We’re recruiting a new Head of Advocacy and Communications for the World ME Alliance. Might you or someone you know be interested?
About the Role
Are you a strategic thinker who loves connecting people, shaping ideas, and driving meaningful global change?
The
World ME Alliance is seeking a
Head of Advocacy and Communications — a multidimensional role at the heart of an inspiring international movement to transform understanding and care for people with
Myalgic Encephalomyelitis (ME).
This is an opportunity to work with extraordinary people and organisations from across the world — from patient advocates and clinicians to global health leaders — to amplify the collective voice of millions of people living with ME.
The Alliance represents a patient population that has been
neglected and stigmatised, and this role offers a rare chance to make a tangible difference for one of the most marginalised groups in global health.
You’ll lead the development and delivery of our global
advocacy, policy, and communications strategies, shaping campaigns that capture international attention, influencing institutions like the
World Health Organization, and strengthening collaboration among our member organisations worldwide.
It’s both a hands-on and strategic role — perfect for someone who can move seamlessly between high-level policy engagement and creative storytelling, between coordinating global partners and producing compelling digital content.
What You’ll Do
- Lead and grow a global network of member organisations, building strong and equitable partnerships, while managing the day-to-day running of the organisation.
- Develop and deliver global advocacy and communications strategies.
- Shape campaigns such as World ME Day, uniting voices worldwide for shared impact.
- Create engaging content, digital resources, and policy briefings that inspire action.
- Represent the Alliance in international policy spaces and global health conversations.
You’ll work closely with the Alliance’s Co-Chairs and leadership team, reporting to either
Action for ME (UK) or
Solve M.E. (US) depending on your location.
About You
You’re an experienced communicator, campaigner, or advocate who thrives on collaboration and connection. You have:
- Proven experience in communications, advocacy, or policy work — ideally in a global or health context.
- The ability to turn complex information into clear, compelling messages and digital content.
- Strong relationship-building skills and a commitment to inclusive, equitable global collaboration.
- Empathy, resilience, and a deep motivation to work for positive change.
If you want your skills to contribute to something that truly matters — giving voice to a community that has too often been unheard — this role offers purpose, creativity, and connection in equal measure.
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Location
We are open to applicants from the UK, or those living within 3 hours of the Pacific time zone. To download a country specific information pack about this role, please see below.
Deadline for applications
10th November 12pm PST / 8pm BST