United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

I don’t like to compare and compete with other illnesses….but the figures on people with MS are just dwarfed.

Also I know a lot of people with MS, at least 4. Whereas I only know of one “friend of a friend” with ME (and all you guys of course) weird.

 

Further coverage of the Ponting et al Unequal access paper: there's a story in the Mirror, & also this in the print edition of the Times today:

 

BBC Radio One:
The Going Home programme has a slot where a listener comes on each show (Monday to Thursday) and nominates a song to play and the reason why.

I’m just listening to the Thursday programme and they have Kelse (sp?) on who has supposedly been talking about her battle with ME. She is doing the Manchester marathon this weekend and has built herself up for it.

 

ME? Marathon????

 

Merged thread

Article BBC: 'Marathon will be victory lap after ME diagnosis'

'Manchester Marathon will be victory lap after ME diagnosis' - BBC News

 

I’m glad she has recovered, and that she doesn’t claim to have the cure.

The title is a bit misleading by BBC. It’s after having recovered, not after getting the diagnosis.

 

"Scientists call for research hubs to solve mystery of ME" (The Times, April 27 2025)
Chronic fatigue syndrome affects about 400,000 people in the UK, but there is no diagnostic test or effective treatment

Link | Archive link

 

I can't get archive.ph links to work these days. I'm not sure if the site is down here in the UK or whether it's something in my setup. I use 12ft.io to view these paywalled articles.

 

Can people recover from me/cfs like that or is it more likely she was misdiagnosed? Seems the diagnosis is a guessing game.

I can't imagine doing a marathon ever.

 

That’s presumably the woman I mentioned here:

 

Some do recover, and if they do, there is no reason to think that they shouldn’t be able to work out normally. Edit: after they have recovered.