-hail-autoimmune-disease-therapy-breakthrough-car-t-cell-lupus "In...
  10. Sly Saint

    The key to demystifying long COVID-19 could come from studying another chronic condition : Article: Chicago Tribune: Leonard Jason

    https://www.chicagotribune.com/opinion/commentary/ct-opinion-chronic-fatigue-syndrome-long-covid-19-20220912-42gktniwobbcbblcbs56l6r7zu-story.html
  11. Kalliope

    The Pharmaceutical Journal: Chronic fatigue: it is time to take its treatment more seriously - by Christine Parry

    Quotes: “One in four consultations in primary care involve fatigue — it’s the most common reason why people go to see their GP,” says Julia Newton, a consultant physician with an interest in fatigue at Newcastle upon Tyne Hospitals NHS Foundation Trust. At least 250,000 people in the UK live...
  12. Sly Saint

    an ‘invisible’ illness that benefits from a relationship-based care approach – BJGP Life, 2022

    (Chew Graham is one of the authors) full article here https://bjgplife.com/chronic-fatigue-syndrome-myalgic-encephalomyelitis-an-invisible-illness-that-benefits-from-a-relationship-based-care-approach/ Edit: This article is based on research by the same authors discussed here: A...
  13. Arnie Pye

    Physical fatigue is in the brain as much as in the body, 2022, Robson

    An article from the website Psyche that didn't deserve it's own thread so I hope a mod will move it to where it should have been put. Title : Physical fatigue is in the brain as much as in the body Link : https://psyche.co/ideas/physical-fatigue-is-in-the-brain-as-much-as-in-the-body...
  14. Sly Saint

    BBC article: Specialist mental health unit failures exposed by patients

    https://www.bbc.co.uk/news/uk-59964353
  15. Sly Saint

    Psychology today: Post-Infection Illness

    by Ilene S. Ruhoy M.D., Ph.D. Your Neurology https://www.psychologytoday.com/gb/blog/your-neurology/202201/post-infection-illness
  16. Wyva

    Physician's Weekly: Why Patient Advocacy Is Important Without Being Hated, 2018, Girgis

    As you can see, this is not a new article but I thought it was worth sharing. Written by a family physician. Not really about ME/CFS but this general attitude would be really beneficial for us too of course. “I don’t know.” It’s an answer patients hate to hear. It is also an answer we doctors...
  17. Sly Saint

    Comedians could be prescribed on NHS to help patients struggling with trauma: Bristol Uni

    Article in Mirror; https://www.mirror.co.uk/news/uk-news/comedians-could-prescribed-nhs-help-25831867
  18. Wyva

    Benefit Concert For OH Singer To Feature Cold Play's Chris Martin

    More than 25 musicians from around the country will come together Friday, Jan. 7, 2022 to present "A Love Song for Hal," a live-streamed benefit concert that will raise money to support beloved Ohio musician, Hal Walker, in his battle with myalgic encephalomyelitis/chronic fatigue syndrome...
  19. Andy

    BBC Article: Long Covid: 'I have to choose between walking and talking'

    Copied post Long Covid: 'I have to choose between walking and talking', https://www.bbc.co.uk/news/uk-england-beds-bucks-herts-59584146
  20. Kalliope

    News from Scotland

    The Scottish Health Department has posted an interim statement advising caution over the suitability of Graded Exercise Therapy (GET) in treating ME/CFS and has reiterated the earlier statement from NICE cautioning against use of GET in Post/Long-Covid. Following a review of the evidence behind...
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