Unrest - reviews and general articles

When Fatigue Disables - Newcastle Herald Australia
Chronic fatigue syndrome documentary UNREST to screen in Newcastle
10 Nov
http://www.theherald.com.au/story/5046070/when-fatigue-disables/

 

http://junkee.com/unrest-film-review-chronic-fatigue/134924

 

Seems to be a cover in Vogue
Chronic fatigue syndrome: The invisible disease affecting millions of women

Haven't read the article as it is behind paywall, but it certainly had a new approach for illustrative picture.

Spot on for me, at least..

 

I suspect Sci Hub is not going to be able to help with Vogue articles.

 

The article can be accessed if you turn scripts off on that page. It's not very good or interesting, but could be worth. Probably not worth reading imo.

It looks like it is written from an Indian perspective.

edit - Here's the intro and conclusion:

 

Thank you @Esther12 I saw it shared by Unrest on twitter, so thought it might be about the film.

 

It looks like she's laying on a small boat covered with fishing nets which has washed up on the shore. I think she's pretending to be a dehydrated mermaid, no doubt knocked unconscious by whatever gave her that sunset-colored black eye

 

That six-step fatigue fix looks like they are talking about chronic fatigue/overwork, not chronic fatigue syndrome. They are talking about a teen-ager whose days included six hours of violin practice. She probably just wore herself out.

 

Huffington Post
A Movie David Goes Against a Goliath of a Disease

https://www.huffingtonpost.com/entr...iath-of-a-disease_us_5a0f6030e4b023121e0e92a5

 

How wonderful that Unrest has been certified for continuing education credits for doctors!

 

Article in one of the main Dutch national newspapers "De Volkskrant" about unrest:
Chronisch vermoeidheidssyndroom ME is geen 'yuppiegriep' (CFS isn't yuppy-flu)

The author quotes Jennifer Brea and explains why CBT, GET and PACE are bad so it's a positive article for uninformed readers.

https://www.volkskrant.nl/opinie/ch...hash=724b1eb54ec880d12072378e85319d2149341536

It's members only but I'm able to read it (it seems the first article is free).

 

A young woman films herself while lying on a wooden floor. It is dark, the image grainy. She tries to get up. Her breathing is heavy from the effort. It does not work. Later in the room there is a bed. She tries again, drags herself through the room and climbs on the blankets, panting. She falls down exhausted.

This is how the impressive documentary Unrest, which premiered at the Sundance Film Festival earlier this year, recently appeared in the Netherlands via iTunes or Vimeo. The woman in question is called Jennifer Brea, and has myalgic encephalomyelitis (ME, also called chronic fatigue syndrome). "As long as I can remember, I wanted to swallow the whole world. I dreamed of places I wanted to visit and things that I would see. " She traveled a lot, was engaged to her big love, to the promotion.

And then she became ill. She did not recover after a severe fever attack. "I went to the kitchen to get a glass of water and could not move afterwards," she says in the film. Extreme exhaustion after exercise is the most characteristic symptom of ME. Millions of people worldwide suffer from the disease.

Little is known about the cause; relatively little money is being spent on research. In Unrest some doctors speak who think that ME is an immune disorder. This year two studies of research groups appeared that found that the cells of people with chronic fatigue produce less energy than usual. 'It is definitely a physiological effect that we observe, and not psychosomatic', an involved scientist in the British magazine New Scientist emphasized.

Yet many people think that ME is not a real disease. Brea shows television fragments in her film. In the first it is called the 'yuppie flu'. Another: "Some think it is a fabricated condition." A comedian: "So somebody was collecting for ME last. That is the one of: no sense to work today. " The word 'hysteria' falls.

The fact is that most doctors think that ME is a psychological problem

Brea says that at first she was told that her exhaustion and pain were between the ears. Maybe she suffered from an old trauma, suggested a neurologist, or stress. Such an experience is the rule rather than the exception among people with ME. Brea thinks that gender has to do with it. About 85 percent of patients are women. "I wonder if that's why they do not believe us."

The fact is that most doctors think that ME is a psychological problem. Experts came up with a theory about twenty years ago: these people suffer from the misguided belief that they have a medical condition. As a result, they take a lot of rest and they suffer from 'deconditioning' - they are grandiose out of shape, so to speak. So they themselves, unconsciously, caused their ailment and keep it themselves. 'A quarter of us are bound at home or bedridden', says Brea. "And yet we have to live with this stigma."

