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Unrest - reviews and general articles

Discussion in 'General ME/CFS News' started by Sly Saint, Nov 12, 2017.

  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    Last edited: Nov 13, 2017
  2. Barry

    Barry Senior Member (Voting Rights)

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  3. MErmaid

    MErmaid Senior Member (Voting Rights)

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  4. Kalliope

    Kalliope Established Member (Voting Rights)

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  5. Esther12

    Esther12 Senior Member (Voting Rights)

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  6. Esther12

    Esther12 Senior Member (Voting Rights)

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    The article can be accessed if you turn scripts off on that page. It's not very good or interesting, but could be worth. Probably not worth reading imo.

    It looks like it is written from an Indian perspective.

    edit - Here's the intro and conclusion:

     
    Last edited: Nov 14, 2017
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  7. Kalliope

    Kalliope Established Member (Voting Rights)

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    Thank you @Esther12 I saw it shared by Unrest on twitter, so thought it might be about the film.
     
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  8. TiredSam

    TiredSam Moderator Staff Member

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    Stupidest picture ever, and that's saying a lot. Haven't read the article and can't be bothered working out how to. Probably trivial fluff anyway. The first words annoyed me - "a little-known condition" - it wouldn't be so little-known if they'd done an article on it 30 years ago.
     
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  9. Valentijn

    Valentijn Moderator Staff Member

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    It looks like she's laying on a small boat covered with fishing nets which has washed up on the shore. I think she's pretending to be a dehydrated mermaid, no doubt knocked unconscious by whatever gave her that sunset-colored black eye :emoji_fish::emoji_surfer::blackeye:
     
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  10. Little Bluestem

    Little Bluestem Senior Member (Voting Rights)

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    That six-step fatigue fix looks like they are talking about chronic fatigue/overwork, not chronic fatigue syndrome. They are talking about a teen-ager whose days included six hours of violin practice. She probably just wore herself out.
     
  11. MErmaid

    MErmaid Senior Member (Voting Rights)

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  12. Little Bluestem

    Little Bluestem Senior Member (Voting Rights)

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    How wonderful that Unrest has been certified for continuing education credits for doctors! :bookworm:
     
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  13. MarcNotMark

    MarcNotMark Senior Member (Voting Rights)

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    Article in one of the main Dutch national newspapers "De Volkskrant" about unrest:
    Chronisch vermoeidheidssyndroom ME is geen 'yuppiegriep' (CFS isn't yuppy-flu)

    The author quotes Jennifer Brea and explains why CBT, GET and PACE are bad so it's a positive article for uninformed readers. :thumbup:

    https://www.volkskrant.nl/opinie/ch...hash=724b1eb54ec880d12072378e85319d2149341536

    It's members only but I'm able to read it (it seems the first article is free).
     
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  14. Solstice

    Solstice Established Member

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    A young woman films herself while lying on a wooden floor. It is dark, the image grainy. She tries to get up. Her breathing is heavy from the effort. It does not work. Later in the room there is a bed. She tries again, drags herself through the room and climbs on the blankets, panting. She falls down exhausted.

    This is how the impressive documentary Unrest, which premiered at the Sundance Film Festival earlier this year, recently appeared in the Netherlands via iTunes or Vimeo. The woman in question is called Jennifer Brea, and has myalgic encephalomyelitis (ME, also called chronic fatigue syndrome). "As long as I can remember, I wanted to swallow the whole world. I dreamed of places I wanted to visit and things that I would see. " She traveled a lot, was engaged to her big love, to the promotion.

    And then she became ill. She did not recover after a severe fever attack. "I went to the kitchen to get a glass of water and could not move afterwards," she says in the film. Extreme exhaustion after exercise is the most characteristic symptom of ME. Millions of people worldwide suffer from the disease.

    Little is known about the cause; relatively little money is being spent on research. In Unrest some doctors speak who think that ME is an immune disorder. This year two studies of research groups appeared that found that the cells of people with chronic fatigue produce less energy than usual. 'It is definitely a physiological effect that we observe, and not psychosomatic', an involved scientist in the British magazine New Scientist emphasized.

    Yet many people think that ME is not a real disease. Brea shows television fragments in her film. In the first it is called the 'yuppie flu'. Another: "Some think it is a fabricated condition." A comedian: "So somebody was collecting for ME last. That is the one of: no sense to work today. " The word 'hysteria' falls.

    The fact is that most doctors think that ME is a psychological problem

    Brea says that at first she was told that her exhaustion and pain were between the ears. Maybe she suffered from an old trauma, suggested a neurologist, or stress. Such an experience is the rule rather than the exception among people with ME. Brea thinks that gender has to do with it. About 85 percent of patients are women. "I wonder if that's why they do not believe us."

    The fact is that most doctors think that ME is a psychological problem. Experts came up with a theory about twenty years ago: these people suffer from the misguided belief that they have a medical condition. As a result, they take a lot of rest and they suffer from 'deconditioning' - they are grandiose out of shape, so to speak. So they themselves, unconsciously, caused their ailment and keep it themselves. 'A quarter of us are bound at home or bedridden', says Brea. "And yet we have to live with this stigma."

