1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 8th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

The Pharmaceutical Journal: Chronic fatigue: it is time to take its treatment more seriously - by Christine Parry

Discussion in 'General ME/CFS news' started by Kalliope, Jul 17, 2022.

Tags:
  1. Kalliope

    Kalliope Senior Member (Voting Rights)

    Messages:
    6,274
    Location:
    Norway
    Quotes:

    “One in four consultations in primary care involve fatigue — it’s the most common reason why people go to see their GP,” says Julia Newton, a consultant physician with an interest in fatigue at Newcastle upon Tyne Hospitals NHS Foundation Trust.

    At least 250,000 people in the UK live with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), and self-reported data indicate that 50% of people with chronic conditions — such as rheumatoid arthritis, cancer, Parkinson’s disease, or multiple sclerosis (MS) — struggle with tiredness[1–3]. “Despite that, there’s very little research,” points out Newton.

    ...

    There are currently no approved pharmacological or non-pharmacological interventions for chronic fatigue; the 2021 revision of the National Institute for Health and Care Excellence’s (NICE’s) guidance for managing ME/CFS removed a previously recommended therapy — graded exercise therapy (GET), a programme of fixed, incremental increases in exercise — and downscaled the scope of another — cognitive behavioural therapy (CBT) — because a re-evaluation of the evidence base for these therapies failed to show meaningful benefit.

    ...

    We talk about the three Ps approach — prioritising, planning, and pacing,” says Rachel Rogers, a fatigue specialist occupational therapist at the long COVID clinic based at Churchill Hospital, Oxford, and clinical lead for Oxfordshire’s ME/CFS service. Rogers describes the patient journey for someone presenting with long COVID fatigue.


    ...

    The article also lists several ongoing research projects

    https://pharmaceutical-journal.com/...-is-time-to-take-its-treatment-more-seriously
     
    Kalliope, Jul 17, 2022
    #1
    MEMarge, hellytheelephant, Sean and 5 others like this.
  2. Arnie Pye

    Arnie Pye Senior Member (Voting Rights)

    Messages:
    6,088
    Location:
    UK
    Yet another article which conflates tiredness with fatigue, and chronic fatigue with ME/CFS. :banghead:
     
    Arnie Pye, Jul 17, 2022
    #2
    hellytheelephant, sebaaa, Milo and 15 others like this.
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,582
    Location:
    UK
    1 comment
     
    Sly Saint, Jul 17, 2022
    #3
    hellytheelephant, sebaaa, Lisa108 and 14 others like this.
  4. Hutan

    Hutan Moderator Staff Member

    Messages:
    26,850
    Location:
    Aotearoa New Zealand
    That's a dispiriting article all round.

    There's Julia Newton who has contributed as much to the confusion between chronic fatigue and ME/CFS as anyone talking about new horizons:
    Perhaps if she had done her 2011 study properly and not suggested ME/CFS could be fixed with more physical activity we'd be a bit further ahead now:
    Physical activity intensity but not sedentary activity is reduced in CFS and is associated with autonomic regulation, 2011, Newton et al
    Why on earth is she participating in any discussion on how to make things better for people with ME/CFS? She contributed to the problem; as far as I can see, she still does in her Fatigue Clinic. She should not be part of the solution.

    And then there's the list of treatments being trialled, with a high concentration of quackery, including this trial of a commercial device funded by the NIHR:
     
    Hutan, Jul 17, 2022
    #4
    hellytheelephant, cfsandmore, EzzieD and 8 others like this.

Share This Page