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Special screening of Unrest for MPs and honoured guests - oct 24

Discussion in 'General ME/CFS News' started by Cheshire, Oct 23, 2017.

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  1. Trish

    Trish Senior Member (Voting Rights)

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    @Jonathan Edwards can you tell us how the Q and A session after the film went? Did you get the impression there were MP's interested enough to follow this up with any kind of action?
     
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  2. Barry

    Barry Senior Member (Voting Rights)

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    I could try to pretend there is something deep and mysterious about it, but no. I had a very fraught evening sorting out the avatars bit of the user manual, mistakes compounding mistakes, and I was using my own avatar setting to grab screen shots of. Going through photos, and one I picked seemed interesting - tree roots growing on side of a bank on Dartmoor, but then realised it was much too dark and brooding to put on a help section for PwME. So I went for something more pleasing, and for the moment that's my avatar. It may change in dues course :). "Laking it ... ", "pond-ering" - we really do need a groany smily :p:D.
     
  3. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    MPs did not contribute to the discussion directly as far as I know. The MPs present looked as if they were already interested in advocating for more research for ME but I do not think any specific opportunities were identified. I don't think anyone was expecting that.
     
  4. TiredSam

    TiredSam Moderator Staff Member

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    I tell my students that the traditional response to a pun is a groan. Nice to hear that it still is.
     
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  5. chrisb

    chrisb Senior Member (Voting Rights)

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    No need to be like that. They were nobbut laikin'.
     
  6. brf

    brf Established Member

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    @Jonathan Edwards

    Was there any specific feedback from the MPs?
    We're planning a screening for Parliamentarians in Canada and that kind of info might be helpful.

    Thanks.
     
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  7. Sasha

    Sasha Senior Member (Voting Rights)

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  8. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    There was no slot for any feedback. I think that was right. Lady Mar and Charles and Jen and Jessica put their story to the representatives of the people. It would have been crass to ask for a response. I think everyone was grateful that MPs came and sat right through and several made it clear they were supportive. It was a way to build and cement friendships. MPs after all are not the legislature. They are there to be our advocates when the legislature chooses to act. I think it is good that this process is kept separate from lobbying government as such. That has been done as well, but the rules of engagement are different.
     
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  9. Perrier

    Perrier Established Member

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    Please keep us all posted on this. Nothing much is happening in Canada on this front.
     
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  10. brf

    brf Established Member

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    @Perrier

    Yes, we sure will. Unrest has been shown in several Canadian cities already.

    Were you aware of the Canadian campaigns currently going on?

    "Open Letter to the Minister of Health"
    "Meet your MP about ME"

    You'll find both on our website or facebook pages.
     
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  11. Sasha

    Sasha Senior Member (Voting Rights)

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  12. brf

    brf Established Member

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    @Jonathan Edwards

    Quite right.
    I was thinking more in terms of venue or how open or receptive they were, but you've mentioned here they were very supportive.

    Thanks!
     
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  13. brf

    brf Established Member

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  14. Sasha

    Sasha Senior Member (Voting Rights)

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    @Jonathan Edwards said on that other thread that Charles Shepherd would be a good person to ask for advice (the medical adviser for the UK's ME Association).
     
  15. brf

    brf Established Member

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    Hey @Sasha

    We're speaking with UK people this week and I'll make sure Charles Shepherd is on the list to contact.

    Thanks so much. :heart:
     
  16. Adrian

    Adrian Senior Member (Voting Rights)

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    There were some positive tweets from a few MPs
     
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  17. brf

    brf Established Member

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    Thanks @Adrian

    I'll have to go mining for them.
     
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  18. brf

    brf Established Member

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    A couple of kind souls on a FB group posted some tweets for me which I've reposted on our FB site but am having difficulty linking to here for some reason.

    It's encouraging to see so many MPs talk about about the impact the film had on them.
     
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  19. Sasha

    Sasha Senior Member (Voting Rights)

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    I read that they just saw 20 minutes of it (so not a preview, a section).
     
  20. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    They saw about the first 20 minutes - some of the best material.
     
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