    17 Nov
    [​IMG]Asha ten Broeke

    ✔@ashatenbroeke

    Replying to @ashatenbroeke
    Bronnen (1/2):
    De documentaire 'Unrest' https://www.unrest.film/
    Cellen bij ME produceren minder energie https://www.newscientist.com/article/2152357-blood-cells-in-chronic-fatigue-syndrome-are-drained-of-energy/ …https://www.newscientist.com/article/2121162-metabolic-switch-may-bring-on-chronic-fatigue-syndrome/ …
    Linda van Campen over deconditionering https://www.youtube.com/watch?v=SP-8O6lczcQ …


    [​IMG]Asha ten Broeke

    ✔@ashatenbroeke


    Bronnen ea interessante links (2/2):
    Over de behandeling van ME https://undark.org/2017/07/26/cdc-chronic-fatigue-graded-exercise/ …https://undark.org/article/chronic-fatigue-graded-exercise-pace/ … https://www.medischcontact.nl/opinie/blogs-columns/blog/ongemakkelijke-onwaarheden.htm …https://www.medischcontact.nl/opinie/blogs-columns/blog/-cvsme-nog-meer-ongemakkelijke-onwaarheden-.htm …https://www.medischcontact.nl/opinie/blogs-columns/blog/cvsme-de-non-dialoog.htm …https://www.nytimes.com/2017/03/18/opinion/sunday/getting-it-wrong-on-chronic-fatigue-syndrome.html …http://journals.sagepub.com/doi/full/10.1177/1359105317722370 …https://www.coyneoftherealm.com/blogs/news/what-to-look-for-in-the-special-issue-of-journal-of-health-psychology-concerning-the-pace-trial …

    10:14 AM - Nov 17, 2017
    [​IMG]
    Opinion | Getting It Wrong on Chronic Fatigue Syndrome
    The standard therapies have been largely useless.

    nytimes.com


    The treatment consists, according to theory, of behavioral therapy that patients must learn to have 'better' thoughts about their condition; that their complaints do not come from a physical illness, that they can do anything, that recovery is possible.

    In addition, there is graded excercise therapy, which means that someone with ME should slowly become more and more active, in order to get in shape again.

    ME patients soon reported that the treatment often did not work or was counterproductive. Many doctors put that aside with an appeal to a major British study that would prove its effectiveness. But on closer inspection it turned out to be as leaky as a basket; the scientists had tampered with the figures, so they had noticed improvement that had not occurred.

    What scares me to death is that you can disappear because someone tells you the wrong story about you

    Jennifer Brea
    New research suggests that deconditioning is not the issue. Like that of cardiologist Linda van Campen, who said after the screening of Unrest in the LUMC: 'So a kick under your ass, just do more and it will all go away: bullshit.'

    This is what stigma does. It leads to inadequate treatments, lack of research money and a collective disbelief that makes the suffering of people with ME invisible.

    "Illness does not scare me, and death does not scare me," Brea says in her film. "What scares me to death is that you can disappear because someone tells you the wrong story about you."

    Google translated version.
     
  15. Esther12

    Esther12 Senior Member (Voting Rights)

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    Just saw this:



    No idea what Dr Oz is like, but he's got millions of followers on twitter, so it's certain to get quite some reach.
     
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  16. MErmaid

    MErmaid Senior Member (Voting Rights)

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    I watched Dr Oz on television for a few years, and also heard him speak. Depending on who else he brings on his show, to offer an opposing viewpoint, this could be a big win for ME awareness in the US.

    Now I can tell my family and friends to watch Dr Oz in December so they can learn more about the “hidden health crisis”.

     
    Last edited: Nov 21, 2017
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  17. Valentijn

    Valentijn Moderator Staff Member

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    He's ... nice. And very good at dumbing things down. A bit too good, perhaps :p He has a tendency to promote a lot of things without a good evidence base, but he'll treat his guests and topics very compassionately.

    It looks like he's covered it several times, but has simplified it. Eg, applies to women, focuses on fatigue. But he has had good guests for ME/CFS over the past couple years, and based on Jen's past performances, she'll do a great job of covering the nuances which he misses.
     
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  18. Sasha

    Sasha Senior Member (Voting Rights)

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    And if it encourages people to see the movie, that would be terrific. This Dr Oz appearance seems like a big win to me.
     
  19. MErmaid

    MErmaid Senior Member (Voting Rights)

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    @Sly Saint
    Do we have a thread to post personal reviews of Unrest?
     
  20. MErmaid

    MErmaid Senior Member (Voting Rights)

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    Okay. BTW, I copied your patented S4ME logo from your signature, but altered it slightly. So I hope you don’t threaten to sue me for patent infringement :emoji_smile: :emoji_money_mouth:
     
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