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We've had a terrific response to the letter with 900 Canadians cosigning to support it. Thanks to S4ME for circulating it and for all those who responded so enthusiastically. To bring maximum awareness to ME in Canada during this election, the second part of this action is for the 900...

A federal election in Canada is underway. Recognizing that nearly 600K Canadian patients with ME together with their families and supporters could represent potentially millions of voters, a few advocates collaborated on preparing a letter last weekend to send to each party leader. The letter...

I'd like to know how this came about and some assurance it won't be happening again in the future. A number of people spoke out with concerns, both publicly and privately, when the webinar notice was first posted, as it was originally billed as a webinar on Long Covid, Myalgic...

Announcement From Millions Missing Canada Research Results Released: qEEG Assessments for ME Volunteers From Laurentian University During the summer of 2018, researchers from Laurentian University Neuroscience Department led by Andrew Pellegrini, visited 45 ME patients in their homes in...

I was eager to read it. Thanks @rvallee Here's the link on sci-hub. Risk factors for suicide in chronic fatigue syndrome

Thanks @Snowdrop We usually contact the media and post a media kit every year but the person who normally contacts the media is too ill to join in this year and we're low on volunteers to help right now. The kit is still on the 'To Do' list to update — so may (or may not :)) get posted yet.

Event Details Date/Time: Tuesday, May 5 | 8:00am – 9:00am It sounds interesting. Was anyone able to attend?

A Campaign for Trying Times Leave No One Behind... is the theme of this spring’s Millions Missing Campaign for ME Health Equity in Canada — a fitting theme right now, as plans roll out across the country to gradually ease restrictions caused by the pandemic. Campaigning this year will...

I'm so glad you posted @TiredSam I looked in vain for this information for @ScottTriGuy but, of course, couldn't remember the details or even where to find it.

Awesome — thanks @ScottTriGuy.

Awesome @Lilas This is a golden opportunity for our community. With strong representation from ME advocates at recent meetings of the Task Force, we already have their ear. We just need to increase the volume now, so to speak. Thanks so much.

The Pain Task Force in Canada seems to be leaning towards exercise and CBT, which is why it's so important right now to let them know the needs of those with ME are different.

The Canadian Pain Task Force is asking for your input to help the Government of Canada better understand and address the needs of the millions of Canadians who live with pain. This, of course, means people with ME too! With reported figures as high as 94% of our ME community experiencing pain...

So glad it's helpful for you in more ways than one. Thanks @rvallee for letting us know!

We LOVE your enthusiam @DokaGirl. You've just made my day! Thank you! The link above link leads to the Allies For ME website where the letter and instructions are there waiting for you in English and in French. The campaign is also being promoted through social media and people can find it on...

A new Canadian initiative has been launched to reach out and educate our new MPs post-election. We hope you'll consider downloading the letter, sending it off to your MP and asking family and friends to do the same. Flooding their offices with our letters will raise awareness and help gain the...

Here are a couple of articles about the research. Any relevant implications for ME? Metabolic Switch for Inflammatory Diseases Trinity researchers uncover critical metabolic switch for inflammatory diseases

Just a quick note @Jaybee00 and @Woolie to say I've recently been prescribed Colchicine and the first night I had the best and deepest sleep I've had in years. It was really unexpected and, of course, a very welcome surprise. Because of an unwanted side effect, I had to skip the next day, and...

Anticipated Notice of Decision: August 22, 2019 Funding Start Date: September 01st, 2019

Hi @JaimeS , I've added a couple of references from the IOM about those with ME unable to work. I've included the exact quote and page number so it can be easily located, but feel free to reorganize it in whatever way you prefer.