USA: ME/CFS Advocacy Week - Call or email your senators

ahimsa

ahimsa

Senior Member (Voting Rights)
Most of us are not able to go to Washington, DC for this advocacy week. But there are still ways to make your voices heard!

Today I called both of my senators and then tweeted about it:
Code: 
https://twitter.com/ahimsa_pdx/status/1113509333101187073
Code: 
https://twitter.com/ahimsa_pdx/status/1113551379820236801



I've attached two PDF files. One has instructions on making calls, including a call script. The other has info on making posts on social media.

The main hashtags I've seen are #CongressFight4ME and #StormDC4ME

I hope I've posted all the right info. If anyone sees errors/typos/etc please let me know or just post corrections. Thanks!
 

Attachments

By the way, the call script says

"If you are up for it, you can even call each day during the week and repeat the same important
message!"

So I hope to make calls again tomorrow! :)
 
A side comment, but I was just thinking that it is so useful to read about what is happening in countries other than our own. Where things are going well it provides examples of good practice to use with our own countries, and where things are going badly we can offer information and support internationally.

Also it helps us deal with international issues, for example though the US [is] not getting so drawn into the MUS blind alley it does seem potentially to be a pan European problem requiring response at both national and international levels.
 
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Go @ahimsa!

I agree with @Peter Trewhitt, it is heartening to see this happening in other countries.

I’m full of admiration for the people calling and visiting.

For the last few years I met with lots of politicians and it is seriously hard work and extremely draining, even with lots of help.
 
Yesterday, Senators Ed Markey of Massachusetts and Susan Collins of Maine initiated a bi-partisan Senate Resolution entitled “Supporting the goals of International Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Awareness Day.” This multi-year effort was a collaboration between Solve ME, #MEAction and the Massachusetts ME/CFS & FM Alliance. The resolution is expected to pass early next week.

On the same day, the House Appropriations Committee passed the FY20 Labor, Health and Human Services, and Education legislation withoutincluding the additional $4.5 million for ME/CFS programming as requested by 45 bipartisan Members of Congress.https://solvecfs.org/statement-by-s...olution-and-labor-hhs-education-markup/#_edn1 While we are disappointed that the members of the House Appropriations Committee did not recognize the critical importance of improving the federal response to ME/CFS, we applaud the strong Committee report language directed to the Department of Health and Human Services (HHS) and the National Institutes of Health (NIH).
Click to expand...

https://solvecfs.org/statement-by-s...te-resolution-and-labor-hhs-education-markup/
 
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