Abstract: Long COVID continues to challenge public health by affecting a significant segment of individuals who have recovered from acute...
There were a couple of social media accounts on ME/CFS research and advocacy, as well as more general research relevant for ME/CFS I used to...
It's been a while since I actively used LinkedIn but I think it is getting more popular for posting information with the decline in Twitter/X....
Pre-pandemic activity on a myalgic encephalomyelitis/chronic fatigue syndrome support forum is highly associated with later activity on a long...
Comparing Physician and Artificial Intelligence Chatbot Responses to Patient Questions Posted to a Public Social Media Forum John W. Ayers; Adam...
Podcast: "Doctors and dualism" - Diane O'Leary, 2022 A podcast from ABC Australia featuring Diane O'Leary. Apparently ME/CFS is a prominent...
The idea of this thread is to collect useful *short* arguments to refute the claims most often used by BPSionists in reaction to criticism of GET...
Its happening with every link I can click on which takes me to another page on Twitter, and The Times article is actually a photo which is stored...
A topic that has extra relevance given Shepherd's expulsion from the NICE committee and weaponizing the monitoring of online content in favor of a...
Recommendations From the Twitter Hashtag #DoctorsAreDickheads: Qualitative Analysis https://www.jmir.org/2020/10/e17595/ Background: The social...
One of these is Curable https://www.facebook.com/curablehealth/ "Pain causes fatigue, etc., etc." There were two other apps being pushed in my...
https://www.bbc.com/news/health-51134545 The report, by the Royal College of Psychiatrists, calls on the regulator to require social-media...
It thought this was an idea worth considering, as online presence seems like one of the most powerful assets of the ME/CFS community. As I...
The goal of making science more transparent—sharing data, posting results on trial registries, use of preprint servers, and open access...
Most of us are not able to go to Washington, DC for this advocacy week. But there are still ways to make your voices heard! Today I called both...
New threats to effective scientific communication make it more difficult to separate science from science fiction. Patients can be harmed by...
The ME Association is looking to recruit someone to help expand our social media presence in the M.E. community and to make more of an impact in...
Bustle: "You may have noticed the hashtag #MillionsMissing trending on social media, or may have seen some landmarks lighting up blue over the...
It’s 10.32 on a Friday night and I am staring at the glow of my iPhone screen. It is almost three hours since I checked in to social media. It is...
A facebookpage has just been created called True Stories About Lightning Process This is a place where ME-patients can share the other side of LP,...
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