Watch this video earlier of a guy talking about his experience of long Covid.
It's quite emotional in places. It also makes clear that he's being encouraged to do low-level exercise by an NHS clinic, and he's trying to do it because he so much wants to get better.
I think it's really effective...
Long article
Clare Sansom is a science writer based in Cambridge, UK
https://www.chemistryworld.com/features/battling-long-covid-with-drugs/4018238.article
See also News from Scotland
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Moved from the News from the MEA thread.
not news from MEA as such; but anyone know about this person https://www.wandabelisle.com/
according to her website "
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Trial By Error: Shaky Evidence for Signs of Functional Neurological Disorders
http://www.virology.ws/2019/12/30/trial-by-error-shaky-evidence-for-signs-of-functional-neurological-disorders/
30 December 2019
By David Tuller, DrPH
One of my goals next year is to write more about so-called...
- Only a couple dozen doctors specialize in chronic fatigue syndrome (ME/CFS). Now their knowledge could be crucial to treating millions more patients.
https://www.theatlantic.com/health/archive/2022/09/mecfs-chronic-fatigue-syndrome-doctors-long-covid/671518/
I don't know if this has been posted elsewhere but I thought it was very interesting. I wonder if something like this might end up being helpful for a subset of pwME...
https://www.theguardian.com/science/2022/sep/15/scientists-hail-autoimmune-disease-therapy-breakthrough-car-t-cell-lupus
"In...
Quotes:
“One in four consultations in primary care involve fatigue — it’s the most common reason why people go to see their GP,” says Julia Newton, a consultant physician with an interest in fatigue at Newcastle upon Tyne Hospitals NHS Foundation Trust.
At least 250,000 people in the UK live...
(Chew Graham is one of the authors)
full article here
https://bjgplife.com/chronic-fatigue-syndrome-myalgic-encephalomyelitis-an-invisible-illness-that-benefits-from-a-relationship-based-care-approach/
Edit:
This article is based on research by the same authors discussed here:
A...
An article from the website Psyche that didn't deserve it's own thread so I hope a mod will move it to where it should have been put.
Title : Physical fatigue is in the brain as much as in the body
Link : https://psyche.co/ideas/physical-fatigue-is-in-the-brain-as-much-as-in-the-body...
As you can see, this is not a new article but I thought it was worth sharing. Written by a family physician. Not really about ME/CFS but this general attitude would be really beneficial for us too of course.
“I don’t know.”
It’s an answer patients hate to hear. It is also an answer we doctors...
More than 25 musicians from around the country will come together Friday, Jan. 7, 2022 to present "A Love Song for Hal," a live-streamed benefit concert that will raise money to support beloved Ohio musician, Hal Walker, in his battle with myalgic encephalomyelitis/chronic fatigue syndrome...
The Scottish Health Department has posted an interim statement advising caution over the suitability of Graded Exercise Therapy (GET) in treating ME/CFS and has reiterated the earlier statement from NICE cautioning against use of GET in Post/Long-Covid.
Following a review of the evidence behind...
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