17 Nov
Asha ten Broeke

✔@ashatenbroeke
Replying to @ashatenbroeke
Bronnen (1/2):
De documentaire 'Unrest' https://www.unrest.film/
Cellen bij ME produceren minder energie https://www.newscientist.com/article/2152357-blood-cells-in-chronic-fatigue-syndrome-are-drained-of-energy/ …https://www.newscientist.com/article/2121162-metabolic-switch-may-bring-on-chronic-fatigue-syndrome/ …
Linda van Campen over deconditionering https://www.youtube.com/watch?v=SP-8O6lczcQ …


Asha ten Broeke

✔@ashatenbroeke

Bronnen ea interessante links (2/2):
Over de behandeling van ME https://undark.org/2017/07/26/cdc-chronic-fatigue-graded-exercise/ …https://undark.org/article/chronic-fatigue-graded-exercise-pace/ … https://www.medischcontact.nl/opinie/blogs-columns/blog/ongemakkelijke-onwaarheden.htm …https://www.medischcontact.nl/opinie/blogs-columns/blog/-cvsme-nog-meer-ongemakkelijke-onwaarheden-.htm …https://www.medischcontact.nl/opinie/blogs-columns/blog/cvsme-de-non-dialoog.htm …https://www.nytimes.com/2017/03/18/opinion/sunday/getting-it-wrong-on-chronic-fatigue-syndrome.html …http://journals.sagepub.com/doi/full/10.1177/1359105317722370 …https://www.coyneoftherealm.com/blogs/news/what-to-look-for-in-the-special-issue-of-journal-of-health-psychology-concerning-the-pace-trial …

10:14 AM - Nov 17, 2017

Opinion | Getting It Wrong on Chronic Fatigue Syndrome
The standard therapies have been largely useless.

nytimes.com

The treatment consists, according to theory, of behavioral therapy that patients must learn to have 'better' thoughts about their condition; that their complaints do not come from a physical illness, that they can do anything, that recovery is possible.

In addition, there is graded excercise therapy, which means that someone with ME should slowly become more and more active, in order to get in shape again.

ME patients soon reported that the treatment often did not work or was counterproductive. Many doctors put that aside with an appeal to a major British study that would prove its effectiveness. But on closer inspection it turned out to be as leaky as a basket; the scientists had tampered with the figures, so they had noticed improvement that had not occurred.

What scares me to death is that you can disappear because someone tells you the wrong story about you

Jennifer Brea
New research suggests that deconditioning is not the issue. Like that of cardiologist Linda van Campen, who said after the screening of Unrest in the LUMC: 'So a kick under your ass, just do more and it will all go away: bullshit.'

This is what stigma does. It leads to inadequate treatments, lack of research money and a collective disbelief that makes the suffering of people with ME invisible.

"Illness does not scare me, and death does not scare me," Brea says in her film. "What scares me to death is that you can disappear because someone tells you the wrong story about you."

Google translated version.

 

Just saw this:



No idea what Dr Oz is like, but he's got millions of followers on twitter, so it's certain to get quite some reach.

 

I watched Dr Oz on television for a few years, and also heard him speak. Depending on who else he brings on his show, to offer an opposing viewpoint, this could be a big win for ME awareness in the US.

Now I can tell my family and friends to watch Dr Oz in December so they can learn more about the “hidden health crisis”.

 

He's ... nice. And very good at dumbing things down. A bit too good, perhaps He has a tendency to promote a lot of things without a good evidence base, but he'll treat his guests and topics very compassionately.

It looks like he's covered it several times, but has simplified it. Eg, applies to women, focuses on fatigue. But he has had good guests for ME/CFS over the past couple years, and based on Jen's past performances, she'll do a great job of covering the nuances which he misses.

 

And if it encourages people to see the movie, that would be terrific. This Dr Oz appearance seems like a big win to me.

 

@Sly Saint
Do we have a thread to post personal reviews of Unrest?

 

Okay. BTW, I copied your patented S4ME logo from your signature, but altered it slightly. So I hope you don’t threaten to sue me for patent infringement